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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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08-07-2013, 08:30 PM | #1 | ||
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I finally got in to see a neurologist, and a neuropsychiatrist. The neuropsych put me through a series of memory tests and things like that, which were all far above average.
The neurologist gave me no new information, but said I should be definitely betaking melatonin. My sleep schedule is pretty strange, simply because I make the mistake of falling asleep during the day which messes it up. I have been taking it the last few days and I feel symptom free during the day, except with extreme fatigue feelings. I dont know why this is. Would you agree that I should be taking it? (I have no medical knowledge) Any responses are appreciated, also keep in mind that I am a youth. |
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08-07-2013, 09:19 PM | #2 | ||
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I sometimes take melatonin but it makes me VERY sluggish the next day. Because it is unregulated, each brand and formulation is different, and they all have different effects on me. Some work, some keep me up at night!
If you can find a small dose that works and that allows you to feel okay the next day, that is not too risky, I suppose. I don't like it and avoid it if I can.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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08-07-2013, 10:32 PM | #3 | ||
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Junior Member
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I've been taking 3mg doses.
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08-07-2013, 11:46 PM | #4 | ||
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Getting exposed to outside light during the morning and around noon is very important cor your body clock. Even if you can sit or lie in a sunny spot inside.
Perhaps 3 mg is too much. Can you cut it in thirds and start with the lowest dose to see if it is effective? The best one for me is one that is in US pharmacies and dissolves on the tongue. I have read you are supposed to take it a few hours before you want to sleep. Good luck!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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08-07-2013, 11:58 PM | #5 | ||
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Junior Member
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Okay thanks again
and I am having this problem with severe flinching, like if someone even comes to pat me on the shoulder my head will completely flinch, if I hear something I dont expect same thing. Do you think these minor impacts could be delaying healing? It may be related to anxiety Im not sure. |
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08-08-2013, 12:03 AM | #6 | ||
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I mean to say if I hear something I dont expect the same thing. It is almost like a defense mechanism. But I think it may be doing more harm then good.
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08-12-2013, 09:24 AM | #7 | ||
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Junior Member
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I had another brain injury friend recommend melatonin and it's worked great for me. I use 2.5 MG sublingual (brand is Source Naturals) and I take it 30 minutes before bedtime. The sublingual (dissolves under the tongue) type and dosage was the key to not feeling groggy in the morning. It took trial and error to find what works for me. After using it for 2 months my sleep routine regulated and I don't need it anymore. Don't give up. Find out what works for you - it honestly makes a huge difference in how I feel and operate cognitively.
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