Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 05-28-2013, 09:00 PM #1
DFayesMom DFayesMom is offline
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Confused My Eyes are still hurting a lot!

While my vision therapy is causing demonstrable improvement in my vision, my eye strain is still unbearable. I cannot use a computer AT ALL anymore, because I just would end up overdoing it and setting myself back further. So since my last setback three weeks ago, I have only been using my iPhone. I guess it doesn't bother me as much, because it is a smaller light source, and I turn the brightness down as far as possible. I also place a rectangle cut from a blue transparency sheet over it, to help block some of the glare, and I limit my iPhone usage to 2 hours or less per day. I cannot read a normal book or magazine for more than five minutes without my eyes feeling terribly strained, and if I spend an hour reading my Nook with the largest possible font, my eyes will hurt the rest of the day. It's not worth it.

I thought reading and writing were my life, until this happened, but now I know I am more than that. Still, I miss it so much! If I skip my eye exercises, I can do a lot more, so I know they are really hard on my eyes. I skip them once a week so I can have a day that I can do a little reading. Has anyone experienced vision therapy causing more eye strain? Does this get better? Any insight? Advice? I just want to be able to read again! I'm losing patience!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 05-28-2013, 10:53 PM #2
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I'm just curious what kind therapy are you doing for your light sensitivity? I too have this! But I'm going to see a neuroopthamologist for this and hopefully she can help me. I wonder if these are connneted with headaches?

Thank you. Take care.

Quote:
Originally Posted by DFayesMom View Post
While my vision therapy is causing demonstrable improvement in my vision, my eye strain is still unbearable. I cannot use a computer AT ALL anymore, because I just would end up overdoing it and setting myself back further. So since my last setback three weeks ago, I have only been using my iPhone. I guess it doesn't bother me as much, because it is a smaller light source, and I turn the brightness down as far as possible. I also place a rectangle cut from a blue transparency sheet over it, to help block some of the glare, and I limit my iPhone usage to 2 hours or less per day. I cannot read a normal book or magazine for more than five minutes without my eyes feeling terribly strained, and if I spend an hour reading my Nook with the largest possible font, my eyes will hurt the rest of the day. It's not worth it.

I thought reading and writing were my life, until this happened, but now I know I am more than that. Still, I miss it so much! If I skip my eye exercises, I can do a lot more, so I know they are really hard on my eyes. I skip them once a week so I can have a day that I can do a little reading. Has anyone experienced vision therapy causing more eye strain? Does this get better? Any insight? Advice? I just want to be able to read again! I'm losing patience!
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Old 05-29-2013, 06:37 AM #3
DFayesMom DFayesMom is offline
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Default Traditional vision therapy

I'm doing traditional vision therapy right now, but my doc will be mixing in some more sensory integration therapy (which is apparently controversial but has proved life changing for me), in order to try to address some of the light sensitivity. The two eye exercises I'm doing currently at home are "push-ups" and looking through prisms, which double the vision, and working on making it singular. Have you seen a neuro-opthamologist or neuro-optometrist yet? If not, I'd research it and make an appointment to be evaluated.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 05-29-2013, 06:46 AM #4
DFayesMom DFayesMom is offline
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Default P.S.

Yes, it can be linked to headaches, but at this point, I only get headaches if I do something stupid, like go outside without sunglasses on or drive for two hours straight. Oh, and wearing hats REALLY helps with sensitivity to sunlight. I wear sunglasses and hats everywhere at this point. I'm not a hat wearer, so I didn't do it for a long time, but it really does make a huge difference.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 05-29-2013, 09:12 AM #5
NormaW NormaW is offline
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Default Vision Therapy does hurt my eyes

Hi,

I am doing vision therapy using a computer program called vizual edge. I have three exercises: depth perception, stabilization and tracking. The program is actually for athletes to increase there performance by improving there sight but it works for others. I also do a gaze stabilization exercise every day (turn my head to one side and look at my finger at the opposite side - 30 times). I have found that my eyes burn a lot and are sore, but my neuro opthamologist said if it is sore you have hit onto the right things. I always have a headache and I believe it is from the vision issues. The post traumatic vision syndrome gives you a low blink rate which can dry out your eyes, I make a point of blinking a lot and it has been suggested to use liquid tears.

I know what you mean about reading, I would love to read or watch t.v. and when I start it is hard to make me stop and if I don't I can pay for it for days. It has still been suggested that I should not drive because my vision reaction is extremely slow.

I now have prism reading glasses and they also sent my prism sun glasses which they mistakenly put my reading prescription in (boy did I have a hard time figuring that out).

