NeuroTalk Support Groups - in a bad position regading ssdi

Quote:

Originally Posted by markneil1212 (Post 1001025)

I am on ssdi for depression and that is coming up for review soon. my depression and anxiety is bad but the worst disability is waking up confused and taking a couple of hours in the morning to shake off some horrifying symptoms, then dealing with the other symptoms during the day.

I worked my whole life and now I cannot, but my mri of the head is negative so doctor says no brain problems. why would I make up such a nightmare? I took a vision test that showed nystagmus and suggested damage to brain stem and cerebellum, but it is not a completely accepted medical test yet. and here I am rotting away in my house feeling helpless and scared it is too much sometimes.

I do not have any info regarding brain injury but I can understand the feelings when people doubt your incapacities when it is not something they can see, including doctors. If you have a broken leg, the doctor sees it on an x-ray and friends and family see you in a cast, but have something that does not show up on some medical test, and no one understands what they do not see. It is VERY depressing to suffer not only the condition we are afflicted with but the disbelief by others.

Seems you have had some great responses. Hope you find some relief.