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Old 06-24-2013, 10:34 AM #21
xanadu00 xanadu00 is offline
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Originally Posted by DFayesMom View Post
We're you just in constant pain? Did the eye pain feel stinging?
I've had eye pain and eye strain for two years. For the stinging, I use Systane Ultra eye drops several times a day. The thing that has helped the most with the eye strain is Flexeril (a muscle relaxer). I've also gotten mild relief from massage and from applying heat to my eyes and neck. I keep a sock filled with rice that I microwave for a couple of minutes. It stays warm much longer than a hot washcloth.
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Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor.
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Old 06-24-2013, 10:35 AM #22
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Dear xanadau00,

I also have photophobia in my left eye only. Its not so severe as in I can still carry on my daily life but it is annoying!I do feel it has improved a little bit.

Do you think I should just wait and see or get vision therapy?

Thank you!
I'm not sure whether vision therapy is for you. How long have you had the photophobia? Have you been to an optometrist or opthamologist?
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Male, 39 years old, suffering from PCS as a result of being rear-ended on 1/23/11. Part-time philosophy professor.
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Old 06-24-2013, 01:01 PM #23
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Default I am with Xana
I got a lot of relief from my muscle relaxer valium(yes I know bad benzo in some ppl thoughts)But it was a must for me because I had muscle spasms all in the upper body,head,face,eye's etc.I tried every muscle relaxer before valium and had no luck.I also did heat/cold compressions.
I think also the adderral and vision therapy might not be a good mix.You might want to check into that.Wish you the bestMia
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What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
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Old 06-24-2013, 07:14 PM #24
DFayesMom DFayesMom is offline
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Default Eye pain
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Originally Posted by xanadu00 View Post
Your sensitivity to light will gradually decrease. For months, I had to wear double-layer sunglasses everywhere...including indoors on cloudy days and at night. I had large, extra-dark sunglasses that fit over my regular glasses and clip-on sunglasses. I had to put duct tape over every exposed corner of the large sunglasses so that no light was coming through anywhere, and I always wore a hat with the brim pulled down over my glasses.

During that time, I could not even look at a computer for more than, say, 30 seconds at a time. That was with the screen dimmed and all of the aforementioned eyewear. I had to "listen" to posts here, as well as emails and such, via text-to-voice software.

Over a period of many months (which has included a couple of severe setbacks), I have improved to the point where I can almost always get by with a light FL-41 prescription tint and a hat. I do still need extra eye protection in fluorescent lighting, but I don't react nearly as strongly to it now as I used to.

Even if your photosensitivity is the worst case your opto has ever seen, I doubt that it is worse than mine was during my worst period. (I can't even imagine how photophobia could be more severe than what I had.) I do not know whether your photophobia will ever resolve completely, but I am very confident that it will improve quite a bit. It takes A LOT of time, though, and progress is not always steady. Please try to be as patient as you can with your recovery. I know first-hand how difficult this can be. Still, even with my remaining photophobia, my life is immeasurably better now than it was when my photophobia was at its worst.
Maybe we could tie for worst eye strain EVER! Lol. I was wearing two pairs of sunglasses And a huge hat too. I didn't care how i looked! When I was at home, I just laid there with a towel over my head but still managed to play with my daughter. She's only two, so thankfully she was okay with this new, headless version of mommy!

It's good to know you have been recovering. I'm staring to accept that I will live if i don't get back to 100% but I'll keep trying. I will try the rice in a sock method, so thanks for that suggestion. As for the flexerill, I take that too, but only occasionally at night. Usually I take it for migraines or occasional neck pain, but at my worst with the eye pain, I took it just to be able to sleep. I can't take it during the day. I'm a lightweight. It knocks me out!

Yesterday, I was terrified I'd set myself back again and was so relieved when I realized it was just a migraine! I tend to get migraines when I don't sleep enough. I should definitely change my siggy from saying I'm headache free. That's not at all accurate anymore!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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