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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-31-2013, 08:16 AM | #1 | ||
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Almost 7 months into PCS with all of the classic symptoms still persisting at some level since my December 9th hockey concussion (5th diagnosed).
Over the course of the 7 months my symptoms have started to get better several times only to have things like sneezing, my toddler batting me in the head, and using a hammer to lightly nail a trim board around a window to set me back to how I felt after the initial injury. I am being very cautious and careful and protective of my head. These incidences would seem to be harmless and in some cases tough to avoid. My questions are: Is it normal to have minor jarring incidences to cause me to have a setback with my recovery? Does everyone with PCS experience this super sensitivity to head movement? Is this my life now? Is it possible that this will get better? Nolan |
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"Thanks for this!" says: | anon22217 (05-31-2013) |
05-31-2013, 11:23 AM | #2 | ||
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Legendary
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I've lived with this sensitivity to quick head movements for more than a decade. You may have a sensitivity to neck movements. I do.
With a bit of time, you can learn to reduce these triggers.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | anon22217 (05-31-2013) |
05-31-2013, 01:00 PM | #3 | ||
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My neurologist says impossible! But I did notice about two months ago, I was feeling better and then I went hiking with my friends and I was jumping around. Then the next two days return of headaches again
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05-31-2013, 01:04 PM | #4 | ||
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Some people, like Mark, have to deal with this phenomenon for the rest of their lives and do learn how to adjust their movements to minimize this from happening. I have been lucky. I used to have setbacks from minor bumps to the head, but that seems to have passed now. (Fingers crossed!) Now my toddler hitting me in the head only causes a bit of a headache for an hour or two. She's hit me plenty of times too!
My triggers seem to be more stress related. It's an emotional time in my household, so I've had a terrible headache all day. And I never get headaches anymore!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit. *First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes. *Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor. *Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo. *Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms. |
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06-01-2013, 11:27 AM | #5 | ||
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06-04-2013, 12:40 PM | #6 | ||
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I am finding that good nights of sleep when I can get them, seem to be helping a bit. |
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10-02-2014, 11:34 AM | #7 | ||
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Went for a short drive today and just a couple of bumps made me feel my brain moved inside my skull..I am fed up of this ridiculous sensitivity..don't know what to do
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10-02-2014, 07:58 PM | #8 | ||
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Hey, don't give up hope.
I've dealt with this too! I got better than tried biking and came down on a curve to the road =didnt fall- I had gotten up to the point of walking fast, doing quick movements and even able to shoot hoops and jump an inch or so off the ground. then it got worse after the bike thing. Now it's up and down, but I'm almost positive the nerves in my neck are a very big issue. I'll explain that below, but here are a few tips. 1) Sneezing- tilt your head forward and squat down or come down with the sneeze. Then you don't have a quick jerk motion. 2) Keep anxiety and stress out as much as possible. I found most of my headaches were completely or got worse from tension headaches. I was so dang worried about things happening that they got worse. I highly suggest learning how to deep breath and learn how to stay calm in stressful situations. Listen to a guided meditation or deep breathing video to start! 3) When your head is sensitive, take things slow. Avoid doing activities that may agrivate your head for a while. Try to remain calm and not stressed about being slow. So the nerve stuff. I've noticed that if I tickle my arm or heel or anywhere, those spots cause a weird feeling in my head. That makes me think nerves have to be an issue. Once I realized this, actually, a lot of my headaches got better because I was so stressed. So what can you do? 1) Make sure you sleep where your neck is straight. Preferably on your back or if you can't then on your side with a pillow that keeps your neck inline. 2) I actually avoided moving my neck too much for a while and it is really stiff. Logically, that makes sense. Things atrophy. recently, I've been moving my neck slowly in different directions. This has helped a lot actually. Be careful, though! Don't push it. 3) Massage helps in the neck and shoulders, but again, don't push it. Be light. If the nerves are pinched or damaged, then you don't want to aggravate them. 4) Maybe a chiropractor would help? It helped me. Then I stopped going after I had the bike incident and got worse this summer. Now I'm back again. After the first adjustment, symptoms were a bit better for my eye pain. If you do go, make sure the chiropractor is gentle. Perhaps a chiro that does the activator method would be better? 5) If you're around any practitioners that have a PEMF machine, maybe talk to one of them. It's a machine that sends pulsed electro-magnetic fields. It helped my migraines and neck a while ago. Haven't had a migraine since. He did it on my neck and head. Each additional appt. I was able to do a higher frequency which he said meant my tissue was healing. In the mean time, stay careful and try to keep building that threshold. The longer you can stay away from a setback, the more you'll be able to keep tolerating. Praying for you and everyone else! Keep hanging in there! Things will get better! |
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10-02-2014, 11:02 PM | #9 | ||
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Junior Member
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almost 3 years for me, and yes, bumps, riding in a vehicle, or my bike, some days it is ok, some days not.
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