Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-21-2013, 03:34 PM #1
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If you have a contusion and concussion a neuropsychologist would be helpful. For the time being try to get as much quiet rest as possible and avoid stimulation.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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"Thanks for this!" says:
Stewardess (05-21-2013)
Old 05-23-2013, 12:45 PM #2
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Default I Might Be Able to Help

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Originally Posted by Stewardess View Post
I got my injury on 5/5/13, so just a few weeks ago, when I decided to try to skateboard. Ive had major headaches, vomiting, mood swings with unreasonable crying, and simply cant sleep. I will be in a conversation with someone then feel as if the volume and speed of everything around me went several notches up. I've been on Narco for headache, Soma for head tension and Phenergan for nausea/vomiting. My dr just prescribed Seroquel for sleep. Has anyone tried these meds? I took the Narco, Soma and Phenergan for a couple weeks but stopped because of how druggy I felt and tried Advil only which only tore my IBS stomach up even more. I wanted to see what symptoms were from the injury and what were caused by the meds. What treatments have been successful for y'all? What recommendations do yall have? Seroquel is most commonly used to treat schizophrenia and bipolar disorder, its very strong medicine and that makes me very nervous. I've read that psycho-meds are sometimes prescribed to treat PCS. Any tips or advice are welcomed.
I had my concussion 3 yrs ago. The side efeects have been horrible. To complicate matters I have been suffering from bi-polar/PTSD, and then throw in a hysterectomy last year. I take a different drug. I take Seroquel myself. I have not had any problems with it. My husband is usually a very understanding and caring man, but since the hysterectomy he has been very hard on me. When I found this web site I almost feel off my chair. Finally someone who understands. This may be a little forward but would you consider chatting on yahoo if you have an acct.
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Old 05-23-2013, 04:26 PM #3
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Default Update - Depacon Infusion

So I started my first infusion in the Dr.'s office yesterday afternoon. I did 1000mg for first dose and now 500mg. I may have noticed a bit of difference but they also gave me 25 mg of Phenergan and 60 mg of Toradol. About 2 hours after first infusion, I started to feel a bit better, not great...but better. I give myself the infusion treatments every 8 hours. The home healthcare nurse met me at the Drs office to show me how to hook up yesterday. Its pretty simple and each infusion takes about 30 mins.

Good news.... I slept last night. Not great sleep, but still the best sleep Ive had since this all started. I will call his office to check in in the morning and we will decided how many more treatments to do.

He did believe the TBI caused the Status Migranosus and hes starting with treating that. So far I am pleased and have had very few side effects. I am in the comfort of my parents house and not a hospital and thats very nice. I got a nice nap in too today.

Concussion, I hope you are feeling much better. Bears Fan, Welcome - this is a great place to feel normal, get support, and helpful info
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Old 05-23-2013, 05:05 PM #4
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Stewardess, yes, I do feel better today, thank you. I have my days.....take my meds, deal...... as do we all

Bears Fan, I'm sure any of the ladies will chat here or where ever with you.... I spend my days on focusing - seems to be my biggest chore, scheduling my day and doing things to keep focus.

I am sorry to hear about your troubles, hope from reading your other posts that you are able to get your husband to respond differently if he absorbs anything from the videos and the Brainline post noted over in that other thread.

Good Luck with your schedule Stewardess, I'll be watching the threads as I do.

Best wishes now..........
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Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
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Old 05-29-2013, 06:19 PM #5
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Default Update

I did 5 days of the Depacon infusion at home on home healthcare. I only had to have the nurse come out once to start a new line when my current IV was getting old. My headaches/migraines and the auras I was getting are much better and under control. I was also taking Relpax for the headaches will continue taking it for moderate to severe headaches. Saw the DR today and now I will start Nortiptyline nightly for a few weeks. He said "we have been reactive to the migraines you were having, now that they are under control, lets be proactive to not get them again".

His theory of the head injury causing status migranosus seems to be spot on. The treatments did work. Im going to try work tomorrow. Its an easy day, I hope. How is everyone else doing?
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Old 05-29-2013, 07:34 PM #6
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Great, that's very good news for you .

Better ask him if he won't mind more new patients, if folks here find out who he is he may become inundated.

Good luck.
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Current: Changes of more insomnia, new reviews with findings of more Depression, tremors, vertigo, tinnitus, loss of focus, fatigue; SSDI - accepted on Depression, Cognitive Deficits; Seizures ruled out, mTBI changes including cognitive slowing/lapses.
Medication update: Topamax 200mg twice daily it seems to minimize daily headaches to a 1-2/10 quality(I still know they are there); and acute headaches erupt without warnings.
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