Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-13-2013, 10:14 AM #11
DomRiddUK DomRiddUK is offline
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Originally Posted by sospan View Post
Dom,

From my own experience in the UK, doctors have little sympathy or understanding of the consequences of a head injury. Have a look at the Headway site which have local support groups. Also have a look for the UKabif they have quite a lot of information.

Open spaces, crowds, bright lights, kids, tiredness, emotions are quite common things we all find difficult. We also find that symptoms come and go as we are on the road to recovery.

It truly is a rollercoaster - so hold on tight
Thank you, good to hear from someone from UK, and thank you to everyone that is showing support and giving great advice...

It's a weird one... I sit here as me, I can see it's me, I'm typing(probably not as precisely as i once would - keep hitting caps lock instead of a) but I feel odd, like it's not real like all I've done today is one big dream,

I got up and got my 4 year old ready(luckily my wife had dropped my 4 month old earlier to her parents) took her to nursery, we chatted and stuff while we drove, all normal things, i then went to tescos, but stopped in to see my brother on way, his wife and kids were just leaving for school, so snuck up and surprised them all, went in to see my brother chatted and then got on, drove to tescos, parked up and did a £56 shop, went home, put shopping away, made wife some lunc who collected on horse back(she works with horses) tidied up house, fixed dishwasher and loaded, had a good hours sleep on the sofa at lunch and then got up to tidy more...taking it steady an slow...

but now it feels like was that all reality? Did i really do that? And if I did, why doesn;t it feel like I did... Am I really doing it, why if I can do all these things, then why don't I feel like myself... It's so strange I can text and chat to friends on facebook and come across perfectly fine, I can go to kids parties and be totally fine.. so How am I doing this and not feeling myself... thats the big head twister...

On good news i got some Omega3 and multivitamins as suggested, and I woke up from lunch nap, like it was all a big dream... soon realised the dream wasn't over...

This is the strangest thing I've ever encountered, but also feel that I'm gonna be like this a while longer, so accepting this and getting on with what i can...

Also went to the crash site, no flashbacks or memories at all...

Thanks for listening all
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Old 05-13-2013, 01:22 PM #12
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Default I get it --or did

Yes, that odd reality feeling, like doing activities, yet I am kind of watching myself do them -- I had that too before when I tried to be at work with this post concussion thing.

Then I had happy dizziness and laughed a lot -- even if things weren't funny.

Anyhow what you described with all the activities you did -- maybe that brain fog or whatever, but I have felt it too.

I hope you can get some time off work to really heal though.

pm
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 05-13-2013, 04:29 PM #13
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Hi Dom
Really feel for you, I have had the same experience also.
It does get better though, I am 10 1/2 months in now and if some one told me back then how long it was gonna take I would not of thought it possible.

I am also in the uk and my own doctor was clueless, luckily I saw a second doctor who is really understanding and patient and she diagnosed me 3 mounths later.
I had no scans but did pay privately for a neurologist appt. he said I was suffering from post trauma migrain with aura..

I suffered no headaches at all until 3 months in but fortunately they are now far and few between.

Reading your post; the bit where you got your 4 year old ready then drove to school, did some shopping etc, well hold up there !!!! even I would struggle with that right now, and I am nearly 90% sympton free.
I think maybe you are trying to do too much still, and carry on as if normal, well things are not quite normal yet but they will be if you just try and slow down a bit. Do you have friends and family that can help ?
I imangine with young children it must be very difficult for you to get lots of rest but I found things like yoga, reflexology really helpful, I did not like taking medication but found a change in diet also helped, no caffine, sugar etc, check out the vitamins thread above .

I wish you well, and hope things improve for you.

Cx
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Old 05-14-2013, 03:08 AM #14
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I have to do what I can... My wife works and too much for her to look after two kids and work... Luckily we have both sets of parents helping out as much as they can...

Tell me, does this feeling actually go or do you just get used to it/adapt?

I find concept of time hard to grasp, lose track of it easy and never feels like time it actually is...
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Old 05-14-2013, 03:47 AM #15
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Also C(sorry you didn't put full name)

Can I ask what she are you, how long where you out for? Did you get any glimpses of normalness, if so, when did they start?
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Old 05-14-2013, 04:05 AM #16
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One of the things that I fell foul of was trying to live "a normal life" much like I did before and try and push through it. All it was doing was draining precious brain reserves that are needed for recovery. Whilst we feel like we are doing fine - we are not performing at the level we think we are.

