Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-06-2013, 04:48 PM #1
DFayesMom DFayesMom is offline
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Default Has Anyone Else Done Sensory Integration Therapy?

I find I am the only person I've seen on this board that has had this as a treatment. Mark has said that is not FDA approved, and I wanted to research it, but I'm unable to do so because my light sensitivity makes Internet research a no-no.

I had tremendous success with it. I am 100% sure that it cured my dizziness. Unfortunately, thus far, it has not helped my light sensitivity. I'm starting to wonder if my doctor is some kind of pioneer in the field. Sometimes I do feel like it's all one grand experiment, but the fact of the matter is, the guy gets results!

Any feedback on this therapy, whether it be anti- or pro-, is welcome. Thanks!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 06-06-2013, 05:35 PM #2
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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Default

SIT is a broad term. Many of the individual therapies are part of therapies outside the SIT protocol.

What therapy helped with your dizziness ?

It helps to break down the many symptoms/struggles and address them individually. It a therapy that works for a particular symptom is also a part of SIT, it does not validate all of SIT. Same goes for any therapy.

There are many therapies that claim to reduce or cure specific conditions. Any one may help a specific person but not many others. This may be due to actual therapeutic benefits or it may be due to the placebo effect. There are some therapies that claim to resolve a specific condition but the simple exercise of relaxing and submitting to the therapy may be the most effectual part of the therapy.

It is a waste of effort to constantly be comparing outcomes between different persons. There may be general comparative value but rarely is there any specific comparative value.

The best value may be the observations of how the therapist relates to the PCS symptoms. If the therapist say, "Sure, I can fix that. It will usually only take 10 sessions at $140 per session."

We need to be careful that we are not Cash Cows for these therapists. Being desperate to get better can set us up for exaggerated claims. Often, those exaggerated claims are our fault as we grab at a few terms that sound promising while neglecting to take into consideration other parts of the presentation.
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Old 06-07-2013, 04:57 PM #3
DFayesMom DFayesMom is offline
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DFayesMom DFayesMom is offline
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Default Fyi

I plan to give more details and info on the treatment I had, because I would like thoughts and opinions, but I'm having a bad few days with the eye pain, so I'm going to have to wait until I feel a bit better.
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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