Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-28-2013, 06:52 PM #1
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Default bipolar after mtbi

Hello everyone,

I know I haven't been on here in a while but that's because I've been hospitalized since May 14'th in the psychiatric ward of my hospital. They are trying to find meds that can help me. It appears I am suffering bipolar episodes and it is unknown if the concussion caused it, triggered it or if it was always there just not bad enough to need help.

We have tried Effexor(became manic), Cymbalta (depressed,suicidal), Cypralex (extremely aggressive) and I am now on Zoloft with Seraquel to help as a mood stabilizer. I also take elavil 10mg for headaches which has always helped. They are lowering my dosage of Seraquel and are going to put me on Lamotrodine with the zoloft.

Is anyone familiar with this occurrence or had any luck with medications or resolving the bipolar symptoms without drugs? I know I've probably spelled all of the drug names wrong but I'm tired.

I hope everyone is doing well. It's good to see some of the old names not on here as much. Maybe it means they have gotten back on with their lives.

Take care,
CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 06-28-2013, 08:37 PM #2
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Default Goodness!!

Dear cyclecrash,

I have no advice at all and wish I did.

What a turmoil you have been through. How scary for you too.

I hope others weigh in soon with any advice for you.

Is lithium a possibility for you or not?

Anyhow, take care,

poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 06-28-2013, 09:57 PM #3
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Hi CC,

I don't have any particular suggestions - just wanted to send you positive thoughts as you deal with the rollercoaster of PCS. I can say that I know at least one person with bipolar disorder whose life turned around dramatically with the help of meds and a good psychiatrist. It took her a while to find the right combination of meds, therapy, lifestyle choices/routines, etc. so hang in there.

I can't speak to the bipolar issue but my recovery has taken 2+ years. I have made enormous gains and am regaining my former life but it has been a slow process requiring much patience.

My best to you.
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Old 06-28-2013, 10:12 PM #4
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Hi cyclecrash,

Years ago I hit my forehead on a steel dock plate (used for unloading trucks) and now looking back a lot of my mental health issues began shortly there after. I have been diagnosed with bipolar /depression. And I have been on most of the meds you listed. All with the same nasty side effects.including smoking in bed & not remembering it & I never smoke in the bedroom. Very scary!

Until this latest concussion I have chosen to live med free. I am currently weaning myself off Lexapro. I plan on using the L-Tryptophan since Mark from Idaho has been having good success with it.

Like with my PCS I have to learn my triggers so I can avoid them and/or develop work arounds.

It hasn't been an easy road not taking the psych meds but I have had to maintain a strong support network of family & a couple of really close trusted friends and learn to pay really close attention to how I feel and my behaviors, like is this shampoo any better than the other 4 bottles I have, or do I really need 3 bags of chocolate candy, can I afford to go to the casinos, things like that.

I still have depressed days but I allow myself to be human and know that not everyday is going to be an up day and every one has a "blue" day and I give myself permission to be blue. It's what I do the next day that counts.

I attend 12 step meetings and use the "take the body and the mind will follow" approach to feeling better. Going for walks, doing something I enjoy doing even if I don't feel like it. I have to do something to keep the depression from swallowing me up.

My thoughts are with you on this journey.
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Old 06-28-2013, 10:39 PM #5
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I have two brothers who have struggled with bi-polar. It is not a life sentence. Getting stabilized can help you develop life skills to reduce the highs and lows. One brother had to change careers to avoid the cyclical stress levels of intense projects with intense let downs when the projects get finished.

I hope there are support groups where you can share your struggles and victories. I know there is a group called Emotions Anonymous.

My best to you.
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Old 06-29-2013, 04:57 AM #6
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Cyclecrash - Sorry to hear what happened to you. I wish I could advise but I am not in a position to, take care of yourself.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 06-29-2013, 05:58 AM #7
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Cyclecrash,

Bipolar Disorder, with the help of meds and therapy can be taken care of. Mood stabilzers (Anti-seizure meds, antipsychotics such as Zyprexa and Seroquel), antidepressants are used for depressive cycles. Manic cycles are managed by mood stablizers and antipsychotics.

