Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 10-15-2013, 08:49 AM #11
randomguy randomguy is offline
Junior Member
 
Join Date: Oct 2013
Location: AB, Canada
Posts: 48
10 yr Member
randomguy randomguy is offline
Junior Member
 
Join Date: Oct 2013
Location: AB, Canada
Posts: 48
10 yr Member
Default

Quote:
Originally Posted by postconcussion View Post
Hello.

Sorry to hear what happened. I know that you will improve!

Backstory: I was surfing, duckdived and surfaced, fiberglass kayaker rode the next wave into my head. Whiplash all the way back underwater. That was november 09. Pretty bad PCS. Then 7 months PT for neck.

2 years later surfed again and reinjured my neck PT 5 more months If i remember right.

General thoughts: neck issues are huge! Not everyone here has them, I didn't really believe that most of my problems; headaches, etc. were related to the neck but they are.

I learned. Never ever do anything to aggravate your neck! Ever! Time will heal it. Once you are better with your physical therapy you can do light stretching.

Keep it loose so it doesn't spasm and keep it as flexible as possible over time. Heat will relax the muscles, I still use the heating pad and put it up to the bottom of my head to include the muscles that go over your head.

Ice helps some people with the pain, but in my case it would make it worse due to spasms. Your muscle memory will easily go back into trauma mode so it is easy to reinjure your neck, just be careful.

Other than that, I was once at the same place as you looking for something to speed up the process. I never regretted passing on the neck manipulation.

Hang in there! Less is more for necks, your Physiotherapy sounds just what you need. I can tell because the symptoms are resolving after. That is a huge indicator that your neck is contributing to your symptoms. Once I started gentle PT, it was very gentle, it got better for me.

For me, I didn't want to get my neck adjusted. I just learned to listen to that gut feeling. I even posted a thread just like yours before and learned about the risks. Yes, a stroke is very unlikely but reinjuring your neck is not. No one wants to go backwards with their symptoms, your ligaments and muscles just need rest.

Take care.In mho, you should wait longer before trying anything big, just looking at your history it hasn't been too long. I know it feels like forever but it is too soon to do anything drastic. Plus, there will always be the option to try something later.
I'm thinking that I may give it more time. The physio is definitely a light treatment and does help, but seems temporary.

I took the non drowsy Gravol with Ginger Root again yesterday and seemed to help a bit with the dizziness/nausea. Not a miracle solution, but anything natural that takes the edge off is something I'm interested in. Will continue the Gravol and post results.

Neck is quite sore this morning. Hoping that physio helps tomorrow.

Thanks all for the input. This forum seems great. Hoping we can help each other heal up!
randomguy is offline   Reply With QuoteReply With Quote

advertisement
Old 10-15-2013, 08:57 AM #12
randomguy randomguy is offline
Junior Member
 
Join Date: Oct 2013
Location: AB, Canada
Posts: 48
10 yr Member
randomguy randomguy is offline
Junior Member
 
Join Date: Oct 2013
Location: AB, Canada
Posts: 48
10 yr Member
Default

Was also going to ask what people are taking for OTC anti inflammatory when tinnitus is present? Advil (ibuprofen) seems to make the ringing in the ears worse for me and causes me to focus more closely on it. Last time I took Advil I also had intense body shakes, so wary of it at this point.

Pharmacist recommended I try Naproxen (Aleeve).
randomguy is offline   Reply With QuoteReply With Quote
Old 10-19-2013, 05:20 PM #13
BlackBlackBlack BlackBlackBlack is offline
Junior Member
 
Join Date: Oct 2013
Location: Copenhagen
Posts: 6
10 yr Member
BlackBlackBlack BlackBlackBlack is offline
Junior Member
 
Join Date: Oct 2013
Location: Copenhagen
Posts: 6
10 yr Member
Default

It does get better. It can take a short while but it can take a long time!
I'm three years into PCS after a fall on the ice and, although not fully recovered, I'm nowhere near the zombie I was two years ago.

It's can be slow going, but if you look after yourself and give yourself the time you need to recover you will make progress. Trying to rush recuperation will normally have the adverse effect.

Rest, relaxation and learning to listen to your body's needs are the best way forward.

Have you looked into Alexander Technique?
It helped me a lot in conjunction with Physio.

Medication also helped me in the short term with some aspects of PCS but it can bring it's own problematic side effects. It can be hard to tell which symptom comes from PCS and which comes from the medication.

Keeping a log book/diary is a good way to chart and keep track of your symptoms.
Knowing that you are recovering, no matter how fast or slow, is good to know.
Writing things down can also help with confusion and loss of memory.

