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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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Junior Member
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Hi all,
I am almost 4 months post concussion and have seen no notable progress in my recovery. My most notable symptoms have to do with my eyes- my vision is grainy and I honestly feel like i'm looking through a different lense in which everything feels altered- very surreal and dark. Sometimes, objects seem to move down and to the left when they are actually still. Unfortunately i am easy bothered by things such as being in the sunlight for too long or listening to books on tape for too long but everything seems to stem down to my vision. My question is- what kind of therapies or what has been helpful to anyone who has experienced similar problems. I tried a series of eye exercises but found that they were far too difficult for me and inevitably stopped. It seemed like it was just too much too soon. I also tried wearing blue lenses my doctor gave me but noticed nothing. Hopefully this will be helpful to anyone else out there who is experiencing similar problems. Thanks, Jamie |
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#2 | ||
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Member
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I would suggest strongly that you see a neuro-opthamologist. That was a HUGE breakthrough for me...I wear prisms and have a blue blocker tint (10%).... Brain vision damage is very common in brain injury. Still struggling. But at least it improved.
Vision therapy is very important too. See some of the other great posts about that! Good luck!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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"Thanks for this!" says: | tamisue (09-21-2013) |
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#3 | ||
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Junior Member
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Hi Jamie,
I had similar issues the first months of my injury. I felt like I was in a movie (Like the Matrix) and my view on the world would pixelate, it almost felt like I was hallucinating watching objects move which made me dizzy. Six years ago my doctors only recommendation was "wait and see". Fortunately things have changed. By 8-9 months post injury my vision had improved enough on its own to return to school. You're still in the beginning stages of recovery where rest and time make a difference. Learn your limits and don't push yourself too hard, rest often and just close your eyes. Be gentle with yourself. Here are some links I researched for myself and hope the help: Post Traumatic Vision Syndrome - Info based on children and learning afterwards, but has helpful hints Post Trauma Vision Syndrome, Visual Midline Shift Syndrome by Neuro-Optometric Rehabilitation Association - This site offers lots of info on vision problems post brain injury Best Wishes! ~Kristy |
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#4 | ||
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Member
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Vision issues still plague me. I have undergone vision therapy at a Binocular Vision Clinic and wear prism glasses. I have also done vestibular therapy to stabilize the gaze.
Yet, I still have convergence insufficiency and accommodation issues. Often visual complexity will trigger migraines and sharp pain along the occipital nerve. Sometimes, complex visual items (carpets, tile designs, etc.) seem to look like mirages and move. I wear my visor and sunglasses a lot. Recently, I went to the ENT specialists at UCSF for my vestibular issues, and Dr. Lustig pointed out the relationship between migraine, vestibular function and vision. I've been prescribed noritryptiline with propanolol and am adhering to a migraine free diet (no wine, chocolate, limited caffeine, nuts, nitrates, aged cheese, etc. -- very similar anyway to PCS diet). I haven't had a vertigo or dizzy spell or any migraines (yeah!), but I still cannot read beyond 20 minute intervals with 2-3 hours of rest. Please do share any treatments, therapies etc that have helped!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness. Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine. Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs. Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014. |
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"Thanks for this!" says: | Mokey (09-22-2013) |
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#5 | ||
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I am 18 months pcs and still have significant vision issues. I still can watch
only limited t.v. and read for a maximum of 30 minutes. I have prism reading glasses and sun glasses which are to improve my Mid Line Shift issue and have been doing vision therapy for the last 5 months. I was diagnosed by a neuro optometrist. I know when I first visited they say that some people start vision therapy too early and have to stop until they have recovered more. It is important that you go to the right specialist as I went twice to an eye specialist to be told that there was nothing wrong with my eyes. Good Luck.
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MVA March 2012 pcs, post traumatic vision syndrome, convergence insufficiencies, vision mid line shift syndrome, gaze stabilization and vision tracking. Fatigue, headaches and sore eyes are main issues. Current activities: chiro, massage, prism glasses, vision therapy, yoga, meditation, aquafit classes and rest..... |
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"Thanks for this!" says: | Mokey (09-22-2013) |
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#6 | ||
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Junior Member
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16 months post Concussion. Strugglings with many residiual symptoms. 54 originally very active and probably in the best shape of my life at the time of the accident. Vision has been an increasing problem of late. Less clarity and blurry . Shocked to find out my eye exam as shown a huge decrease in my rt. eye given the present of a sizeable cataract. What experience does any one have with this?Data on line suggests trauma is a potential. insights would be appreciated.
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#7 | ||
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Newly Joined
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A new membr adding to the vision problems. I had my concussion on Aug 7. For the first 2-3 weeks I could not see anything. Had to stay in the basement with the blinds closed. Constantly had my eyes closed all the time. No TV, computer or even reading. After this time my eyes improved lots. My left eye is weaker now. I have been wering glasses for over 30 yrs. Late 40s and very athletic and active. I found my eye sight has gotten better in my right eye, but my left is droopy. I have done massage (tai chi) as well as chiropractor (mine uses the activator tool). This has hepl with my eyesite in a big way but my glasses are really out of wack for the perscription.
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