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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-19-2013, 10:08 AM
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I have been knee deep with PCS knocking on 2 years now.After wanting to give up so many times or relapsing over and over.Threw all the up's and down's.This is my progress report lol
1.I showed great result with vestibular therapy/dizziness very min not often 2.My headaches are a lot better with the medication 3.I do not feel as much fatigue opposite kind of hyper(like my body is tired of being down for so long) 4.I am know doing 20 Hard exercises for physical therapy 5.I do whatever I can help on my own with cognitive impairments 6.I have learned how to read my body 7.I know the difference between pushing and pushing to much 8.I feel sooooooo much more stable from medicine 9.I know the different feelings of stress,anxiety,depression,pain 10.I avoid all confrontation or stresser's 11.I have a better attitude from PTSD Psychologist help 12.I know how to interact with people better now from PTSD Psychologist 13.I am starting to remember more I believe from reading more 14.I found good results in acupuncture 15.I am lite jogging/walking 3 times a day now (Good pain) 16.I am a nicer,patient,understanding person 17.My sense of humor makes my M.D.s smile (since they are my BFF's lol) What I need to start working on 1.Medication might not be able to every get off antidepressants cause I have major depression. 2.Getting my daughter back healthy (she isolated herself with me) 3.Keep working my body physically harder (to avoid surgeries neck,back) 4.Still waiting to get a final answer from Jaw M.D. so I can take care of it 5.Getting into cognitive therapy sooner than later ~*~The progress has been in the last 6month's since I did not find out I had a TBI until a year and half after accident.It has been a long road threw hell.I wanted to give up so many times but I kept hope,faith, and stayed strong.I have become a different person for the better.It is like the saying after the storm there will be a rainbow.I made it through this nightmare storm from almost 2 years now.Well it all comes down to it I have several M.D.s to give me direction and guidance.BUT I WAS THE ONLY ONE THAT COULD DO THIS!No M.D. or therapist could do this for me.I learn or relearn new things everyday!I hope everyone finds this inspiring to know that it will get better in time and determination.~*~ Have a wonderful spring day~*~I am Blessed for every new day 
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | Brain patch (06-11-2013), greenfrog (05-19-2013), NormaW (05-20-2013), poetrymom (05-19-2013), SpaceCadet (06-11-2013) |
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05-19-2013, 04:57 PM
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Hi Mia
I love this progress report. I am going to journal one for myelf. It's important to acknowledge what has gone well / what needs improvement. Go you! pm
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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| "Thanks for this!" says: | MiaVita2012 (05-19-2013) |
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05-20-2013, 07:19 AM
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It was to bad that I had to sit around in a very hurting pain for a year and half that I could not for the life of me get a diagnosis.My bed being my BF at that time lol. Hey you got to do what you got to do!Well now I am so sore from actual physical activity but so happy
 I think I got all the PCS stuff manageable except a few lingering things here and threw work arounds,learning all about my body etc.I think back.....and if I was ever sore like I am now from anything physical for example:If I went just to the store in subacute stage I would get sore and come home and google MS,Fibromyalgia get all worked up thinking I had one of them.Not Anymore! Since I do have 4 diagnosis from my accident I have already been working on them and the last six month's has paid off.I thought I was stuck in subacute stage FOREVER!NOT TRUE
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | poetrymom (05-20-2013) |
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05-20-2013, 12:24 PM
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I like your report. So many of the items are so true for me. I try to find something positive everyday and did a 21 day meditation challenge. It is amazing if you look at the positives, and think positively how life seems better. Not to say I have some bad days. The isolation with pcs is probably the worst for me. I am extremely outgoing and love people, but now my social life is extremely limited and without working my exposure to the outside world is very limited. I am trying to get out and have joined a gym, I am doing aqua fit and restorative yoga. It is hard to put everything into a day but I have had alot help from professionals and this forum to keep me focus.
Best wishes. |
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| "Thanks for this!" says: | MiaVita2012 (05-23-2013), poetrymom (05-20-2013) |
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05-20-2013, 10:37 PM
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I do belive in positive thinking, and am working on it too.
Don't get me wrong, I have been negative, sarcastic and too hard on myself and others in the past. Ugh! Those attitudes are energy suckers and I need all my enegy now with this pcs. No one. The good things that have come from my pcs are 1. caffeine free and alchol free body 2. I eat better food now. 3. I am quieter. 4. I am better at decdinging what to really put energy INto 5. I appreciate my husband and children more. 6. I am hearing my body better -- because I have to listen to it now. I can't ignore its need for rest. 7. Every day has a blessing if I just look for it. all for now pm
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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| "Thanks for this!" says: | MiaVita2012 (05-21-2013) |
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05-22-2013, 05:01 AM
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15.I am lite jogging/walking 3 times a day now (Good pain)
~Correction~I am lite jogging/walking 3 times a week now instead of 2
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | poetrymom (05-22-2013) |
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05-23-2013, 07:05 AM
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I totally am with you of trying to change the negatives with the positives.It is doing our own cognitive reversal therapy
This post might be overwhelming to the people in acute and subacute stages.I posted it to let you guy's know there is hope and you will get better as I stated it can take some time and be VERY kind to yourself to allow progress
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | poetrymom (05-23-2013) |
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05-23-2013, 08:07 PM
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It is good to hear you re feeling better. This is a far different post than the first ones you started with. KUDOS to you.
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49, Male Married, PCS since June 2012, headaches, Back pain, neck pain, attention deficit, concentration deficit, processing speed deficit, verbal memory deficit, PTSD, fatigue, tinutitus, tremors. To see the divine in the moment. |
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| "Thanks for this!" says: | MiaVita2012 (05-23-2013) |
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05-27-2013, 10:01 PM
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I went from this progress report to http://neurotalk.psychcentral.com/thread189115.html
Totally Sux and I thought I was almost out of this war...until this MAJOR SETBACK  :ee k:
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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05-28-2013, 01:00 PM
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No more rehabilitation, no physical activities, not much movement going on over here from protein deficient.I will be having my pre teen daughter take care of me....so sad but true.I don't know when I will be better enough to plant another flower! How does a person deal with a major set back like this?
I had more test done today and need to go back to bed rest and stuffing protein shakes ets down my throat.No surgery because my body cannot heal a cut now let along a surgery.I'm ready to go admit myself to the mental hospital because I know they will take care of my needs.I'm officially tired and I cannot go a second round of war for another long period of time. I pray the higher power is watching over me and helps me threw.
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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