Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-10-2013, 09:33 AM #1
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Default Sleep discussion

I am surprised there isn't a sticky about sleep!

Anyway, it goes without saying that sleep is one of the most important things for individuals with TBI and PCS. It directly effects our rate of healing, but more importantly, our day to day quality of life.

What strategies work for you? How much sleep do you need to have a "100%" day? Do you find that naps help or hurt? Do you take prescription sleep aids, or have you found a natural remedy that works?

I do the following:

-turn my A/C down to the low 70's at night
-take my night med's between9-9:30PM including a single dose of Alteril (recommended by my Neuro - The three primary ingredients in Alteril are L-Tryptophan, Melatonin and Valerian)
-use a pink-noise generator app on my tablet that sits bedside in a sound-dock (set fairly loud; I have tinnitus from prior to my mTBI) pink noise article
-ceiling fan runs at high speed over the bed to decrease temperature variance through the night

I find that even a half hour variance (as of this writing, I'm 2 months post accident) away from a 10PM in-bed time causes me to have an "off" day the following day. I awake for work at 6:30AM.

Please chime in. Hopefully something I do can help you and vice-versa. Mostly, I am trying to determine the amount of hours some of you need during the week to have a good day at work! 8 might not be enough for me
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Old 09-10-2013, 11:44 AM #2
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I usually sleep around 12 hours, which is honestly too many. Though I wake up feeling refreshed and ready for the day.

I try my hardest not to nap during the day, because I find if I do I usually can't sleep at night, and then it throws off my sleep schedule.
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Old 09-10-2013, 02:15 PM #3
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I get around 7 hours during the week and around 8 on weekends. I find the 7 hours sufficient to be 100% functioning during the day.
I never take a nap (unless dozing off during the 6 pm news counts)

I do not take any sleep aid medication (prescription or OTC), nor any herbal supplements. I have a ceiling fan on for air circulation, and I have a “white noise” machine to reduce ambient noise.

I practice yoga twice a week in the evenings; days that I don’t practice yoga I try to set aside 20-30 minutes in the late evening to meditate. I find these practices relaxing, and therefore I’m not stressed by “brain chatter” prior to turning in for the evening. If I don’t get the meditation in, once in bed I will practice deep mindful breathing (pranayama) until I drift off. I very seldom have any problem falling asleep and never have disturbing dreams that awaken me.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 09-10-2013, 02:34 PM #4
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I used to find a hot bath/shower helpful (it also really helps fatigue) and also sticking to a set routine, and going to bed at the same time.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 09-10-2013, 06:00 PM #5
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Default Ah sleep

It is very scattered for me.

But I do have good energy too. If I can get 6 straight hours that is AMAZING!

I do take liquid melatonin and liquid valerian and these help me fall asleep, but I have been awaking in the middle of the night and dozing and sometimes getting better sleep.

I have get physically tired too during the day in order to feel sleepy at night.

I have been working on relaxation techniques and just not getting upset about my patchy sleep.

I did try Zoloft one night for sleep and it was horrible for me, so I am just going to try and be very chill and accept the sleep I get and work with the brain I have too.
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 09-10-2013, 09:12 PM #6
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We had a rather extensive discussion about sleep a while ago. You can find it here: http://neurotalk.psychcentral.com/sh...d.php?t=169324

Hope there are some helpful ideas there as well.

Best wishes to everyone!
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mTBI and PCS after sledding accident 1-17-2011

Was experiencing:
Persistent headaches, fatigue, slowed cognitive functions, depression
Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload
Sciatica/piriformis syndrome with numbness & loss of reflex


Largely recovered after participating in Nedley Depression Recovery Program March 2012:

.


Eowyn Rides Again: My Journey Back from Concussion

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