Originally Posted by Halfnelson

I know I am supposed to convince myself that I can still enjoy life and do important things - but every day is too much of a struggle.

It has been over 2 years and, despite plenty of rest and time off work, I'm not improving at all.

I really don't want to end it but I cannot keep going either. What's the point? I wake up, feel like crap, work, feel worse, go home, sleep, repeat. And for years!

My family and friends have stopped asking how I am - which is fine and I don't blame them for trying to move on. I've also seen every specialist under the sun but to no avail.

So I am starting to plan which is worrying.

I guess I'm looking for some inspiration or hope that things will get better but I just can't see that happening.

Originally Posted by hopefulmom

Halfnelson,
think you are in another country? My daughter's symptoms are going on 2.5 yrs…with many disappointments in-between.

1. medication has helped--it takes awhile to find the right meds and dosage.

2. acupuncture--helped with headaches and more,

3. stand up paddle boarding-- just getting on the board land not going very far but balancing was helpful. note that she could not get through vestibular or eye therapy due to feeling nausea,but she could stand up on a paddle board.

4. prism glasses to act as a crutch when she reads--she still cannot comprehend but she can read simple fiction books now.

We just got her hormones checked but the results have not come back. I just want to say that she is still getting better. There have been times when she went backwards or plateaued.

keep talking --we're here,