Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 11-26-2013, 01:35 AM #1
shezbut shezbut is offline
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shezbut shezbut is offline
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Confused Unsure what my experience is due to??

I do have epilepsy, pre-TBI, which I had surgery to correct exactly one year prior to my TBI.

My TBI occurred in March of 2008, I think??

Anyway... I have these moments of complete confusion. I feel like I don't know anything. Names of things or people are simply meaningless words in these moments. Thankfully, these moments only last a minute or so, and then my memory kicks in slowly. Does this sound like effects of my TBI to you, or more like epileptic "auras"??

I see my Epileptologist next month ( in a few weeks from now), but I am just wondering if I should mention these events to him, or should I contact my Internal Medicine doctor? The IM doc is my primary physician.

Anyone ever have this feeling?
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Shez

In March 2006, I had a partial left temporal lobectomy to remove my seizure focus. It worked well to control complex partial seizures, but left me hyper-sensitive to light and sound. Migraine headaches increased in severity as well as frequency.

In March 2007, I slipped on the ice and fell upon the left side of my head. The effects were mild TBI, a moderate concussion. The TBI effects increased light and sound sensitivity further, as well as migraine headaches. Seizure disorder got shaken up, requiring new medications to control complex partial seizures.

The long-term effects of these brain issues are very poor short-term memory; difficulty regulating emotions; major depression; anxiety; easily overwhelmed; word-finding difficulty as well as mixing up my words (but not recognizing my mistakes) and an extremely difficult time with decision-making. I also got divorced and am the secondary co-parent of our two daughters. That was a huge blow to me!
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Old 11-26-2013, 03:27 AM #2
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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Talk to your neuro. I have had brain freeze issues from time to time. Usually when I am under stress. I consider them cognitive seizures.
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shezbut (11-27-2013)
Old 11-27-2013, 02:15 AM #3
shezbut shezbut is offline
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shezbut shezbut is offline
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Quote:
Originally Posted by Mark in Idaho View Post
Talk to your neuro. I have had brain freeze issues from time to time. Usually when I am under stress. I consider them cognitive seizures.
Thank you Mark in Idaho.

These events are occurring during high stress situations for me as well. It is the weirdest thing & hard to explain. My mind just goes completely blank, and words don't mean anything, names, etc. I just cannot make sense out of them and I feel dissociated, but also a little part of myself is trying to make sense of everything & get my brain to get back to work. Scary!

I guess that I'll let me epi's nurse know about it later this morning. See what they say...

Thank you!
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Shez

In March 2006, I had a partial left temporal lobectomy to remove my seizure focus. It worked well to control complex partial seizures, but left me hyper-sensitive to light and sound. Migraine headaches increased in severity as well as frequency.

In March 2007, I slipped on the ice and fell upon the left side of my head. The effects were mild TBI, a moderate concussion. The TBI effects increased light and sound sensitivity further, as well as migraine headaches. Seizure disorder got shaken up, requiring new medications to control complex partial seizures.

The long-term effects of these brain issues are very poor short-term memory; difficulty regulating emotions; major depression; anxiety; easily overwhelmed; word-finding difficulty as well as mixing up my words (but not recognizing my mistakes) and an extremely difficult time with decision-making. I also got divorced and am the secondary co-parent of our two daughters. That was a huge blow to me!
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Old 11-27-2013, 08:12 AM #4
brokenbrilliant brokenbrilliant is offline
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I have these, too. They are momentary with me. I'll be talking to someone, and all of a sudden I'll realize that I have no idea what they are saying to me, and the words just sound like a bunch of sounds put together in no particular order.

I consider it a sign that my brain is overwhelmed with all the incoming information and it's taking a break to sort out all the details.

Sometimes I will be driving, and I will have no idea where I am or where I am going. But I just keep driving, and after a minute or so, it all comes back to me.

I think sometimes my brain just needs a break from all the input. At first, I worried about it a lot, and I discussed it with my neuropsych. But since it passes pretty quickly, now I just take it in stride.
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What happened: Sustained mild TBI #9(+) in 2004 when I fell down a flight of stairs and smacked the back of my head on the steps. Knocked out briefly, then bounced back and resumed everyday life, as usual. Then things fell apart -- lost my job, friends disappeared, spouse became terrified of me, money flew out the window, and I had no idea it was all happening, or why. Finally put things together in 2007, when I was researching brain injury for a family member. Have been actively working with a neuropsych and recovering since late 2007, with amazing results I never thought possible.

I blog about this at
.
.

Symptoms: fatigue, tinitis, sensitivity to light and noise and touch, insomnia, general pain, headache, attention issues, emotional lability, panic/anxiety, anger/rage spikes, confusion, difficulty hearing and understanding, slowed processing speed, limited short-term working memory, balance & vertigo issues, difficulty reading and learning new things, nystagmus and tremors when over-tired.
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