Therapy may also benefit you at this time, if you haven't already done it.

Get well soon,

Consider
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
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Old 06-30-2013, 07:13 AM #8
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Default Thanks

Thank you all for the support, suggestions and success stories. I know that eventually we will find the right meds to help with this, it is just such a roller coaster ride that it sometimes feels like nothing is going to work.

The hardest thing we are dealing with, aside from my extreme sensitivity to meds, is that we don't know what is being caused by concussion, what is being caused by psychiatric issues and what is just my normal moods or issues.

I have some great doctors helping me along the way and a couple of very supportive friends and family members. Hopefully it will not take much longer to find the right combination of drugs. We have been having some success with the zoloft/seroquel mix but they want to get me off the seroquel and onto lamotrogine because supposedly it is better for brain health.

It's hard to come off something that is working and go onto something else which is unknown and with all the side effects/withdrawal that accompanies but I'm trying to be patient that the right mix will be found!

Thanks again for all your support!

CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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Old 06-30-2013, 07:45 AM #9
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CC,

Have you had a thorough hormone blood panel done ? It would need to be done at a specific time in your cycle. The effect hormones can have on mental health issues can be extreme. I noticed that the makers of Cymbalta are now trying to get it approved for PMDD (premenstrual dysphoric disorder) Check out PMDD on wikipedia. The symptoms parallel bi-polar cycles. It ties to a perceived lack of serotonin. L-Tryptophan, a serotonin precursor, was found in two studies to provide significant relief when supplemented daily in a large dose. There is some evidence that vitamin B6 can alleviate symptoms.
Learning to chart hormone cycles and help the body properly maintain them would make sense to me.

When you understand how brain function and hormones are related to mental health, this angle makes sense to pursue. A good source for referrals in the US is https://www.womensinternational.com/..._referral.html I don't know if they have referrals for Canada but it is worth a check. Just like the psychotropic drugs have side effects, the commonly prescribed patented hormones have side effects. Bio-identical hormones do not have these side effects.

My brain naturally knows what to do with L-Tryptophan. The SSRI I was taking seemed to force my brain in un-natural ways.

My best to you.
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Old 06-30-2013, 08:00 AM #10
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Thank you Mark for that suggestion. Unfortunately, I have had a hysterectomy due to cancer and would not even know where I was in my hormone cycle! My swings are weekly and not monthly. I have about three days a week where I am completely not myself. I will be sure to ask my doctors about hormones and do more research into it.

It is very hard in Canada to find anyone that looks at that sort of thing. I have contacted the people at the link you gave me, in the past, and they basically say the same thing...not much available where I am.

I am currently still working on getting a neuropsych test done and I also, finally, have an appointment with a neuro ophthalmologist for September! Slowly but surely things seem to be falling into place.

I will keep looking down that avenue. Thank you

CC
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I'm a 39 year old, female, accountant. On July 2, 2012 I crashed my bike at the end of a 65KM road ride. I was fine that day but woke up the next morning to my current world.

Ongoing symptoms include: dizziness, blurred vision, light and noise sensitivities, cognitive problems, uncontrollable emotions/depression/anxiety, headaches (but they're getting better), mental and physical fatigue, difficulty communicating and sleep disturbances.

Currently seeing a fabulous Neuro Psychologist and vestibular physiotherapist and hoping to soon see a neuro ophthalmologist. I am currently doing 20 minute stationary bike rides daily, 20 minutes of meditating, 15 minutes of Lumosity and lots of resting. I have not been able to work or drive since the accident.

The things that have helped me the most since the accident are vestibular therapy, gel eye drops (for blurred vision, sensitivity and dryness), amitriptyline (10mg), and meditating. I am finally starting to see some slight improvements and am hopeful!

My brain WANTS to heal itself... I just have to let it and stop trying to get better!
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