Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 11-27-2013, 08:56 PM #1
nevergone nevergone is offline
Junior Member
 
Join Date: Nov 2013
Posts: 16
10 yr Member
nevergone nevergone is offline
Junior Member
 
Join Date: Nov 2013
Posts: 16
10 yr Member
Default worried about gp/specialist not believing me

I had my head injury on November 5th as I'm still experiencing problems my doctor is referring me for head scans at first they said my symptoms could last weeks/months but now it's lasting one dr said "it might be something other than concussion" but he didnt elaborate the other dr said he was referring me after he checked my reflexes "nothing seemed wrong"

I'm worried they don't believe me, my symptoms are very real to me and the pressure in my head is getting too much however I used to suffer from depression and I'm scared they'll blame it on this

at my last appointment the dr kept asking me if I'd had any of this before the accident (blow to my head) and I had to tell him more than once I was t like this before
nevergone is offline   Reply With QuoteReply With Quote

advertisement
Old 11-27-2013, 11:24 PM #2
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Default

nevergone,

Don't worry about the disbelieving doctors. You are still early in your recovery. Get some good quiet rest and read the vitamins and supplements sticky. It is difficult to get the quiet rest during the Thanksgiving/ Christmas season. You will be better off having a minimal holiday season.

My best to you.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
poetrymom (11-28-2013)
Old 11-28-2013, 10:14 AM #3
ninelives ninelives is offline
Junior Member
 
Join Date: Jan 2013
Location: nr Winchester hampshire uk
Posts: 76
10 yr Member
ninelives ninelives is offline
Junior Member
 
Join Date: Jan 2013
Location: nr Winchester hampshire uk
Posts: 76
10 yr Member
Default

Hi
I had same problem, dr just want to pass if off on something g tangible as they can't see a concussion.
I was told I had depression etc and they prescribes pills, I didn't take them cos I new I was not depressed it was just the PCS symptoms. After many visits to dr I finally was diagnosed with pCS. Please don't give up and believe in yourself.

These symptoms are all part of pcs and there maybe many others that will come and go but you will start to recognise them as that.

You are quite early in your injury so it's important to get the right support from your dr. And the right treatment that will benifit you.
I feel for you because I went through exactly this with my dr.
And they are the so called experts.!!!!

Good luck and thinking of you

Carole x
ninelives is offline   Reply With QuoteReply With Quote
Old 11-29-2013, 09:52 AM #4
nevergone nevergone is offline
Junior Member
 
Join Date: Nov 2013
Posts: 16
10 yr Member
nevergone nevergone is offline
Junior Member
 
Join Date: Nov 2013
Posts: 16
10 yr Member
Default

thank you to you both I saw a diff dr today and she was much more sympathetic I'm going to stick with her now

I also have a meeting at work regarding my absence which I'm worried about I feel frustrated because if I had a broke. arm or leg I don't think they'd be doing this
nevergone is offline   Reply With QuoteReply With Quote
Old 11-30-2013, 05:53 AM #5
bendiyogi bendiyogi is offline
New Member
 
Join Date: Nov 2013
Posts: 5
10 yr Member
bendiyogi bendiyogi is offline
New Member
 
Join Date: Nov 2013
Posts: 5
10 yr Member
Default

From what I've read online, post-concussion symptoms can last from weeks up to 6 months. From what Ive read on this forum there are people still suffering after years. It's really hard with TBI because on the outside you look normal but no-one knows what you are going through on the inside. If you've suffered from depression in the past TBI can make it resurface, or make it worse. Time of recovery is different for everyone and I feel really stressed a lot of the time not knowing when these symptoms will go away. It's been 5 weeks for me so far. I was hoping to go back to work next week but am now taking off another month, which I really can't afford financially, but I just can't function normally yet.
I have good and bad days. Sometimes I feel normal and sometimes I feel awful. Everyday is different. One day I had a fainting spell, another a huge panic attack. Most of the time I'm dizzy, spaced out and very forgetful. Today I have a bad headache. I never know what's going to happen or when.
It really helps to have a few people who do understand and believe you. Chatting on here with others who are in the same place has helped me a lot. We know what you're going through and it is very very real!
bendiyogi is offline   Reply With QuoteReply With Quote
Old 12-02-2013, 06:11 PM #6
Lightrail11's Avatar
Lightrail11 Lightrail11 is offline
Member
 
Join Date: Mar 2012
Location: Phoenix AZ
Posts: 531
10 yr Member
Lightrail11 Lightrail11 is offline
Member
Lightrail11's Avatar
 
Join Date: Mar 2012
Location: Phoenix AZ
Posts: 531
10 yr Member
Default

Quote:
Originally Posted by nevergone View Post
thank you to you both I saw a diff dr today and she was much more sympathetic I'm going to stick with her now

I also have a meeting at work regarding my absence which I'm worried about I feel frustrated because if I had a broke. arm or leg I don't think they'd be doing this
What symptoms are most problematic? Some symptoms may be helped by specific therapy strategies. For example, my deficits included problems with working memory, abstract reasoning and problem solving, and verbal fluency. For these therapy from a speech pathologist was very helpful. This would be a good question for your new doctor, or is she isn't familiar with neuro rehabilitation perhaps a referral to a physiatrist may be a next step.

Four weeks probably seems like a long time to you but as brain injuries go yours was fairly recent. Best to you as you continue your recovery.
__________________
What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
Lightrail11 is offline   Reply With QuoteReply With Quote
Old 12-03-2013, 02:48 PM #7
nevergone nevergone is offline
Junior Member
 
Join Date: Nov 2013
Posts: 16
10 yr Member
nevergone nevergone is offline
Junior Member
 
Join Date: Nov 2013
Posts: 16
10 yr Member
Default

thanks

I have a hard time following what's going on but the pressure in my head is going that was my main issue I can't stand loud noises as tgst brings the dizziness back

when I talk I feel like I'm talking slowly but no ones mentioned it so I think others hear me 'normally'

I'm seeing my dr again next week to see if I'm able to go back to work I'm not sure I'm ready but last week I KNEW I wasn't my workplace is very loud and busy I don't think I'd be able to follow what's going on
nevergone is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Is seeing really believing? nw31705 Reflex Sympathetic Dystrophy (RSD and CRPS) 6 01-18-2012 02:41 PM


All times are GMT -5. The time now is 09:09 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.