Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 06-04-2013, 08:53 PM #21
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
Default My son

Quote:
Originally Posted by Mark in Idaho View Post
What is a cogonic moment ?
Yeh I wrote the word wrong it"s Canatonia which is : A type of schizophrenic reaction in which the indiidual remains speechless and motionless, assumes fixed postures, and lacks the will and resists attemps to actiate speech and movement also know as catatonic schizophrenia... Wasn't fun.
momwhocares1 is offline   Reply With QuoteReply With Quote

advertisement
Old 06-05-2013, 09:50 PM #22
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
Default headbanger

Funny thing about all that's happen to Ben...It started as a concussion, for weeks, and months, from doctor to doctor to immediate care to emergency rooms, just wonder why nobody saw what the problem was?? I knew something was wrong for Ben would complain and I'd just keep trying but without success. And when and why did it switch from a concussion to a mental disorder? I believe the two problems are connected even though they may be treated as totallly different symptoms. Wanting answers is frustrating. I took off work try to arrange for my son to go to a rehab center.
momwhocares1 is offline   Reply With QuoteReply With Quote
Old 06-06-2013, 11:31 AM #23
DFayesMom DFayesMom is offline
Member
 
Join Date: Sep 2012
Location: Columbus
Posts: 304
10 yr Member
DFayesMom DFayesMom is offline
Member
 
Join Date: Sep 2012
Location: Columbus
Posts: 304
10 yr Member
Default

Quote:
Originally Posted by momwhocares1 View Post
Funny thing about all that's happen to Ben...It started as a concussion, for weeks, and months, from doctor to doctor to immediate care to emergency rooms, just wonder why nobody saw what the problem was?? I knew something was wrong for Ben would complain and I'd just keep trying but without success. And when and why did it switch from a concussion to a mental disorder? I believe the two problems are connected even though they may be treated as totallly different symptoms. Wanting answers is frustrating. I took off work try to arrange for my son to go to a rehab center.
I'm so sorry that the healthcare system failed you and your son. We've all had our frustrations, as many healthcare professionals and doctors do not understand the brain, and I guess that's also true when it comes to mental health! I was wondering though, does your son have any history of mental illness in his family? If he does, then I might lean towards thinking that the concussion was just the event that triggered his underlying condition, but if there is no history, that just makes me raise my eyebrows little bit and wonder! Granted, this is just my thoughts, as I am in the way an expert!

I'm sure it's all been very frustrating and upsetting for you. How is your son doing now that he is receiving treatment? Has he accepted his diagnosis?

I hope you're holding up under the weight of all this. Do you have family or friends that can help out?

Wishing you well!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
DFayesMom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
momwhocares1 (06-06-2013)
Old 06-06-2013, 08:18 PM #24
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
Default My Son

Hi DFayesmom,

Thanks so much for your support, looks like you've got your plate full too! Yeh the whole concussion, brain thing and mental health system needs a overhaul. I wouldn't have known if this didn't happen to us.

Again this afternoon, back at emergency, Ben was having tremors due to over medication. He was put on an IV and had his meds reduced, that's after I told the doc he's sensitve to meds...Poor Ben such a good boy/man. I'm frustrated again! Can't even get him on the right meds to help him stablize 3 weeks now. When he's home with me he's more relaxed and even though he's spaced out we still talk. And I give him chores to do around the house, found a casio keyboard at a estate sale today that he really liked so that was a plus!

My mother's sister Alice had a mental disorder but not sure what it was, swept under the carpet.

It's been a long 8 months of this and it can wear any parent down. But I love ben and won't give up till I get the answers ! Thanks for listening to me DFayesmom!

Be
momwhocares1 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DFayesMom (06-06-2013)
Old 06-06-2013, 09:55 PM #25
DFayesMom DFayesMom is offline
Member
 
Join Date: Sep 2012
Location: Columbus
Posts: 304
10 yr Member
DFayesMom DFayesMom is offline
Member
 
Join Date: Sep 2012
Location: Columbus
Posts: 304
10 yr Member
Default Anytime!