We have all experienced people pulling out in front of us when we drive down the road. And you sit there in shock or fuming thinking why did they do that, after a few near misses I realised that I was that person and that whilst I though I was fine, I was a clearly a danger to myself and others and stopped driving. Similarly when you see someone slow being slow or struggling when out in public it is a difficult thing to think - am I that person?

It took me many months to change my lifestyle to a low enough level that I can still do things and get the rest needed to recover.

Trying not to be a superhero and struggling on was one of the hardest bits to deal with.

All the best
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January 2012 tripped over a power cable and life has changed - memory, mood, balance and puzzled. Now how do I fix it ?
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Old 05-15-2013, 03:38 AM #17
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Well I'm having an MRI scan later today... Is this gonna tell me anything...

Find symptoms worse in morning...

Have had glimpses of myself again... Had moments of just feeling right, but it goes, and I'm still very irratable, and slightest stress gets me wound up...
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Old 05-15-2013, 03:47 AM #18
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Quote:
Originally Posted by DomRiddUK View Post
Well I'm having an MRI scan later today... Is this gonna tell me anything...

Find symptoms worse in morning...

Have had glimpses of myself again... Had moments of just feeling right, but it goes, and I'm still very irratable, and slightest stress gets me wound up...
Sometimes MRI's can show up the damage. However, apparently a lot of the scanners we use in the UK don't have the intensity to show up the fine detail required.

Irritability, to the point that argument came become very intense are quite common. Strangely coupled with this often comes lack of emotion or detachment.

I found setting a routine helped a lot especially to give you time to settle in the morning.

Let us know how you get on with the MRI and results.
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January 2012 tripped over a power cable and life has changed - memory, mood, balance and puzzled. Now how do I fix it ?
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Old 05-15-2013, 06:20 AM #19
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Hi

just to answer some of your questions.

yes its normal to get irritated easily, I found little things would anoy me, they still do but I now find i can deal with it better since taking up yoga.

The feeling does get better with time, to some degree, you do adjust to the new you, and you start to know what triggers certain symptons.
For me I had to avoid emotional stress, that included happy and sad emotions, just could not handle letting go of emotions, really weird, but am better with it now.

Could not talk on phone to people as they would stress me out just chatting about nothing, or so it seamed to me....

I hit my head in June last year, a beam fell on me whilst we dismantled our old garage, I did not pass out but I felt a wave of ripples go through my head and down my body.
I was fine for 2 weeks, then wham, all these weird things went on in my head and I kept having paninc attacks, went to Dr. and finally I was told it was PCS.

the first 3 months were the worst, and I suffered deresssion/anxiety and had therapy for this.
By 6 months there was a slight improvement in my symptons and by the new year things were improving weekly. I put this down to complete rest and the star of my yoga.
To date I am almost there ,but if I over do things they come back, but not as bad.

I also suffered from noise and light sensitivity, I still do a bit now, but i wear sunglasses and use earplugs. I also had eye test and have colour tinted glasses for computer work and reading, they really help a lot.

I did have a sence of normalness that came and went, at round 3-4 months in, I found it would come for a while then go, but over time I started to find that it stayed longer and longer and soon it was a case of feeling normal with the occasional weirdness hanging around.

I am female and just turned 60 years young, I was so full of energy before this but am slowly getting back to my self.

I know you can get through this, you are much younger and I think if you have a possitve attitude to life this will help.
there is a link on you-tube called ...you look great...its about an hour long, but in 5mins. sections .... take a look at it and also get your family and suporters to look as well, it will give you invaluble info on PCS/TBI

Good luck to you let us know how you get on, I'm not sure the mri will tell you much, but at least it will rule out things...


Do take care and remember rest rest rest is the only way,


Carole xx
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Old 05-15-2013, 12:50 PM #20
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Thank you Carole x

I finding it hard today, after not having a bad day yeaterday where I felt alot more myself... Even comtinplated going into work Friday if I take things easy... Gonna have a strict rest day, no taking kids to nursery, no tv/computer/iPhone...

Went and had an MRI scan today at Salisbury, nearly fell asleep in it trying to keep really still so the images were as clear as poss, prefer they found something to explain this craziness...

Nothing feels real sometimes, like sitting in hospital and having an MRI was happening to someone else and it was reality... Felt really odd... Keeping PMA and feel I will be at this stage for a while and I have to look on bright side...

So it's a tough call between do you get back to feeling yourself or your brain accepts the new you as an you.

Ticket machine at hospital nearly got it... Wanted £2.50... Put in £1.50 and it wouldn't accept my last pound coin, with a queue of people... Grrr nearly flipped! Haha... Gotta laugh. Luckily man had a pound swap.
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