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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-14-2013, 03:47 PM | #1 | ||
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My favorite band is coming to SF! I really wanna go.
Do you think I should go? I still have headaches and light sensitivity and am somewhat sensitive to noise too. Wondering how it will affect my recovery? Thank you so much! |
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05-14-2013, 05:49 PM | #2 | ||
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But if you do and there aren't assigned seats, stand in the back and maybe wear earplugs (though I hate them so I wouldn't!) I think it could set you back a little but it's an uncertainty. You could be fine but its a gamble.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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"Thanks for this!" says: | anon22217 (05-15-2013) |
05-14-2013, 06:21 PM | #3 | ||
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I don't have TBI, but I would wear ear plugs, do what ever I had to do to make myself comfortable to see those concerts I really want to see. Life goes one way, that is forward. Life is short, enjoy it all you can, in every way you can. I hope you get to go. ginnie
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05-14-2013, 08:54 PM | #4 | |||
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Maybe plan to go, use the ear plugs, and be in the back, and if you just can't take it be prepared to leave.
In a way, all of these situations where we want to try things reminds me of when my kids were about K and 2nd gradea nd how I'd have to preapare them for going shopping or something. I did the best preparation I could by telling them what we were going to do, what we were not going to do etc. And in the end, I had to be prepared for the experience not to go as I had planned or be open to a different outcome than the one I had planned on. I don't know if I am making sense -- but anyhow -- Blue, I hope you can make it to the concert pm
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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"Thanks for this!" says: | anon22217 (05-15-2013) |
05-14-2013, 09:34 PM | #5 | ||
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Since my accident I have bought numerous tickets and ended up realizing I could not go. But I agree we need to believe we will be better in our future. So once again...lI just bought tickets to see Paul McCartney...will take my parents and spouse for their birthdays....it is in a few months so I have to have faith in the healing process. Having said all that, I do realize that I may have to give my ticket away when the day comes!
On a good note: I was at my daughter's soccer game tonight. Last year...I could only go in the fall (one year post injury) and had to sit far away from the other parents, wear earplugs AND over ear hearing protectors. Today? nothing! And I sat like a normal person. yay! Progress. Slow. But it was there!!!!! So hang in there everyone. It is so tough. But it will improve slowly, erratically but surely.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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05-14-2013, 10:49 PM | #6 | ||
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Member
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I just invested in the $250 musicians custom ear plugs at my ENT office.
I figured if a 2 hour preschool event outside felt like an assault on my hearing, I needed something to be able to interact with the world. The audiologist said that these are amazing and very effective at concerts, etc. I also got tickets with my son to see One Direction in July (I know! not necessarily my favorite, but it's his). We need to make plans because they indicate hope. Okay, bluehiroko, what's the name of the band?
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness. Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine. Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs. Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014. |
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05-14-2013, 11:48 PM | #7 | ||
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Berkeley! I had the same custom ear filters. Amazing...until you lose one! Then they become useless. The other drawback about this injury is how costly it can become in terms of making mistakes, losing or breaking things, forgetting to pay parking tickets, etc. I am pretty calm about that stuff. Have learned to forgive myself somewhat. Need to order a replacement (125$)
Great you will try the show. You may want a pair of earmuff style earprotection on top of your filters. I used both many times, My mouse ears.
__________________
What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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05-15-2013, 06:27 AM | #8 | ||
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My criteria for doing an activity is, will I be able to enjoy it? Now I could go to a concert--no problem--but back in October, I would have been miserable. If the concert is far in the future, I agree with the others that you should be optimistic but also prepared to give away your ticket if you are not ready. If it's in a few weeks, I'd just judge by how you feel right now!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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05-15-2013, 12:21 PM | #9 | ||
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Junior Member
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I just went to a concert this past sunday. Yes, I sat in the back. Yes, I didn't necessarily enjoy it as well as I've enjoyed concerts I've been to before. But something great came out of it.. I only felt crappy for one day afterwards! This was soooo surprising to me and made me feel I am making progress in my recovery. Before if I went to something like this it would have taken me a week to recover. By Tuesday I felt much better (although Monday sucked and I felt I relapsed).
I'd say give it a shot. Be smart about it though.. don't be crowd surfing or moshing. Sit back and enjoy the music. The crowds are what bother me.. not necessarily the noise. So sitting in the back was great bc there was not as many people. Good luck.
__________________
I was in a snowboarding accident on January 19, 2013. I caught an edge on my snowboard while carving down the mountain without a helmet. I smacked the back of my head hard on the ground. I was not knocked out and it took about a week for symptoms to come into full effect. Since my accident I have been in a cycle of feeling better and then relapsing. It has happened many times. Although I think the overall trend is slowly traveling up. My symptoms included headaches, anxiety, sensitivity to light and noise, dizziness, fatigue, confusion, trouble concentrating, brain fog, loss of social interest, irritability, and mood swings. Many symptoms have since resolved and I am left with slight dizziness, sensitivity to large crowds and busy environments, small amounts of anxiety, and brain fog off and on. I am currently under the care of a neuropsychologist at the UPMC Sports Medicine Concussion Clinic. I am also undergoing balance/vestibular physical therapy to help with my remaining symptoms. |
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"Thanks for this!" says: | anon22217 (05-15-2013) |
05-15-2013, 01:28 PM | #10 | ||
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Guest
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Thanks everyone ! I ended up going and I had such an awesome time! I wore ear plugs . Honestly I felt a little bummed that I wasn't my normal self being able to jump around and rock my head to the music and wearing ear plugs at a concert kinda took the whole concert experience away a little! But that is just my predicament now and just grateful that I got to go and didn't feel worse from it as it didn't really aggravate anything. During the concert I kept telling my boyfriend to just protect my head! LOL! I was just so afraid that someone was gonna hit my head or something. But the crowd was quite mellow! Anyway I had an awesome time ! Thank you!
Just an update on my symptoms. My headaches have generally gotten better from a pain level of 4 to 5 down to .5 to 1. I'm about 2.5 months in with PCS. Haven't taken any drugs just on a vitamin regimen, acupuncture and seeing a chiropractic neurologist. Thanks everyone! |
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