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-   Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)
-   -   Tell Me You Get It, I'm Begging You (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/189453-tell-im-begging.html)

DFayesMom 06-04-2013 01:27 PM

You can get better
 
Some people get near to 100% better. I'm right now around 90% better, but the last 10% of my symptoms are eye-related, which means I can't work, but I'm okay with it. We'll survive, and I get to stay home with my daughter!

Anyway, read my siggy, and you will see that progress--some of it slow, some of it rapid--is possible, with rest, therapy, and time. Read the hope and healing thread that is stickied at the top of the forum, as there are more positive stories there. Part of my story is there, but I plan on posting again when I get my eye problems worked out!

I hope you get some helpful advice here, as well as some hope for the future! Good luck to you!

12many 06-05-2013 02:53 PM

new normal
 
Hi, I loved that phrase. That pretty much describes my life now.
I think acceptance that what we have is real, and that stuff just happens keeps me focused.
So can a person enjoy life in the "new normal" enough to keep putting one foot forward........YES.
Every person, healthy or not ought to reject the dark side and focus on the beauty of life.
Many who have this are probably super active in pursuing life, now we just have to tone it down a bit and do what we can.
This can be a powerful lesson for us to reach out to others. You probably don't realize that you have encouraged me by knowing that someone can truly understand. Thanks

ED 06-05-2013 03:15 PM

Your not alone, i know what u r going through. I too have my life on hold
Im not the same person as i was 3 months ago, and
regret what has happen. People say to keep hoping and believing
which at times can be difficult. What i do to get me through to the day
is telling my family i love them with a hug. That's what is getting me through.

Ed

ED 06-05-2013 03:33 PM

Your not alone, i know what u r going through. I too have my life on hold
Im not the same person as i was 3 months ago, and
regret what has happen. People say to keep hoping and believing
which at times can be difficult. What i do to get me through to the day
is telling my family i love them with a hug. That's what is getting me through.

Ed

Living_Dazed 06-07-2013 01:49 AM

I'm so thankful for each of you. I had my breaking point in all of this. It's been a rough few days but I feel like I'm handling it better now. Having even ONE person out there that understands keeps me from feeling kind of crazy. I don't know anyone else like me (that I've ever met to my knowledge).

Thank you. My gratefulness goes beyond word,

Jace

Mokey 06-07-2013 09:23 AM

Glad you feel some strength. One needs to go very deep inside oneself to find a little bit of strength and then hold on to that to get through what are very dark times. You will improve, slowly, and there will probably be some more dark days ahead. But you got through this one and you can do it again! And again! And again! And then you will see a very little light at the end of the tunnel!

I used to have a poster on my wall when I was a kid that said 'when you get to the end of your rope, tie a knot and hang on'! Simple but life-changing and empowering advice.

Brain patch 06-09-2013 10:23 AM

Jace,
I completely understand what you are going through. I also cannot read, watch T.V, music etc. on some days. When first injured it was all the time. It has been slowly getting better. I went to a movie for the first time in 4 years and was able to follow along somewhat. I have had to force myself to get out and do things if only for a few hours a day. Depression sets in real bad if you don't. I am unable to return to work. Having to apply for disability. I am so sorry that you are going through this. It does get better slowly and you learn different ways to cope and live around the problems. I wish you the best of luck. You are not alone. Try not to isolate yourself all day. It helps to be around others even though I know you don't feel like it. I also have chronic pain daily. MS Contin has really helped with my pain issues and allows me to think more clearly. I use Ambian for insomnia and clonazepam for seizures. These medications have worked wonders for me. Everyone is different. Just wanted to share what has helped me. Also meditation is so helpful. Hang in there.

Brain :hug:

MsRriO 06-10-2013 12:43 AM

I also relate.

I'm in "return to work" therapy and it's rough. I barely post anymore due to issues with electronics usage. Can't cope well.

But I'm thankful for how far I've come. Pain is no longer ruling my days.

Stay in the moment. All we have is the present day. Best wishes to you.

Living_Dazed 07-01-2013 05:02 PM

A handful of strangers=a change in my life

How do I thank those of you that reached out and responded to me in dark times? It's nearly a month later and I've read your posts many times.

I started finally reaching out to friends. I kept them away because I was afraid they'd pity me or see how slow things work for me now. My support circle of friends has helped so much.

Thank you new friends. It really makes a HUGE difference that you can relate.

Peace, Jace

dagma1 07-16-2013 04:29 PM

Life on hold is right, count me in.

I have gone from being an extremely active person, intense hiking, rough terrain, mountains, to hardly anything, a simple walk is exhausting and gives me the biggest headache, I sit in the house in my PJ's a lot as it's too painful going out, lights, noise bother me, talking bothers me, cannot think straight.

In the beginning I fought it all and paid big time, the symptoms got worse so lesson learned.

I hear you, hang in there and look after yourself :grouphug:

..


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