FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
Reply |
|
Thread Tools | Display Modes |
|
06-04-2013, 12:44 PM | #1 | |||
|
||||
Member
|
Mokey,
You've touch on many aspects that I'm experiencing. I realized last week that I miss dancing all through my house. My music was always on. Grieving must happen and I think I, within the last month, have been coming to the realization of how bad my injuries are and that I can't hurry up and complete all the therapies quickly and get back to my life. From the bottom of my heart thank you. I am battling nausea right now but there is a lot of meaning in my previous sentence. Jace |
|||
Reply With Quote |
"Thanks for this!" says: | Brain patch (06-09-2013), Mokey (06-04-2013), MsRriO (06-04-2013), poetrymom (06-04-2013), Su seb (06-05-2013) |
06-09-2013, 10:23 AM | #2 | |||
|
||||
Member
|
Jace,
I completely understand what you are going through. I also cannot read, watch T.V, music etc. on some days. When first injured it was all the time. It has been slowly getting better. I went to a movie for the first time in 4 years and was able to follow along somewhat. I have had to force myself to get out and do things if only for a few hours a day. Depression sets in real bad if you don't. I am unable to return to work. Having to apply for disability. I am so sorry that you are going through this. It does get better slowly and you learn different ways to cope and live around the problems. I wish you the best of luck. You are not alone. Try not to isolate yourself all day. It helps to be around others even though I know you don't feel like it. I also have chronic pain daily. MS Contin has really helped with my pain issues and allows me to think more clearly. I use Ambian for insomnia and clonazepam for seizures. These medications have worked wonders for me. Everyone is different. Just wanted to share what has helped me. Also meditation is so helpful. Hang in there. Brain
__________________
Brain patch. . Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg. Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.) |
|||
Reply With Quote |
"Thanks for this!" says: |
06-05-2013, 02:53 PM | #3 | ||
|
|||
Junior Member
|
Hi, I loved that phrase. That pretty much describes my life now.
I think acceptance that what we have is real, and that stuff just happens keeps me focused. So can a person enjoy life in the "new normal" enough to keep putting one foot forward........YES. Every person, healthy or not ought to reject the dark side and focus on the beauty of life. Many who have this are probably super active in pursuing life, now we just have to tone it down a bit and do what we can. This can be a powerful lesson for us to reach out to others. You probably don't realize that you have encouraged me by knowing that someone can truly understand. Thanks |
||
Reply With Quote |
"Thanks for this!" says: |
06-05-2013, 03:15 PM | #4 | |||
|
||||
Junior Member
|
Your not alone, i know what u r going through. I too have my life on hold
Im not the same person as i was 3 months ago, and regret what has happen. People say to keep hoping and believing which at times can be difficult. What i do to get me through to the day is telling my family i love them with a hug. That's what is getting me through. Ed |
|||
Reply With Quote |
"Thanks for this!" says: | Living_Dazed (06-07-2013) |
06-05-2013, 03:33 PM | #5 | |||
|
||||
Junior Member
|
Your not alone, i know what u r going through. I too have my life on hold
Im not the same person as i was 3 months ago, and regret what has happen. People say to keep hoping and believing which at times can be difficult. What i do to get me through to the day is telling my family i love them with a hug. That's what is getting me through. Ed |
|||
Reply With Quote |
"Thanks for this!" says: | Living_Dazed (06-07-2013) |
06-07-2013, 01:49 AM | #6 | |||
|
||||
Member
|
I'm so thankful for each of you. I had my breaking point in all of this. It's been a rough few days but I feel like I'm handling it better now. Having even ONE person out there that understands keeps me from feeling kind of crazy. I don't know anyone else like me (that I've ever met to my knowledge).
Thank you. My gratefulness goes beyond word, Jace |
|||
Reply With Quote |
"Thanks for this!" says: |
06-07-2013, 09:23 AM | #7 | ||
|
|||
Member
|
Glad you feel some strength. One needs to go very deep inside oneself to find a little bit of strength and then hold on to that to get through what are very dark times. You will improve, slowly, and there will probably be some more dark days ahead. But you got through this one and you can do it again! And again! And again! And then you will see a very little light at the end of the tunnel!
I used to have a poster on my wall when I was a kid that said 'when you get to the end of your rope, tie a knot and hang on'! Simple but life-changing and empowering advice.
__________________
What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. Last edited by Mokey; 06-07-2013 at 09:23 AM. Reason: Typo |
||
Reply With Quote |
"Thanks for this!" says: |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
In Pain and Begging for Help!!!! | New Member Introductions |