Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-05-2013, 09:03 AM #1
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Default Amitriptyline

Anyone used this and how did they find it?

My doctor is switching me to this medication at 10mg today to replace Cymbalta.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 06-05-2013, 10:17 AM #2
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Default Not great for me

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Anyone used this and how did they find it?

My doctor is switching me to this medication at 10mg today to replace Cymbalta.
I was on it for the first two months to help me sleep...which it did, but that was all I felt like doing and it made feel like a zombie. I also had a lot of nightmares.

This was just my experience. I have not taken Cymbalta, so I don't know what the difference would be.
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Old 06-05-2013, 10:38 AM #3
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Cymbalta has been great for mood and pain, but it gave me an upset stomach so I am reluctantly stopping it. I hope Amytriptyline isn't as bad as you say, otherwise I will be asking for an alternative medication because I am 90% better and quite active.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 06-05-2013, 11:06 AM #4
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Are you feeling nauseous from the Cymbalta? If so, there are ways around that. Because Paxil gave me an upset stomach, I was put on Remeron as an addon, and I noticed a HUGE difference. I wouldn't be so quick to jump the gun and stop Cymbalta if it works. Plus since you've only been on it for a short time, the upset stomach may be a side effect that will wean away with time.
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
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Old 06-05-2013, 11:09 AM #5
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Default Tried it for 6 weeks

Hi Mouse,

I tried it for 6 weeks (10 mg) to see if it would get rid of my headaches. My headaches are still here so I went off of it. Boy did I sleep. I was probably sleeping 12 hours at night and sometimes a nap in the afternoon.

I actually find the 100 mg of gravol (I think it is 12 hours) helps me sleep and of course deals with the nausea.

Not sure if this is a recommended course of action.....

You can always try and if not go off, I need to start talking something for headaches and depression/anxiety but so many of the drugs have the same side effects as pcs and I have a hard enough time figuring out how I am feeling and why.

Good Luck.
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Old 06-05-2013, 03:03 PM #6
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Quote:
Originally Posted by Consider View Post
Are you feeling nauseous from the Cymbalta? If so, there are ways around that. Because Paxil gave me an upset stomach, I was put on Remeron as an addon, and I noticed a HUGE difference. I wouldn't be so quick to jump the gun and stop Cymbalta if it works. Plus since you've only been on it for a short time, the upset stomach may be a side effect that will wean away with time.
I have been thinking the same thing, Cymbalta definately works. I have been working today, cooked dinner for the family and did 2 hours weeding in the garden this evening and I feel fine.

It makes me wonder if it is wise to stop it and replace it with a tablet that might not necessarily stop headaches and makes me sleep.

Diarrhea throughout the morning is the issue, but as you say this could be temporary so I probably will not change things around yet, and I have 4 months scripts for medication.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.

Last edited by mouse1; 06-05-2013 at 04:20 PM.
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Old 06-05-2013, 04:17 PM #7
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I really don't want to stop something that is helping the PCS, so I did a little bit of internet research.

I found out that for some people Cymbalta causes excess stomach acid which leads to diarrhea.

Just gone to get some over the counter remedies for excess stomach acid and I have taken them. Hopefully this will do the trick!

I will therefore be skipping the Amytriptyline tonight.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 06-05-2013, 05:40 PM #8
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I tried it for only a few days and it made me feel like a zombie too. Apparently nortryptilene is less of a zombie drug but similar.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 06-05-2013, 11:02 PM #9
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I also tried amitriptyline for headaches and insomnia. It didn't alleviate either of these symptoms for me.
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Old 06-05-2013, 11:09 PM #10
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I took it as well. Maybe it was too early after the accident, but I felt very numb and disconnected from myself, my thoughts and feelings. A zombie.

I also found that valium was horrible as well. It didn't provide enough deep, REM sleep. I slept but wasn't rested. A zombie.

I have found propanolol and trazodone work for headache and sleep.

Best of luck!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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