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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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Junior Member
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*admin edit* my head pain is so bad. *admin edit*
I fainted in May and hit the front of my head on a concrete floor sustaining a concussion. 3 weeks later, I fainted again and hit the back of my head on a window sill. Each time there were no warnings that I was about to faint. I've lost my job because my FMLA has run out. I've seen cardiologist and neurologist and am scheduled to go to rehab specializing in post concussion syndrome. I am taking Topamax for head pain (started yesterday) and Tramadol or tylenol for intermittent pain. I'm dizzy, nauseous, cranky, light and sound sensitive, have trouble with conversations and can't drive. I am pretty miserable. I've been searching for a place to come and talk to other about their progression in healing from concussions and it looks like I've found it! Other than staying locked in a dark, quiet room, have you found anything else that helps with the headaches? I think if I can just get the headaches to go away, I'll be able to work on everything else. I went from being a happy, joyous, outgoing person to a recluse. I want my life back. I am a young 60 ![]() Thanks Last edited by Chemar; 08-31-2013 at 01:25 PM. Reason: NeuroTalk Guidelines |
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#2 | |||
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Junior Member
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welcome to neurotalk, you'll come to the right place. Here all of us have been or going through the same symptoms u r ur not alone!
![]() ur symptoms get the better of u i know its not easy, getting worried and worked up about it will make it that much harder to recover. Speak to ur gp about physio therapy, message and vestibular. Ur injured so now its time to heal. ED PHP Code:
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#3 | ||
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Junior Member
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Thanks for your response. I am being evaluated by a cardiologist for the fainting. I am now wearing a heart monitor.
It has helped me to read some of these posts as I can now see that my symptoms are pretty much like everyone here. I think I was in denial that I had PCS, but today I now realize that it is what I have. Even the neurologist telling me this did not make it so for some reason, but reading post after post of the same symptoms I'm having has done it for me. I will do my best to relax more. Thanks so much. Quote:
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#4 | |||
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The Topamax may work to prevent the migraines (they are diagnosed as migraines, yes?). If not, there's a lot of relatively new drugs to try. Triptans like Imitrex works for me. I also get good results with Dilaudid. You'll have to work with a good MD or neurologist to find out what works for you.
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Passenger in auto wreck, mTBI:
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#5 | |||
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Hello windsweptlady,
Welcome to NeuroTalk. This is a very good place. Check out the vitamin thread and think over your nutrition. I know that in itself is not a cure all. Find ways to reduce stress in your life. I know it's very boring to be on brain rest, but it is needed. Listen to audiobooks, but try to limit screens and visual stimulation. Hang in there for the better days to come. PCS is a life changer, there is no doubt in my mind about that. But recovery is possible. It just is not like getting over a broken bone or a virus. The book Brainlashed by Gail Denton helped me understand PCS as well as this place. Here's wising you well, poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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#6 | ||
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Junior Member
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Thanks for your reply. I am beginning to realize that part of my issue is not realizing how much stress I've been under to force myself to get better so I could get back to work. I've lost my job now, so that particular stress is gone.
I'll check out that vitamin thread. I've located a book on Amazon about nutrition after TBI and I may buy it. I'll check out Gail Denton's Brainlashed book too. Anything that will help! I seem to need a lot of sleep lately. I'm just trying to go with the flow. Quote:
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#7 | ||
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Junior Member
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Hi Kenjhee,
They have not diagnosed the headaches as migraines yet, but they surely must be because of the pain level. I've had 3 doses of the Topamax and I still have a headache, but it's somewhat diminished. Thank you for your reply! Quote:
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#8 | ||
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Junior Member
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First, sorry to hear about your experiences. I have an older family member who was fainting for no apparent reason, and it turns out they needed a pacemaker. Had it "installed" and now they're doing *much* better. The docs all thought it was vestibular, but it was related to electrical impulses in the heart.
Sorry to hear about your job. That sux. I, too, had problems with intense headaches for years. What finally helped was seeing a network chiropractor - they do gentle adjustments that help regulate the autonomic nervous system, instead of the "bone cracking" standard issue stuff. I am on a very strict diet -- minimal junk food, as little processed sugar as humanly possible, lots of natural foods and NO grains -- which has helped me with the fogginess and given me a much needed mood boost. I do light exercise in the mornings to warm up for the day, and that helps, also. But if I push myself too hard, the headache returns for a few days. It's just something I have adapted to. I have to work, I am the only breadwinner in my household, so I have to make it work. I have hear that Topamax can help with headache. I would not know, because I am way too sensitive to meds, and they often make things worse. Hang in there - it can get better. Quote:
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