Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-04-2013, 02:54 PM #1
Brick_Top Brick_Top is offline
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Default Anyone recovered from Post Traumatic Vision Syndrome enough to work a full day?

I'm so close but so far away. A few months ago I had moderate to harsh headaches from wake up, to the time i went to sleep. I started doing 2 x 4 hr days at work to get my foot back in the door. 3 months later I'm 10 months PCS and my headaches don't really affect my personal life much anymore - one bad one every couple of weeks.

The problem is work, after 1.5hrs of using a monitor and thinking hard I get a headache on the right side of my face/temple and after 4 hours I've had more than enough.

I've recently been prescribed prism glasses as my convergence is insufficient. These haven't helped yet and I've done 4 shifts at work using them!

I had a meeting at work today with HR, they are getting occupational health involved to try and determine what they can change to get me working for longer, I feel it may be crunch time soon and I might lose my job

My mental function is still great, I can think about technical things at work and resolve problems for people, but the monitor usage is the limiting factor...

Has anyone with these symptoms fully recovered and if so in how long? If i get the sack I may consider not working until the issues are fully resolved if that won't be too long.

The most frustrating thing about this is there is no real prognosis, the NORA optometrist said it can take years not months to get better, like maybe 4 or 5 years... I can't not work for that long!
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Old 06-04-2013, 03:20 PM #2
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I work 33hrs a week and had similar problems with getting headaches through working. Concentrating and computer use are a problem so I have to limit the computer to 2 hrs a day with breaks from it.

I personally use Cymbalta 30mg which is an antidepressant and painkiller, it allows me to work a 9.5 hour day in a stressful job, erradicates headaches and reduces other symptoms.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
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Old 06-04-2013, 05:27 PM #3
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How did your headaches improve or resolve? Thank you!

Quote:
Originally Posted by Brick_Top View Post
I'm so close but so far away. A few months ago I had moderate to harsh headaches from wake up, to the time i went to sleep. I started doing 2 x 4 hr days at work to get my foot back in the door. 3 months later I'm 10 months PCS and my headaches don't really affect my personal life much anymore - one bad one every couple of weeks.

The problem is work, after 1.5hrs of using a monitor and thinking hard I get a headache on the right side of my face/temple and after 4 hours I've had more than enough.

I've recently been prescribed prism glasses as my convergence is insufficient. These haven't helped yet and I've done 4 shifts at work using them!

I had a meeting at work today with HR, they are getting occupational health involved to try and determine what they can change to get me working for longer, I feel it may be crunch time soon and I might lose my job

My mental function is still great, I can think about technical things at work and resolve problems for people, but the monitor usage is the limiting factor...

Has anyone with these symptoms fully recovered and if so in how long? If i get the sack I may consider not working until the issues are fully resolved if that won't be too long.

The most frustrating thing about this is there is no real prognosis, the NORA optometrist said it can take years not months to get better, like maybe 4 or 5 years... I can't not work for that long!
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Old 06-04-2013, 07:35 PM #4
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prisms helped a lot but I too am limited on the computer. headaches and bad eye strain and pain after too much (a few hours). I used to go for hours and hours!!!!!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 06-04-2013, 08:43 PM #5
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You may want to try an antioxidant supplement called astaxanthin. It is supposed to help alleviate eye strain and fatigue. It also has neuroprotective and anti-inflammatory properties.

http://www.fortifeye.com/siteRoot/pd...EyeFatigue.pdf

http://www.dynamicchiropractic.ca/pr...riendly%3Dtrue
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Old 06-04-2013, 09:00 PM #6
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Default Lighting and Computer Screen

I can only last 1/2 hour at a time on the computer and have just recently started wearing the prism glasses, however my occupational therapist was saying that lighting in the office (ie. florenscent lighting) can have a huge effect on eye strain, the other thing he mention was about getting me a mac computer or ipad, there is something about regular monitors that has some sort of "flicking" property which can play havoc with the eyes.

Not sure if it helps by environmental interference can be really bad. He also mentioned that lighting in grocery stores are really bad and that there is some kind of sun glass you can wear to improve the situation. I find in shopping malls I have to wear my sunglasses as the lights really make me sick.

I also was wondering in general if people with PCS and those who also have post traumatic vision syndrome, convergence insufficiencies, mid line shift syndrome, etc. seem to be the ones who are longer to get back to work or seem to be the ones who don't get back to work.


I have been told from my 15 months post accident that it will more than probably be another full year before I can work..... I find this amazing and of course there is the disclosure .... they don't really know.

I wish you the best of luck......

Norma
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Old 06-05-2013, 09:28 AM #7
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Hi Norma,

I have been told that th vision problems that I have indicate brain stem injury as well as injury into the brain itself, and that is why there is a much longer recovery period. I have been told 3-5 years to get to a new normal. prisms may always be necessary for many people.
3-5 years is nothing compared to what may have been ...with a brain stem injury, life can stop very abruptly. I am focussing on my luck at this stage in my healing. What else can one do?!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
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Old 06-05-2013, 10:26 AM #8
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Default Work

Quote:
Originally Posted by Brick_Top View Post
I'm so close but so far away. A few months ago I had moderate to harsh headaches from wake up, to the time i went to sleep. I started doing 2 x 4 hr days at work to get my foot back in the door. 3 months later I'm 10 months PCS and my headaches don't really affect my personal life much anymore - one bad one every couple of weeks.

The problem is work, after 1.5hrs of using a monitor and thinking hard I get a headache on the right side of my face/temple and after 4 hours I've had more than enough.

I've recently been prescribed prism glasses as my convergence is insufficient. These haven't helped yet and I've done 4 shifts at work using them!

I had a meeting at work today with HR, they are getting occupational health involved to try and determine what they can change to get me working for longer, I feel it may be crunch time soon and I might lose my job

My mental function is still great, I can think about technical things at work and resolve problems for people, but the monitor usage is the limiting factor...

Has anyone with these symptoms fully recovered and if so in how long? If i get the sack I may consider not working until the issues are fully resolved if that won't be too long.

The most frustrating thing about this is there is no real prognosis, the NORA optometrist said it can take years not months to get better, like maybe 4 or 5 years... I can't not work for that long!

I've been working reduced schedule ever since I sustained my concussion 4 months ago because I cannot afford not to. I haven't had a lot of vision problems, except for extreme light sensitivity and my job requires a lot of computer work as well as concentration and attention to details.

I've been wearing sunglasses basically 24/7 because, as other's mentioned, the flourescent lights and computer lights are killers for us!! With the reduced schedule and the sunglasses I have been doing ok...I still get mild headaches by the end of the night and a little dizzy, but nothing I haven't handled millions of times since I got hurt!! Hope this is maybe a little bit helpful!
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Old 06-05-2013, 11:20 AM #9
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Default Oh please please please!

Let these horrible eye-related symptoms resolve quicker than in 3-5 years! I was thinking another year and I'd be fine.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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Old 06-05-2013, 01:20 PM #10
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Although it is not a longterm solution, I have heard an eye patch (change eyes so no one dominates) can help with vision headaches.

Also if you can change your enviornment so there is no fluorescent lighting, lower or more natural lighting, no music or noise, and take breaks.

I haven't gone back to work, and I cannot imagine your stress.

Best of luck!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.

Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.

Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.

Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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