Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-12-2013, 12:05 PM #1
EsthersDoll EsthersDoll is offline
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Join Date: Feb 2011
Location: Los Angeles
Posts: 765
10 yr Member
EsthersDoll EsthersDoll is offline
Member
 
Join Date: Feb 2011
Location: Los Angeles
Posts: 765
10 yr Member
Default Need Physiatrist Recommendation in S. Pas., CA area and PT nightmares

Can anyone recommend a good physiatrist or a website where I can find one?

I have been trying to rebuild my strength and stamina after more than three years of inactivity and bed rest since I believe I'm finally able to with the hormonal replacement therapy.

I started PT on Monday, but since the AC broke at my house the heat has negatively affected me and I've been dealing with a very bad setback that has progressively been getting worse every day.

The condo manger keeps telling me she'll get it fixed and the repairman came last night and told me it was fixed, but it broke again and smelled like something was burning less than two hours after he left.

In the meantime, I called my PT yesterday to tell them I've been experiencing setbacks and that I won't be able to come in since I haven't been able to do my exercises. They insisted that I come in and wouldn't allow me to cancel the appointment.

I did not sleep well because of the heat and my anger and anxiety about the AC and I woke up this morning afraid that I wouldn't be able to drive to the appointment, do exercises and interact with the therapist, go to work and do everything else that I need to do and that I was upset that they didn't trust me that I know my own limitations! I've been dealing with this for more than three years - I know when it's time for me to stop. And by then it's usually past time to stop because I'm the kind of person that pushes myself.

Then the receptionist insisted that I never told her that I was "not feeling well" yesterday when I spoke to her - well that's what a setback is!

Why else would I have not done my exercises? She cut me off yesterday when I was telling her about it and said, "I know" and wouldn't even let me finish what I was saying.

I told her that I did, in fact, tell her that I was having setbacks and she spoke right over me (when I'm not doing well, my voice is weak and slow and it's very easy for people to do this to me) and wouldn't let me speak at all. She was arguing with me.

I told her that I didn't have the energy to argue and she spoke right over me again! Arguing with me again! So I just had to hang up since I don't have the energy to waste on a conversation like that.

It's upsetting to me that people do this to brain injury patients. I'm sure I'm not the only one who's been bowled over by some jerk with no actual understanding but a lot of professed understanding.

People experiencing health issues need patience from people trying to offer their services!

So, if anyone knows of a good Physical Therapist with experience with patients with neuroendocrine dysfunction or pcs, please let me know that too.

They told me that they have treated people in my condition before, but if that's how they treat their patients, I'd rather try to rehabilitate myself on my own. Sheesh!

Sorry, I guess I had to vent. Feel free to share your similar experiences.
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