Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 11-17-2013, 11:24 AM #1
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Default facial masking or what???

i have an increasing problem with my facial muscles while talking...

it is such a strain for me to have any conversation, or to even think, that my face is contorted, much like facial masking...

think of someone looking completely dumbfounded after a big bite of a lemon...kind of a like an over exxagerated "eeeewwwweee"

it is with me all the time...

as with all my symptoms, it is worse when i get cold or anxious or angry or tired or overloaded...all of which happen very easily...

i also get a lot of stiffness in my forearms and contort my wrists to give comfort and this happens naturally without me realizing that i am doing it...both problems - with my face and stretching of my forearms - seem to get worse at the same time...

i am not interested in going out into public...a person very close to me told me it is difficult to talk to me as it is very distracting to them...

i do not talk the same since my injury...my voice is very slow, smokey and raspy, struggling to complete a sentence and i never look anyone while talking to them, the movements are too distracting......i prefer to whisper any time i can...i do not talk with a TV on or any other noise in the room or any other distraction at all...i avoid any conversation at all since it is ridiculously embarrassing...

any suggestions or guidance would be appreciated...

Brainstemmed
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Background:

52 year old with 25+ years of problems associated with Fibromyalgia...

What happened:

while seeking relief from the scourge of fibro, i rec'd 12-15 increasingly significant concussions to my brain stem from a risky chiropractic adjustment. Last one on May 10, 2013...at 11:45 AM that day, my life changed instantly.

Symptoms:
cognitive dysfunction, sleep disruption, highly emotional, easily overwhelmed & overloaded, unrelenting tinnitus, memory loss, facial masking, difficulty with speech, trouble finding words, headache, widespread Fibro pain mostly in my neck, shoulders, back, hips, knees...

unable to: drive or ride in a moving vehicle for any length of time, watch TV or movie, read books, tolerate more than one soft conversation at a time.

i am hyper sensitive to light, noise, motion and crave dark, quiet and very, very slow...


Current Meds:


10 mg Ritalin,
450 mg Lyrica
5 mg prednisone (aka poison)
amatryptaline
5 mg melatonin
plus daily vitamin & supplement regimen: B, D, Fish Oil, plus a lot of brain food: nuts, berries, fish, etc,..

legal, MM approved by ALL my docs for 2 very limited purposes.(not recommended for all, be cautious)
2 mg Valium as needed
Tramadol as needed
Percocet as needed
lidocaine patches (yea!)
Outpatient Infusion for migraine cocktail once per week as needed
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Old 11-17-2013, 11:33 AM #2
Mark in Idaho Mark in Idaho is offline
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I think the Neuro Psychological Assessment will be helpful to identify your functional capacity. It is a relief to find a professional who can confirm the symptoms you are feeling.
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Old 11-17-2013, 11:45 AM #3
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Lightbulb

This sounds like excess muscle contracture.... the flexing of the wrists toward the midline is a carpopedal spasm.
photos here of various forms:
https://www.google.com/search?q=carp...iw=981&bih=662

The facial muscles also may be spasms. This can come from hyperventilation, or disruptions in calcium metabolism, very low magnesium levels. Parathyroid disease/tumors can cause this.

Low Vit D is also a possibility because it helps with calcium absorption. You should really get some blood work, because this can signal a serious thing. So see a doctor for this. Take some photos too, if you can.
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