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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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12-08-2013, 08:43 AM | #1 | ||
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Hey guys, I have referred to this forum before from google searches in order to try and help in dealing with my post concussion syndrome and you guys seem really helpful. I don't have it as bad as most of you guys, but I was just hoping to get some advice.
Here is my story. I am 18 years old. 5 months ago I was an idiot and got to the point of incredibly drunk and I was blacked. When I regained memory that night I was bleeding from the back of my head and was still really drunk and my friends were taking care of me with a towel to stop the bleeding. I have no recollection of what caused the injury at this party but I believe that I hit my head on a countertop in the bathroom just from snapshots I have in my memory from that night. I ended up vomiting later that night but I don't know if it was the alcohol or head injury. The next couple of days I realized I had a concussion with all the usual symptoms of one (feeling out of it, headache, not being able to concentrate). I didn't go to a doctor and all these symptoms cleared in a week or so. I felt fine (100%) up until a little less than a month later. I got another concussion. I was again idiotically black out drunk (not as much as the first time) and fell backwards and bumped my head on the front of a house. I then vomited. I realized it was a concussion 2 days after when I could tell it was more than just a hangover. Got a CT at ER 2 days after and it came back negative. Diagnosed with a concussion. I rested for 2 weeks and then went back to class (college) part time in order to catch up. I caught up fine for about two more weeks with grades being A's. I proceeded to bump my head on my dorm room lofted bed and that set me back about a week, but I recovered again almost to 100% and still did fine in class. I then bumped my head on the ceiling while in my lofted bed and then went home that day for then had about a 9 hour car ride back home that was pretty bumpy with the road. It was then however that my symptoms got a lot worse and was forced to drop out of college. (No alcohol since 2nd concussion, alcohol/stupidity lead to this whole thing, I know. I'd take it back if I could) Here are my symptoms: swollen brain feeling/pressure, fatigue, memory/focusing problems, bouts of confusion, insomnia, occasional migraines, episodes of severe anxiety/depression, episodes of muscle weakness, body aches, visual disturbances, irritability, muscle palpitations, chest pains (rare). Some days I have good days, some average, some bad, some really bad. The worrisome thing is wondering whether or not I have something else going on because I have had complete rest for the past 3 months at my house with the help of my parents and I have been eating ridiculously healthy yet I do not seem to be improving and my cognition has seemed to get a little worse if anything. The most worrisome thing is that the littlest head movements/bumps seem to give me almost like a mini/very very very slight concussion and worsen my symptoms and the feelings of my head swelling up/worsened cognition and brain fog. I fear that these are doing more damage to my brain. They are unavoidable like itching my head too hard will set it off. Sometimes I will be incredibly sensitive to these mini bumps or whatever and other times I won't. I do not feel as if I'm improving after 4 months from my second concussion from which I never fully recovered. This feeling of hopelessness seems to set off some really bad episodes of depression/anxiety; I think that is also the physiological change to my brain causing these terrible feelings too. I do not leave my house except for doctors appointments, some days I don't leave my bed. The neurologist I went to didn't help. I went to a neuropsychologist and he told me my cognition in some areas is below national average. I was an incredibly healthy/smart teenager. I was a great athlete, and had a above 4.0 gpa pretty effortlessly. I was social, haven't felt up to going out since 2nd concussion besides class when I was in college. My life has been turned upside down. I know a lot of you have it worse than me so sorry if I seem like a baby. Again, what really worries me is the "hyperconcussabiltiy" which I believe either increases inflammation in my brain or my intracranial pressure enough to do damage. Exercise worsens this intracranial pressure feeling so I haven't exercised in 4 months. I wonder if I have some sort of intracranial hypertension that spikes at times. Reasons why: high systolic blood pressure number, when I feel the "swelling"/pressure/tightness in my head I get neck pain, confusion, reddened eyes as if there is swelling and pressure, at times I will lose control of my eyes as if their crossed for a couple seconds (rarer), muscle weakness, intensified body aches, sleep apnea like symtoms (look below) (these symtoms correlate with Intracranial hypertension) I have also recently started waking up gasping for air after bad nightmares in this terrible "world isn't real" dream like state (maybe sleep apnea). I have worse headaches in the morning too. I believe my cognition has gotten worse since being homebound and resting. Feelings of depression every once in a while, but not constant. BAD anxiety at night/psychological battle with myself I've had an MRI on my cervical spine and my brain all negative. Although I have sinusitis and fluid in my sinuses. EEG negative. Bloodwork normal except cholestrol was barely high, protein and blood and urine barely high, alt liver enzyme barely high, vitamin D a little insufficent. Was told by physician to stop fish oil and B12 (was a little high in bloodwork). I am taking a multivitamin for the vitamin D deficiency (probably cuz i'm never outisde) and have experimented with different supplements/vitamins. I had high blood pressure and took a diuretic for about two weeks, but stopped that and my blood pressure seems to be really high sometimes, especially the top number. A lot of times it's also low. I monitor it at home and report it to my physician. I probably spend way too much time reading on my phone and watching TV, however it doesn't usually seem to affect my symptoms when I do this mental stimulation. Other mental stimulation does. I take nothing for pain even when the headaches are really bad. Pain isn't the issue, everything else is cuz it worries the hell out of me (especially the swelling feeling). Whoever takes the time to read that I REALLY APPRECIATE IT!!! I know, it's way too long. I feel pretty hopeless and don't think I will get back to who I was. I am looking for advice. Vitamin regimen? What do you think about intracranial hypertension? or another condition? "hyperconcussability"? any advice/comments/tips are welcome! Thanks so much whoever reads this! |
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12-08-2013, 10:57 AM | #2 | ||
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Welcome Sorry to hear you've had so much trouble!
