Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-20-2013, 07:03 AM #1
DFayesMom DFayesMom is offline
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Default Big step for me! Need suggestions!

I have decided to go back to writing after a three-year hiatus. I'm in the middle of a setback with my eyes, so this makes things complicated. I feel I have a very strong idea for a book that I could get published and now I have to figure out how to do the least damage to my eyes and my recovery.

I am completely unable to use the computer and seriously may be for many many months to come. I also have a hard time just writing by hand, because doing any kind of reading causes me to have eye pain. Talking into a recorder is not the best option, as I just have a very hard time creating this way.

The only ideas I can think of are trying to write by hand or type on a typewriter with my eyes closed, which seems next to impossible, especially as my handwriting is bad to begin with and my typing skills are pretty poor. Does anyone know of any technology that might be the help me? Any other suggestions? I'm so excited by the idea of writing again--I have to find a way to make it work!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 06-20-2013, 10:31 AM #2
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Consider speech recognition software such as Dragon. You will probalby need someone to proofread and correct, but this would allow your ideas fo flow and capture them in written form.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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DFayesMom (06-20-2013)
Old 06-20-2013, 11:36 AM #3
Mark in Idaho Mark in Idaho is offline
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DFayesMom,

If you are using a Windows based computer. there is already a decent Speech Recognition software in your system. Go to Start...Programs.... Accessories......Ease of Access (Accessibility)...... Windows Speech Recognition. It will take some effort to get started as you teach the computer to understand your voice. I have used it and it works well. If you do speech into MSWord with auto-correct, it can make the process very good.

You can also set your screen to magnify text/images and to narrate/read text for you.

I have wanted to write a book based on my signature verse. I just know it is biting off a big piece. Good for you as you take on this project.

My best to you.
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"Be still and know that I am God" Psalm 46:10
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Old 06-21-2013, 01:59 AM #4
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The apple products with the new operating system (mountain lion?) have an AMAZING voice recognition system built into every application. The microphone icon is on the keyboard.
I understand that this is not your best way, but I have found it VERY useful in getting key ideas down quickly, which I hope can be refined and editted when I feel better.

If i don't record the idea (which I think is brilliant at the time , I forget it!!! (brain injury!!!(
I would encourage you to try this....an ipad or ipod or small mac computer if you can find the resources. For me it works better than Dragan dictation. Rarely misses a word.

Great that your ideas are flowing!!! There is hope.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 06-21-2013, 07:31 AM #5
DFayesMom DFayesMom is offline
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Default iPhone

I could use my iPhone's voice to text function, but it's annoyingly inaccurate at times. If I speak very slowly it seems better, but sometimes it just doesn't get the word I'm trying to say. For instance, I was just trying To get it to write the word eliminated, and no matter how many different ways I tried to say it, it did not come up with the right word. My concern is I don't want to be constantly reading back, and I'm afraid it could get things so wrong that I wouldn't be able to figure out what I'd been trying to say when I go back at a later date. Maybe it would work better if I spoke more slowly?
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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