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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-20-2013, 01:37 PM | #1 | |||
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I have been put on a preventative med called Sanomigran and it seems to be helping already. It blocks serotonin (or 5HT) receptors in the brain.
Serotonin causes a release of chemicals in the brain which widens blood vessels in the brain. This is what my post concussion headaches are all about, and this explains a lot possibly. I speculate that the ear ache, sinus pain and tinnitus is related to widened blood vessels, and my migraine headaches certainly are related to this. Goodness knows what other PCS symptoms could have been caused by this? Light and Noise sensitivity spring to mind. I also feel that my exercise intolerance and fatigue are also closely related to this. My energy levels are up with this medication. I won't be venturing to the gym yet, but I am increasing activity. I thankfully no longer have severe migraine attacks, and now have a medication that should with time hopefully reduce all headaches.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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05-20-2013, 02:26 PM | #2 | ||
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I look forward to hear your response to it.
I don't think its available in the U.S., yet.
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. Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses. Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings. |
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05-20-2013, 03:17 PM | #3 | |||
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Your right, I don't think it is approved yet in USA but it is available in Europe and Canada.
It has a very different mechanism to other migraine meds. It has definately reduced headaches and if they don't go away I use Imigran which takes all headaches away without fail.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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"Thanks for this!" says: | Su seb (09-15-2013) |
05-21-2013, 07:06 AM | #4 | ||
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Is this in a pill form or mix with water?
Did you get DX with vascular headache or post traumatic HA? Do you have to take it at the start of the headache and how long before it is completely gone?
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What happened - MVA Multiple injuries - here for support of mtbi, chronic headache and cognitive deficits. |
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05-21-2013, 11:46 AM | #5 | ||
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Have you been to an ENT (ear, nose throat) Dr. to test for any vestibular issues?
I ask because I also had excessive dizziness, noise sensitivity and nausea that never resolved. It turns out that I do have vestibular issues (both central and peripheral)-and that my migraines can be trigged by loud noises amoung other things! Best of luck with the meds and keep us posted!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness. Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine. Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs. Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014. |
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05-21-2013, 03:28 PM | #6 | |||
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It is a tablet that I take before bed, because it makes you very drowzy. My doctor informs me that it could take upto a month to work. It doesn't stop headaches when they start, it is supposed to prevent them.
My headaches are post traumatic and are taking the form of vascular headaches I think because: 1. I didn't have them when I was on Cymbalta which is a medication that produces serotonin which in turn narrows blood vessels. 2 My headaches go with Imigran which also narrows blood vessels. I haven't seen ENT, and thankfully no longer have dizzyness, noise sensitivity, all I get now is fatigued and a throbbing headache from going to work. I am much better at weekends. There isn't enough knowledge and expertise about PCS in my opinion. A lot of the getting better and working out what is wrong has been down to me, and also trial and error.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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"Thanks for this!" says: | Su seb (05-21-2013) |
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