Good luck to you.
BlackBlackBlack is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MiaVita2012 (10-24-2013), Mokey (10-20-2013)
Old 10-19-2013, 07:35 PM #14
randomguy randomguy is offline
Junior Member
 
Join Date: Oct 2013
Location: AB, Canada
Posts: 48
10 yr Member
randomguy randomguy is offline
Junior Member
 
Join Date: Oct 2013
Location: AB, Canada
Posts: 48
10 yr Member
Default

Hoping mine improves a little bit. I don't know if I could deal with this for 2 + years.

The non drowsy Gravol (primary ingredient Ginger Root) does seem to be surprisingly effective. Like I said before, not a miracle solution, but takes nausea and dizziness away quickly (a few minutes sometimes). It also keeps it away for a few hours. Surprising.

Anyway, I recommend trying it if you don't like feeling doped on Gravol and/or prescription meds.
randomguy is offline   Reply With QuoteReply With Quote
Old 10-20-2013, 12:05 AM #15
Mokey Mokey is offline
Member
 
Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
Mokey Mokey is offline
Member
 
Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
Default

Hang in there! It is not a long haul for everyone (me...unfortunately...yes...very long!).

Focus on getting through each hour. Have a mini strategy for each hour...then it will be hours..then days!
You will improve. Setbacks occur, which are very discouraging. But I think of them as periods of consolidation!

Not easy. But you will get better!
__________________


What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
Mokey is offline   Reply With QuoteReply With Quote
Old 10-20-2013, 06:20 AM #16
poetrymom's Avatar
poetrymom poetrymom is offline
Member
 
Join Date: Mar 2013
Location: Minnesota
Posts: 398
10 yr Member
poetrymom poetrymom is offline
Member
poetrymom's Avatar
 
Join Date: Mar 2013
Location: Minnesota
Posts: 398
10 yr Member
Default Tinnitus

Hi there

As far as I know, there is nothing you can take for that tinnitus in your ear(s)

I still have it a little bit, but it has mostly gone. It comes back when I am very tired. So, it's my inner warning bell that my brain is really maxed.

I did find that acupuncture helped me and it seemed to help the tinnitus. At any rate, acupuncture helped me relax and learning to relax as best you can and go with this PCS journey is important.

Hang in there. It's awful to feel awful, but here's wishing you better days to come.

Sincerely

pm
__________________
[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
poetrymom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mokey (10-21-2013)
Old 10-24-2013, 10:24 AM #17
MiaVita2012's Avatar
MiaVita2012 MiaVita2012 is offline
Member
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
MiaVita2012 MiaVita2012 is offline
Member
MiaVita2012's Avatar
 
Join Date: Dec 2012
Location: N/A
Posts: 685
10 yr Member
Default Tinnitus

I also found like PMom that is a warning of getting tired or from consuming a substance such as MSG, food coloring, caffeine etc that will crank up the tinnitus. We have to try to eat as natural as we can to help with some of the symptoms of this complex syndrome.
__________________
What Happened: In 2011 I was in a MVA
.


Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems.

Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention

Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks

Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation.

~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~
MiaVita2012 is offline   Reply With QuoteReply With Quote
Old 11-09-2013, 12:12 AM #18
randomguy randomguy is offline
Junior Member
 
Join Date: Oct 2013
Location: AB, Canada
Posts: 48
10 yr Member
randomguy randomguy is offline
Junior Member
 
Join Date: Oct 2013
Location: AB, Canada
Posts: 48
10 yr Member
Default

Thought I'd follow up. I'm feeling a little bit better. Dizziness still comes on when I over exert myself and barely leave the house anyone and try to rest as much as possible. Tinnitus is still there every day, all of the time. Neck still sore most days, but a little better. Weird numb sensations on top of scull still come and go. Still feel foggy on a regular basis (what I would compare to that feeling you get when you know a cold is coming on, just generally our of it and confused).

The most recent visit to the doc showed that I have low blood pressure (115/50) and results of a 24 hr holter monitor showed that my heart rate drops all the way down to 35 bpm when in deep sleep. They are now referring me to a cardiologist as well. The low BP is known to contribute to dizziness and vertigo symptoms. This could have been the reason I fell unconscious on Aug 2.
randomguy is offline   Reply With QuoteReply With Quote
Reply

Tags
pcs, vertigo, vision problems


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
The men who hold your life in their hands reverett123 Parkinson's Disease 9 03-13-2013 12:06 PM
dr. has my life on hold eva5667faliure Layoffs, Unemployment and Worker's Compensation 2 09-19-2011 05:34 PM
Hold Fast! Chemar Sanctuary for Spiritual Support 4 08-07-2007 09:18 PM


All times are GMT -5. The time now is 01:53 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.