The next time you post, you may want to consider adding a little space between each paragraph... for a lot of us, having extra "white space" makes a page of reading less intimidating lol. I'm sort of a newbie myself around here, but I do have a few thoughts that I hope you will find useful: 1) Please be careful with alcohol until your symptoms are gone... better yet, stay away from it until you are better. I know how hard that can be when you're in college and all of your friends are drinking all the time, but in your case alcohol is not your friend for now. Not only does it seem to increase your odds of hitting your head, but alcohol is generally not good for an injured brain anyway. If you want to heal, please avoid the alcohol for now. 2) For the anxiety, you may want to consider seeing your doctor about getting an anti-anxiety medicine or even an antidepressant. If you can lessen the anxiety, you may reduce some of the strain on your brain, and every little bit can help. Reducing your anxiety may help you to get a better handle on your other symptoms. 3) I totally get what you mean about not taking anything for the pain, but allowing yourself to feel that pain without trying to manage it can make the anxiety even worse. Try taking ibuprofen or whatever your doctor recommends when you first feel the headache coming on and see if you can at least minimize the pain. 4) Sometimes you may not feel the effects of mental or physical stimulations right away. Try reducing the amount of time spent in front of tv and computer screens and see if that helps. You may be using all of your "brain power" on these activities, which in turn means you have no energy for the other things, whatever they may be. I know that, when I read chapters out of a novel, I feel fine while I'm doing it, but my head will hurt a few hours later. You may be doing the same thing with tv and computers and not realize it. 5) There is a great sticky at the top of this forum about vitamins and which ones are helpful. Read over that one and the others... they are all full of great information. 6) As far as the multiple concussions go, you are right that having multiple head injuries is dangerous and that they can exacerbate each other. Definitely do everything you can to minimize your risk of getting hit in the head again. Feel better soon!
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Head injury on 10/26/13 due to a fall. Had extreme headaches, fatigue, and nausea over the next several days, but no insurance so I couldn't afford to get checked out. First official migraine occurred on 11/19/2013; no migraines before the injury occurred. |
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"Thanks for this!" says: | concussedGuy (12-08-2013), poetrymom (12-08-2013) |
12-08-2013, 05:02 PM | #3 | |||
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Hi concussed guy
Courtney wrote about the things I could address with your condition. I hope Mark in Idaho will weigh in too. I don't know all the medical things you may have going on. No matter what though, and I know you are worried and stressed, find something positive that is low stress that you CAN do. Can you walk for some exercise? Getting oxygen into the brain in a gentle way is good. On facebook, I think there is also and group for teens / young adults with PCS. I will try and give you more details on that. You might like to talk with others your age too who have this. It's just a thought. PCS is a journey and it's a marathon, not a sprint. This means that you will have to learn patience with yourself and learn your triggers for what may cause headaches, and other symptoms. Hang in there, and be brave. I know how scary this condition is. But learning to relax via meditation has helped me a lot. Here's wishing you well and more healing to come. Sincerely, poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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"Thanks for this!" says: | concussedGuy (12-08-2013), courtney.w (12-08-2013) |
12-08-2013, 07:26 PM | #4 | ||
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Junior Member
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Concussion stuff is so multifacited. If you have not been assessed for depression you should. It is a feature for many people post concussively and can not be ignored.