CBC radio has been my saviour and I listen to it for hours every day, but I admit I am so bored and it is hard to keep depression at bay when you really can't do anything which is enjoyable. I miss a lot of my kids events.

My neuro opthamologist says it can take anywhere from 6 months to 2 years. I am in accounting as a profession and I can't really work until I get working vision, I find it extremely slow and there are some who have not had a great deal of success while other have had life changing experience.

I am going to Toronto in July to be given more vision therapy instruction. It is too far (5 hours) for me to go weekly for therapy so they are to teach me how to do it at home.

How long have you been doing the therapy? It took me almost a year to get diagnosed.

Good luck
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Old 05-29-2013, 12:55 PM #6
DFayesMom DFayesMom is offline
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Quote:
Originally Posted by NormaW View Post
Hi,

I am doing vision therapy using a computer program called vizual edge. I have three exercises: depth perception, stabilization and tracking. The program is actually for athletes to increase there performance by improving there sight but it works for others. I also do a gaze stabilization exercise every day (turn my head to one side and look at my finger at the opposite side - 30 times). I have found that my eyes burn a lot and are sore, but my neuro opthamologist said if it is sore you have hit onto the right things. I always have a headache and I believe it is from the vision issues. The post traumatic vision syndrome gives you a low blink rate which can dry out your eyes, I make a point of blinking a lot and it has been suggested to use liquid tears.

I know what you mean about reading, I would love to read or watch t.v. and when I start it is hard to make me stop and if I don't I can pay for it for days. It has still been suggested that I should not drive because my vision reaction is extremely slow.

I now have prism reading glasses and they also sent my prism sun glasses which they mistakenly put my reading prescription in (boy did I have a hard time figuring that out).

CBC radio has been my saviour and I listen to it for hours every day, but I admit I am so bored and it is hard to keep depression at bay when you really can't do anything which is enjoyable. I miss a lot of my kids events.

My neuro opthamologist says it can take anywhere from 6 months to 2 years. I am in accounting as a profession and I can't really work until I get working vision, I find it extremely slow and there are some who have not had a great deal of success while other have had life changing experience.

I am going to Toronto in July to be given more vision therapy instruction. It is too far (5 hours) for me to go weekly for therapy so they are to teach me how to do it at home.

How long have you been doing the therapy? It took me almost a year to get diagnosed.

Good luck
I can't work either but because of messed up circumstances, I'm not on disability. Thankfully though, I am receiving severance pay for the next four months.

I did sensory integration therapy the month of March and started vision therapy in April, so about a month and a half of the traditional vision therapy. It also took me a long time to get diagnosed--2+ years from my first symptoms, but 6 months after my PCS diagnosis. Unfortunately, I was doing better and better for those 6 months, becoming less sensitive to light and more able to use my eyes, but I kept using the computer even when my eyes would start to get strained. That proved to be my downfall! I ended up blowing out my eyes right before my neuro-op appointment (that's the best way I can describe it!), and it's really only been downhill from there in terms of my eye strain. It took me a while to figure out I just can't use the computer AT ALL.

I wish I could go back in time and do things differently because this setback has just been huge. I'm just waiting for the gradual improvements I see when doing my vision therapy to start making a real tangible difference in how well my eyes process the world around me.
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 05-12-2017, 07:17 PM #7
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Not sure if you still go on here anymore, but I'd love to know how you recovered and dealt with your eye strain because I'm dealing with the exact same type of symptoms and eye strain from vestibular therapy and extra stimulation.
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Old 05-12-2017, 09:05 PM #8
Mark in Idaho Mark in Idaho is offline
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Norma has not been on NT in 2 years and DFayesMom not in 4 years.

Zack, You need to get assessed by a behavioral optometrist. The Carrick protocol may be doing you in. Check out Canadian Optometrists in Vision Therapy & Rehabilitation

You can also google 'behavioral optometry ottawa ' There are a few clinics in the area. Ask about concussion based injuries.
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Old 05-13-2017, 08:36 AM #9
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Ya I'm gonna do that next week since they're not open on weekends, however in the meantime, and I apologize for bothering everyone with the same question, but I need advice on what to do regarding my eyes. They feel strained 24/7 because I think I overdid them with visual stimulation and the eye excercises. So should I not do anymore eye excercises and wait till my eyes return to normal or keep doing the eye excercises and cut them down by 50%?
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Old 05-13-2017, 10:19 AM #10
Mark in Idaho Mark in Idaho is offline
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I thought you were just doing vestibular exercises. What eye exercises are you doing ?
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