Update - Depacon Infusion
 

So I started my first infusion in the Dr.'s office yesterday afternoon. I did 1000mg for first dose and now 500mg. I may have noticed a bit of difference but they also gave me 25 mg of Phenergan and 60 mg of Toradol. About 2 hours after first infusion, I started to feel a bit better, not great...but better. I give myself the infusion treatments every 8 hours. The home healthcare nurse met me at the Drs office to show me how to hook up yesterday. Its pretty simple and each infusion takes about 30 mins.

Good news.... I slept last night. Not great sleep, but still the best sleep Ive had since this all started. I will call his office to check in in the morning and we will decided how many more treatments to do.

He did believe the TBI caused the Status Migranosus and hes starting with treating that. So far I am pleased and have had very few side effects. I am in the comfort of my parents house and not a hospital and thats very nice. I got a nice nap in too today.

Concussion, I hope you are feeling much better. Bears Fan, Welcome - this is a great place to feel normal, get support, and helpful info

Stewardess, yes, I do feel better today, thank you. I have my days.....take my meds, deal...... as do we all :D

Bears Fan, I'm sure any of the ladies will chat here or where ever with you.... I spend my days on focusing - seems to be my biggest chore, scheduling my day and doing things to keep focus.

I am sorry to hear about your troubles, hope from reading your other posts that you are able to get your husband to respond differently if he absorbs anything from the videos and the Brainline post noted over in that other thread.

Good Luck with your schedule Stewardess, I'll be watching the threads as I do.

Best wishes now.......... :grouphug:

Update
 

I did 5 days of the Depacon infusion at home on home healthcare. I only had to have the nurse come out once to start a new line when my current IV was getting old. My headaches/migraines and the auras I was getting are much better and under control. I was also taking Relpax for the headaches will continue taking it for moderate to severe headaches. Saw the DR today and now I will start Nortiptyline nightly for a few weeks. He said "we have been reactive to the migraines you were having, now that they are under control, lets be proactive to not get them again".

His theory of the head injury causing status migranosus seems to be spot on. The treatments did work. Im going to try work tomorrow. Its an easy day, I hope. How is everyone else doing?

Great, that's very good news for you .

Better ask him if he won't mind more new patients, if folks here find out who he is he may become inundated. :winky:

Good luck.

Highly Recommended
 

I really liked him. He treats my mom for pain management from botched surgeries with with the recalled bladder sling and pelvic mesh. He has pudendal nerve entrapment and has had too many surgeries to count. Anywho, he treats her nerve pain with alternative medicines and treatments rather than just throw a pain pill at the problem.

His bed side manner is different. I like him. He is blunt. On my first visit I was sitting and explaining my symptoms etc. He said "you can stop I already have your diagnosis". Hes funny and I do recommend him. Funny thing is he is a DO not an MD.

I hope that maybe my sharing of this can bring so relief to others. Ask your Dr about it. For me it really helped.:)

What is the problem with seroquel? Some people here recommend avoiding it.

I am currently taking it with zyprexa, temesta and trazodon.

Seroquel and zyprexa are for the same thing. They block dopamine receptors. Taking both is not recommended.
They are antipsychotics.

I only took it once on friday. My fault, I forgot about that.