Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-28-2013, 08:48 PM #11
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Default I am getting sooooo much better

Hi there

So sorry to hear of the terrible attack. How terrifying.

At the 4 month mark, I am much, much, much better. Sometimes, I feel so close to normal I think I can kiss it, but I know I am still recovering.

Really take it easy with yourself. If you get restless and need some exercise, try a nice walk, but don't push yourself to exhaustion. I started with really small walks-- built up to a mile, now I can go 3-5 miles no problem. But these are gentle walks and if I need to sit, I sit.

Yes, read the stickie on nutrition and try to cut out caffeine and of course alcohol. The latter one will not help you at all.

You are young and if you are smart and listen to your body, you will heal. If an activity makes you tired -- screens, reading, conversations, anything that makes you feel irritated, tired, etc---- STOP the activity. Your brain is telling you it can't handle it.

Just be as gentle with yourself as you would a baby or a toddler -- and let others know you are healing too. Because, we do look good from the outside, but inside, we are broken and trying to get better.

As for 100 percent, I am going for "better" Early on in my recovery I thought I was healed, and I was not -- I don't know if I will ever be 100 percent again. I will be better and I will take that, and if I get to that 100, why great. But for now, I am happy with better and better.

Take care

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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 06-29-2013, 11:44 PM #12
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I'm curious if people could let me know when one is truly close to complete recovery. I want to make sure that my mind doesn't make up symptoms and I do not take longer than I need. I was young and healthy before my concussion, so I am hoping that I recover fast.

As an example, I notice today its about 11pm and I am pretty tired and my eyes hurt and I'm ready to go to bed. I haven't done anything all day except for take small 30 minute naps, had a big sleep, and watchted some tv/surfed the internet. When I think about it, even though I did nothing today, I should still be tired, so I'm wondering if my mind is making these tired symptoms larger then I think. Have any of you experienced this? Where your symptoms are worse then they actually are because your mind is blowing them up?

So in summary, how does one know when they are very close to complete recovery. I have read a lot of threads on here and people still have symptoms a year later. This seems insane to me, but it must be true. I just hope I'm not one of them.
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Old 06-30-2013, 03:19 AM #13
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It is quite possible that you had sore eyes and felt tired from watching TV and surfing the internet, as I said in an earlier post these should be avoided because you are probably overstimulating your brain.

I would like to think I am close to complete recovery, although I am still tired as the day goes by and I would have headaches but for medication.

I know I am nearly better because all my other symptoms have lessened on a week to week basis to such an extent that I don't notice them anymore.

However I still need to be careful, because for example if I stayed on computer surfing the internet for 3 hours I would get sore eyes and tiredness/headache.

So the key is to know your limits as you get better and stick to them. As time goes on your tolerance for things increases as your brain heals.

I am nearly at the 8th month point since injury, the likelihood is you will be completely better long before this, so don't worry!
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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