So many mental disorders get swept under the rug. my great uncle killed himself, my great grandma tried to, and i believe my grandpa struggled with depression. None of this was really talked about. my brother is bi-polar, but denies his diagnosis and refuses meds. thankfully, he's been fine the last 10 hears without them. Well, by fine, i mean not delusional. He is still moody!

i, myself, had a bout of psychotic depression ten years ago, before the head injuries. I felt irrationally compelled to cut myself even though i didn't want to (I hate knives!) a few good friends and Wellbutrin saved my life then, so i do have a strong belief that the right medicine can truly work miracles for some people.

Anyway, i say all this to say that there is evidence for a strong genetic componant to mental illnesses, and also, that I understand some of what you are going through. i have both struggled with mental illness and watched loved ones struggle. i hope your son finds the right treatment to help him and that YOU have the support you need to help him through this!

one thing is for sure--your son is lucky to have a mom like you to care for him! Hang in there!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
DFayesMom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mokey (06-06-2013), momwhocares1 (06-07-2013)
Old 06-07-2013, 01:55 AM #26
Living_Dazed's Avatar
Living_Dazed Living_Dazed is offline
Member
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Living_Dazed Living_Dazed is offline
Member
Living_Dazed's Avatar
 
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Default

When my systems are taxed I get very dazed and confused. It can last quite a while.
Living_Dazed is offline   Reply With QuoteReply With Quote
Old 06-08-2013, 10:37 AM #27
Su seb Su seb is offline
Member
 
Join Date: Feb 2013
Location: Midwest
Posts: 101
10 yr Member
Su seb Su seb is offline
Member
 
Join Date: Feb 2013
Location: Midwest
Posts: 101
10 yr Member
Default Also

I have a brother and an aunt with schizophrenia. I also thought it sounded like an emerging mental illness when you were describing your son. I am also a high school teacher and I see it emerging in my students. Get educated as much as you can and get a good support system. Don't give up. Keep searching for answers and help. Teens often don't want to communicate with their parents. Make sure he gets connected with a counselor and support group where he feels comfortable. Many kids that don't get help self medicate with drugs and alcohol in an attempt to feel better and or escape from the misery.
Good luck
Su seb
__________________
Su Seb
Slipped in puddle and fell. 10/6/12. Whiplash and concussion. 48 years old.
Dizzy, balance, vision, taste, sound, light, cognitive, headaches, foggy, head pressure , irritability,....
Su seb is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
momwhocares1 (06-08-2013)
Old 06-18-2013, 03:04 PM #28
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
Default headbanger

Hello, not much change with my son trial and error with meds. Seems when you have any head problem no one wants to help not even if you have insurance.

I've been looking for a good psychiatrist so far no one is excepting patients. Any one know one?? We have one but he doesn't take the time to explain things and I end up calling him. Anyway, Frustrating.
momwhocares1 is offline   Reply With QuoteReply With Quote
Old 07-12-2013, 08:34 PM #29
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
momwhocares1 momwhocares1 is offline
Junior Member
 
Join Date: Jan 2013
Posts: 32
10 yr Member
Default my son

Well now week laters still nowhere in the system...My son's head still hurts, as he say's "the top of my head is sore" eye's still bother him and delusional with a voice. I went to the other site but...I guess I didn't feel comfortable with the topics. I did get him someone for Ben to talk to, a nice older doctor very concerned and interested. I like that! I had started Ben on some B3 which is good for schizopherena so I read, maybe good for concussions too? But the starting dose is high 1000mgs 3 times a day. And goes higher to get good results. If anyone has heard of this please let me know. My son's had a mri and a cat scan, is there another way to tell if you've a brain injury? Why does his head and eyes still hurt and his forhead looks a little like swelled or sticking out? Just thinking I may have missed something or test or doc or something?? Thanks all for replying to this post. Maybe someone will learn something too!
Take Care!
momwhocares1 is offline   Reply With QuoteReply With Quote
Old 07-12-2013, 10:58 PM #30
poetrymom's Avatar
poetrymom poetrymom is offline
Member
 
Join Date: Mar 2013
Location: Minnesota
Posts: 398
10 yr Member
poetrymom poetrymom is offline
Member
poetrymom's Avatar
 
Join Date: Mar 2013
Location: Minnesota
Posts: 398
10 yr Member
Default My wish

I wish I could help you and I know I can not. I have no idea what is goiing on with your son's brain. I have a son too who is 19 so as a mom I relate to your deep concern.

I hope anyone here might weigh in with help for you.

God bless

pm
__________________
[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
poetrymom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
momwhocares1 (07-13-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 01:16 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.