Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 05-22-2013, 09:15 PM #11
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Default

It is very difficult to get good diagnostics of the upper neck. An MRI with the head turned sharply to each side can show instability. Sleeping on ones back without a pillow under the head but instead positioned so the head does not tilt or fall to the side may help. Straight posture is important, especially when relaxed or sleeping. The inflammation that develops from these undiagnosed injuries can cause a myriad of problems. Often, there are no other neck symptoms.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote

advertisement
Old 05-24-2013, 06:03 PM #12
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
Default headbanger

Hi there.
Been at the hospital a couple days, now my son's in deniel of all of his problems and say's he's ok. The Doc put him on meds and he won't even say how there work, wouldn't eat breakfest, won't take a shower. Life with post concussion sucks!
momwhocares1 is offline   Reply With QuoteReply With Quote
Old 05-24-2013, 06:38 PM #13
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
Default headbagger

And by the way, I've a decent job with good health care coverage, they only wanna pay for 5 days?? we've been there 6 days, Really? They take $90 a week out of my check for 2 of us the doc has to talk to some manager at MVP yes that's them and try to get more coverage! And by the way, I've work for this company for 7 years with the same coverage! Just sayin'
momwhocares1 is offline   Reply With QuoteReply With Quote
Old 05-24-2013, 10:40 PM #14
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Default

First, $360 per month for health care for 2 means your employer is chipping in at least the same. Or you just have a cheap policy. As one who has always had to pay the full price for health insurance until recently, the cost of a good health plan can be mind boggling.

I am concerned there is something much more than a concussion. His unwillingness to be cooperative with treatment and such makes it very difficult. Could he have done some drugs or huffing, etc. ? Getting a completely truthful answer from him is paramount.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
poetrymom (05-25-2013)
Old 05-25-2013, 05:57 AM #15
Concussion Concussion is offline
Member
 
Join Date: Aug 2012
Location: East Coast
Posts: 259
10 yr Member
Concussion Concussion is offline
Member
 
Join Date: Aug 2012
Location: East Coast
Posts: 259
10 yr Member
Default

Hi, sorry to enter here somewhat late.

I noted here that you ask,
Quote:
I gotta ask again what the meds were one was Resperal and Lamotrigine.
and have to ask some question:

- did you mean Risperdal instead of Resperal? - Resperal is a cold formula, Risperdal is a med for Bipolar Disorder/Schizophrenia.

- Lamotrigine is Lamictal Bipolar and Seizures.

Sadly, as Mark alludes to Mental Health care via Insurance coverages in this country is paltry to say the least, and families are usually on their own; top that with the fact that many problems are caught late and forced to be dealt with by mostly practitioners with their own thought processes and no true experiences with PCS/ Concussions or long term TBI care.

ADHD is often a longtime over-diagnosed condition in the young and adult, according to many, even in the APA, so it has been considered that many conditions might be missed for the long term, and allowed to fulminate before any true care could be offered to curtail long term problems.

Couple that with Bipolar Disorder, Schizo affective Disorders, and ADHD problems being associated with PCS/Post-Concussion problems, you do face a long term course of events, which will take its toll on your son, and the family.

Please try to hang in, continue with a trusted Neuropsych team you can work with, that can reach your son; and you and them work to obtain his cooperation to continue the care.

The neuropsych will have to write a strong, convincing letter to the insurance company to convince the need of longer term care coverage, somehow.

Again, the Neck evaluations are strongly needed, and need follow up , keep up on the vitamin/supplements from Mark's suggestions, keep the Neurologist involved fully.

I am so sorry you are going through this.
__________________

.
Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
Concussion is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
momwhocares1 (06-04-2013), poetrymom (05-25-2013), Su seb (05-25-2013)
Old 05-27-2013, 07:19 PM #16
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
Default Head bangging son

It's been the holiday weekend and all the docs have off. Ben's had a tough two days but, went into a cogonic moment where they had to give him ativan an anxiety shot. Not once but 3 times. He was actually good after that and could communicate. He is highly anxious and still having delusions. The Neurogist stop by but he wasn't able to communicate at that point. We meet with the doc tommorow sometime...I'm frustrated for it's taking so long to get the long needed help! I like this doc though he's seems to know his stuff, so I'm praying he'll give us answers . I've been trying to get Ben help for months...I won't give up till I get an answer! Post concussion.
momwhocares1 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Su seb (06-08-2013)
Old 05-29-2013, 11:44 PM #17
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
Default headbanger

Ben was hospitalize for ten day as was discharged this evening. Apparently he's showing signs of schizophrenia guess there's five different types. He will be entering a day treatment program at a good hospital and does have an appointment with a neurologist next Monday. I'm hope they have other test for the brain besides the mri and catscane which had show nothing. I'll keep posting but I wonder how this could happen? Sad and frustrated.
momwhocares1 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Su seb (06-08-2013)
Old 05-30-2013, 01:04 AM #18
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,417
15 yr Member
Default

What is a cogonic moment ?
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
Old 05-30-2013, 06:04 AM #19
DFayesMom DFayesMom is offline
Member
 
Join Date: Sep 2012
Location: Columbus
Posts: 304
10 yr Member
DFayesMom DFayesMom is offline
Member
 
Join Date: Sep 2012
Location: Columbus
Posts: 304
10 yr Member
Lightbulb Thinking of you

Momwhocares,

I've been following this post with concern because I didn't think your son's symptoms sounded like PCS alone. I have two friends who were diagnosed schizophrenic, and he reminded me of them, but I didn't want to say anything because I'm not a doctor and couldn't know for sure that's what was going on. I think other posters were attempting to prepare you for the possibility. I know this has got to be a hard diagnosis to hear, and my heart goes out to you.

I'm surprised his doctors have not explained more to you! I was going to tell you that your sons TBI may have served as a trigger for his underlying schizophrenia, but then I found this article: http://www.myhealthnewsdaily.com/159...enia-risk.html

Sp what I said could be true, but it's not entirely clear. Does your son have a family history of schizophrenia or bipolar disorder? Occasionally bipolar disorder will be misdiagnosed a schizophrenia (it happened to my brother), so that's the only reason I mention it.

Schizophrenia can be pretty tricky to treat, so my advice is to brace yourself for some ups and downs ahead. If you want to message me with any questions from my experiences with the illness, please feel free. I haven't had a son with the illness, but I did watch two close friends develop the illness and struggle with getting treatment.

Though this isn't an easy diagnosis, at least you know what you are dealing with now and your son can begin treatment to help him. My thoughts and prayers are with you.
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
DFayesMom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mokey (05-30-2013), momwhocares1 (05-30-2013), poetrymom (05-30-2013)
Old 05-30-2013, 06:21 AM #20
poetrymom's Avatar
poetrymom poetrymom is offline
Member
 
Join Date: Mar 2013
Location: Minnesota
Posts: 398
10 yr Member
poetrymom poetrymom is offline
Member
poetrymom's Avatar
 
Join Date: Mar 2013
Location: Minnesota
Posts: 398
10 yr Member
Default NeuroTalk forum for Schizophrenia

Hi Mom,

Also, there is a forum here at NeuroTalk about Schizophrenia. There are stickies there too with helpful sites. I hope you check out that forum too.

I am sure this is a hard diagnosis, and like Defayesmom, I felt what you described was not PCS.

Here's wishing you all the best.

Sincerely,

pm
__________________
[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
poetrymom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
momwhocares1 (05-30-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 03:31 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.