Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-10-2013, 02:56 AM #1
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Default Isn't it time we removed the word "normal"?

Here's one tip for all of you. Do not say you want to be back to normal, there is no normal, and I wish I would have told myself this during recovery.

Instead of this, try saying I want to see improvements. Baby steps are what counts in a PCS injury. One step at a time, they all say.

I got better on April 8, 2013. After two weeks of no symptoms, my full recovery was marked down on that date.

No symptoms to date, except the occasional mild headache which is relieved by napping.

Vitamin Supplements, Medication, and acupressure massages by a licensed acupuncturist/massage therapist, justt the small things made such a difference. The hospital taught me how to relax and let go, to have fun despite the bad times I was going through.

Relaxing and letting go was hard, but it did eventually get me on the path of where I wanted to go, instead of living for today, I was stuck in loops of the past. Recurring thoughts that ate me and wouldn't go away.

I can now say I am here and fully recovered, despite some shocks of occipital neuralgia on the left side. And even those, aren't so bad anymore. I am so happy with who I am now, so proud of what I've done and the challenge it was to get through. All I can say is that it made me stronger, and appreciate life more. I now go outside more, and can appreciate nice organic markets than ever before! I love food!
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
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Old 06-10-2013, 04:24 AM #2
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Agree totally, There is no normal there is just a new you. When I see medical professionals I tell them I can no longer do maths. Inevitably, somebody in the room says "but, I can do maths either" it is quite common i.e. implying it is normal.

Taking this to the extreme - In the world of disability the word "Normal" is deemed as bad as using other racist descriptor. In the UK we have a scheme supported by the government where disabled people get an allowance to buy discounted cars from all the main manufacturer. One dealer refused to sell me a car because he wanted to keep it for "Normal" customers not those on a disability scheme. When I complained the sales man dug himself a bigger hole by saying "but you look normal". When I pointed this out to the manufacturer they were so embarrassed were almost giving me the car for free but I didn't take them up on it
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January 2012 tripped over a power cable and life has changed - memory, mood, balance and puzzled. Now how do I fix it ?
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Old 06-10-2013, 10:28 AM #3
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Thanks for the post, I agree with your perspective. I tend to see normal as a continuum rather than a static state. As we go through life we experience all kinds of changes, therefore what was "normal" in the past changes over time. Traumatic events tend to knock our normal off the rails; for me recovery was about getting the train back on the track.

So I think we continuously reevaluate “normal”. When I was out with my injury, at first “normal” was getting out of the wheelchair. I did; I now walk with a cane, which is my new physical “normal”. Then I desperately wanted to get back to work. When the neuropsychological assessment came back and said “On examination, the patient demonstrated intact cognition in all domains assessed including learning and memory, attention, processing speed, language skills and executive functions. He has shown an excellent recovery from his severe injury only five months ago. From a cognitive standpoint there are no concerns with respect to the patient returning to work full time or returning to driving”, that was as normal as I needed to hear.

If I can move forward and enjoy my life that’s as normal as I need to be.

Best to you all in finding your new normal.

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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.

Last edited by Lightrail11; 06-10-2013 at 10:59 AM.
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Old 06-10-2013, 10:56 AM #4
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Default Normal?

I once heard quoted, from some spiritual guide, "Normal is just another setting on a hair dryer" yep, thats it. ginnie
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Old 06-10-2013, 11:28 AM #5
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I never say the word "recovered" for this condition. I only say, I am getting better.


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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 06-10-2013, 01:38 PM #6
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I agree, it is very hard to say you are better, it is always nearly better.

The problem with PCS is it is a rollercoaster with very big climbs and dips at the beginning.

I am cleared for work but still have climbs and dips, and you think something is resolved and it comes back again - but thankfully to a lesser extent.

The one thing that never goes away though for myself is fatigue. When the fatigue goes I will think I will be as good as I am going to get.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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