Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-02-2013, 07:20 PM #1
dagma1 dagma1 is offline
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dagma1 dagma1 is offline
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Join Date: Jul 2013
Posts: 66
10 yr Member
Default Vestibular therapy and feeling so much worse

I know there's been a few threads about vestibular therapy but today I feel so terrible I've done none of the exercises at all today, just cannot face it.

My head kills me and gets worse with the exercises, I am so tired beyond belief and my eyes hurt/feel pressure behind them.

I have been thinking positively but today I am so beat down and just want to cry.

Has anyone felt so terrible then started to feel better?

I am sooo tired, I lay down this afternoon for a few hours and the headache is still here and my eyeballs hurt.

I do see an Neurological Dr in 2 weeks for the headaches. I'm seeing a PT for vestibular and an OT for my eyes so I have a bunch of exercises and just can't do them all. i know I'll have to talk to the therapists about it.

The OT had me read a passage and I felt like a child reading it, couldn't read properly, going back over words, ugh....

Just ignore me today, I am just feeling so awful and feel as though I have the flu, thanks for listening, just needed to vent I guess, hugs...
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Old 08-05-2013, 05:07 AM #2
Concussed Scientist Concussed Scientist is offline
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Concussed Scientist Concussed Scientist is offline
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Default Vestibular Therapy too soon?

Hi Dagma,

I am sorry to hear that you got rear-ended. It is truly terrible. I was rear-ended also, although by a lighter vehicle that in your case.

The thing that I notice is that your collision happened only a few months ago. My thought is that this soon after your injury occurred perhaps you should be concentrating on resting and good nutrition. Pushing yourself when your body is that fatigued may not be aiding your recovery. I believe that most of the recovery that occurs happens in the first year, so you should try to give yourself as much rest and opportunity to recover as possible. In my case, the symptoms did improve although I did not make a complete recovery. Every bit of opportunity to heal that you can give yourself will be worth it.

Now the problem is that when you get a bit rear-end hit like that more than one thing is going to get damaged and each medical expert has a particular exertise. Someone that gives you advice on your vestibular problems might not be taking other neurological factors into account.

We both have suffered a traumatic brain injury. We both have had injuries to the vestibular system. In my case, I have concluded that these injuries are somewhat separate. The brain injury has been responsible for a lot of pain and fatigue. If I were to try to retrain the vestibular system by doing a lot of exercises that might actually be worse for the traumatic brain injury.

I am going to start vestibular therapy, but only now that it is 5 years after my rear-end collision. Perhaps I should have started earlier but in my case, I was more worried about the brain injury and I have put the vestibular therapy on the back burner. Maybe I have left it too long, but my sense is that you might have started too soon and not allowed sufficient time for the natural healing processes to help your brain recover.

I think that you ought to discuss your fatigue with your various therapists and consider postponing vestibular therapy for a while until your fatigue is a bit less severe.

All the best with your therapy. Naturally you are keen to do everything that you can to get better, but sometimes we can overdo things.

Best,
Concussed Scientist

Quote:
Originally Posted by dagma1 View Post
I know there's been a few threads about vestibular therapy but today I feel so terrible I've done none of the exercises at all today, just cannot face it.

My head kills me and gets worse with the exercises, I am so tired beyond belief and my eyes hurt/feel pressure behind them.

I have been thinking positively but today I am so beat down and just want to cry.

Has anyone felt so terrible then started to feel better?

I am sooo tired, I lay down this afternoon for a few hours and the headache is still here and my eyeballs hurt.

I do see an Neurological Dr in 2 weeks for the headaches. I'm seeing a PT for vestibular and an OT for my eyes so I have a bunch of exercises and just can't do them all. i know I'll have to talk to the therapists about it.

The OT had me read a passage and I felt like a child reading it, couldn't read properly, going back over words, ugh....

Just ignore me today, I am just feeling so awful and feel as though I have the flu, thanks for listening, just needed to vent I guess, hugs...
__________________
2007 rear end collision at high speed on the motorway; PCS - main problems are pain in the head and fatigue; tried pregabalin,amitriptyline and HBOT possibly with some slight success; also tried LENS neurotherapy, acupuncture, sacro-cranial therapy, topiramate and manipulative physiotherapy, all with little or no success. Over the years all symptoms have become milder but have not disappeared.
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