Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-09-2013, 12:04 PM #1
mrsmith mrsmith is offline
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Default No trust left in doctors-

So, I have been almost recovered for a while now, just ear ringing. The other day I was having severe chest pains, and was extremely dizzy, so I went to the hospital. (children's because I am under 18).

I was extremely clear, telling them my brain is hyper sensitive and I am having some serious brain injury problems. They were fairly gentle, doing different tests on my heart. Then a doctor came in, told me my heart was fine, and the dizziness was probably related to my concussion issues.

Then they did the normal neurological testing, checked my pupils, that kind of stuff. But then the doctor said, "let me move your head," so I let him, and he started turning my head back and forth, fast, having me watch his nose. I said I didn't feel comfortable with this, but he continued. It wasn't like snapping fast, but it was too fast for me.

Has anyone else had any experiences like this? I am tempted to cancel all my medical appointments.
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Old 09-09-2013, 01:00 PM #2
berkeleybrain berkeleybrain is offline
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Hi there, I'm so sorry you needed to go to ER. I'm even more sorry you weren't listened to.

I'm not a medical doctor, but it sounds like he was testing you for BPPV (Benign paroxysmal positional vertigo). By moving your head back and forth, if you have BPPV, it often triggers the dizziness.

NOnetheless, he should have explained the procedure afterwards. Best of luck, and you can demand answers to why they are testing and what they are looking for.

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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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MiaVita2012 (09-11-2013)
Old 09-09-2013, 01:38 PM #3
mrsmith mrsmith is offline
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Oh, I see. That makes a lot more sense now.

Do you think movement like that back and forth could have hurt me?
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Old 09-09-2013, 08:24 PM #4
EsthersDoll EsthersDoll is offline
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Hi mrsmith, I think the dr wouldn't have done it if he thought it would've hurt you and they usually know a lot about that stuff.

Some Dr.'s have very poor bedside manner, or the ability to talk with and relate to patients. My stepdad is a Dr. and I've seen him fire Dr.'s very sharply for lacking this skill.

It sounds like the Dr. you had trouble with at the ER had very poor bedside manner.

I think not trusting that Dr is a good idea, but try to have an open mind when it comes to new Dr.s. Some of them are very good and extremely helpful and they have amazing bedside manner.

I actually feel very lucky to have three VERY GOOD Dr.s - my primary care physician, my neurologist and my endocrinologist. Without them I wouldn't be doing anywhere near as we'll as I am now and there's a lot of hope I'll get even better if I continue to see them.

So try not to cancel all your medical appointments because of one bad Dr.
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Lightrail11 (09-10-2013)
Old 09-10-2013, 02:34 PM #5
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Quote:
Originally Posted by EsthersDoll View Post
I actually feel very lucky to have three VERY GOOD Dr.s - my primary care physician, my neurologist and my endocrinologist. Without them I wouldn't be doing anywhere near as we'll as I am now and there's a lot of hope I'll get even better if I continue to see them.

So try not to cancel all your medical appointments because of one bad Dr.
My experience with doctors have been similarly positive. Not only would I have died without the intervention of a skilled neurosurgeon (shout out to Steve Chang MD!), some very talented, caring, and compassionate MDs, PhD’s and therapists put Humpty Dumpty back together again and guided me through my rehabilitation.

I wouldn’t cancel future medical appointments because of one appointment that was a bad experience. I’ve had procedures that were uncomfortable, but that doesn’t mean there wasn’t a legitimate medical reason for it. That may have been the case with the back and forth motion you describe. Even so, one experience might cause me to change doctors, but it wouldn’t change my overall feelings toward the medical community as a whole. After all, I owe my life to them.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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