Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-26-2013, 05:32 PM #1
hopefulmom hopefulmom is offline
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Default vestibular therapy question

Hi
Daughter's vestibular therapy has been making her feel nausea for 2 months now. She feels as if she is going backwards. She wants to stop or scale way, way back to where it won't make her so sick. I agree with her.

I just wanted to hear from others who have done vestibular therapy and how did it work for them.

Thanks
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Old 06-26-2013, 07:48 PM #2
DFayesMom DFayesMom is offline
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Default Has she been to a neuro-Opthamologist

Just curious. I did vestibular therapy for several months but wasn't progressing, because many of my problems were with the connection between my eyes and my brain. I do have nausa at times related to these issues.

I remember feeling the nausea you are talking about. It could also be related to a neck injury, which Often accompany concussions.

If scaling back seems like the thing to do, then do it IMO. I should have scaled back my vision therapy and didn't. I ended up having a big setback. I wish I'd listened to my instincts rather than my doctor!
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 06-26-2013, 09:40 PM #3
berkeleybrain berkeleybrain is offline
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Default

I just started vestibular therapy, and I am also nauseous. I also have vision issues with no stable gaze, so I suspect they are connected.

I am willing to vestibular therapy a try, but I am also hoping the nausea goes away.
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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Old 06-27-2013, 12:03 AM #4
hopefulmom hopefulmom is offline
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Default

Thanks for your replies. My daughter is doing vision therapy so the combination might just be too much at the present time.

Berkeleybrain..I am going to check with our insurance to see if the vision clinic accepts our insurance because it just seems that something is not right with her eyes and balance.

She too hit the back of her head so it make sense that these areas are out-of-whack.

Thanks for your responses
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Old 06-27-2013, 08:25 AM #5
Su seb Su seb is offline
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Default Scale back

I started vestibular therapy last spring and it made a world of difference for me. It took about six weeks to get rid of 80% of my symptoms.
The key was to only do enough to raise your symptom level a notch at a time. If you do too much it doesn't work. Another thing that helped me was to do the exercises before bed or before some down time.
The exercises are supposed to make you nauseous and dizzy, but not too much.
Also, don't do anything after the exercises that might heighten symptoms. I learned not to read, walk or do a challenging task after my vestibular exercises.

I have since stalled out a bit and that is due to the remaining vision issues. The last 20% of my symptoms are manageable if I am not working.
Know your triggers and limit them and prepare for them. For instance, only run one short errand each day. I can't run to five stores. Fluorescent lighting is a huge trigger for me. I carry visor and sunglasses with me.

I am still waiting to see a neuro opthamologist.
Su seb
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Su Seb
Slipped in puddle and fell. 10/6/12. Whiplash and concussion. 48 years old.
Dizzy, balance, vision, taste, sound, light, cognitive, headaches, foggy, head pressure , irritability,....
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"Thanks for this!" says:
hopefulmom (06-28-2013)
Old 06-27-2013, 08:43 AM #6
DFayesMom DFayesMom is offline
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Default Wanted to add

I was told that doing vestibular therapy and vision therapy at the same time would be too much. In my experience, it seems like the vision therapy probably The thing to do first. Just proceed with caution!
__________________
I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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