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"Thanks for this!" says: |
12-08-2013, 09:00 PM | #5 | ||
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Legendary
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Concussed guy,
You said: " Hey guys, I have referred to this forum before from google searches in order to try and help in dealing with my post concussion syndrome and you guys seem really helpful. I don't have it as bad as most of you guys, but I was just hoping to get some advice. Here is my story. I am 18 years old. 5 months ago I was an idiot and got to the point of incredibly drunk and I was blacked. When I regained memory that night I was bleeding from the back of my head and was still really drunk and my friends were taking care of me with a towel to stop the bleeding. I have no recollection of what caused the injury at this party but I believe that I hit my head on a countertop in the bathroom just from snapshots I have in my memory from that night. I ended up vomiting later that night but I don't know if it was the alcohol or head injury. The next couple of days I realized I had a concussion with all the usual symptoms of one (feeling out of it, headache, not being able to concentrate). I didn't go to a doctor and all these symptoms cleared in a week or so. I felt fine (100%) up until a little less than a month later. I got another concussion. I was again idiotically black out drunk (not as much as the first time) and fell backwards and bumped my head on the front of a house. I then vomited. I realized it was a concussion 2 days after when I could tell it was more than just a hangover. Got a CT at ER 2 days after and it came back negative. Diagnosed with a concussion. I rested for 2 weeks and then went back to class (college) part time in order to catch up. I caught up fine for about two more weeks with grades being A's. I proceeded to bump my head on my dorm room lofted bed and that set me back about a week, but I recovered again almost to 100% and still did fine in class. I then bumped my head on the ceiling while in my lofted bed and then went home that day for then had about a 9 hour car ride back home that was pretty bumpy with the road. It was then however that my symptoms got a lot worse and was forced to drop out of college. (No alcohol since 2nd concussion, alcohol/stupidity lead to this whole thing, I know. I'd take it back if I could) Here are my symptoms: swollen brain feeling/pressure, fatigue, memory/focusing problems, bouts of confusion, insomnia, occasional migraines, episodes of severe anxiety/depression, episodes of muscle weakness, body aches, visual disturbances, irritability, muscle palpitations, chest pains (rare). Some days I have good days, some average, some bad, some really bad. The worrisome thing is wondering whether or not I have something else going on because I have had complete rest for the past 3 months at my house with the help of my parents and I have been eating ridiculously healthy yet I do not seem to be improving and my cognition has seemed to get a little worse if anything. The most worrisome thing is that the littlest head movements/bumps seem to give me almost like a mini/very very very slight concussion and worsen my symptoms and the feelings of my head swelling up/worsened cognition and brain fog. I fear that these are doing more damage to my brain. They are unavoidable like itching my head too hard will set it off. Sometimes I will be incredibly sensitive to these mini bumps or whatever and other times I won't. I do not feel as if I'm improving after 4 months from my second concussion from which I never fully recovered. This feeling of hopelessness seems to set off some really bad episodes of depression/anxiety; I think that is also the physiological change to my brain causing these terrible feelings too. I do not leave my house except for doctors appointments, some days I don't leave my bed. The neurologist I went to didn't help. I went to a neuropsychologist and he told me my cognition in some areas is below national average. I was an incredibly healthy/smart teenager. I was a great athlete, and had a above 4.0 gpa pretty effortlessly. I was social, haven't felt up to going out since 2nd concussion besides class when I was in college. My life has been turned upside down. I know a lot of you have it worse than me so sorry if I seem like a baby. Again, what really worries me is the "hyperconcussabiltiy" which I believe either increases inflammation in my brain or my intracranial pressure enough to do damage. Exercise worsens this intracranial pressure feeling so I haven't exercised in 4 months. I wonder if I have some sort of intracranial hypertension that spikes at times. Reasons why: high systolic blood pressure number, when I feel the "swelling"/pressure/tightness in my head I get neck pain, confusion, reddened eyes as if there is swelling and pressure, at times I will lose control of my eyes as if their crossed for a couple seconds (rarer), muscle weakness, intensified body aches, sleep apnea like symtoms (look below) (these symtoms correlate with Intracranial hypertension) I have also recently started waking up gasping for air after bad nightmares in this terrible "world isn't real" dream like state (maybe sleep apnea). I have worse headaches in the morning too. I believe my cognition has gotten worse since being homebound and resting. Feelings of depression every once in a while, but not constant. BAD anxiety at night/psychological battle with myself I've had an MRI on my cervical spine and my brain all negative. Although I have sinusitis and fluid in my sinuses. EEG negative. Bloodwork normal except cholestrol was barely high, protein and blood and urine barely high, alt liver enzyme barely high, vitamin D a little insufficent. Was told by physician to stop fish oil and B12 (was a little high in bloodwork). I am taking a multivitamin for the vitamin D deficiency (probably cuz i'm never outisde) and have experimented with different supplements/vitamins. I had high blood pressure and took a diuretic for about two weeks, but stopped that and my blood pressure seems to be really high sometimes, especially the top number. A lot of times it's also low. I monitor it at home and report it to my physician. I probably spend way too much time reading on my phone and watching TV, however it doesn't usually seem to affect my symptoms when I do this mental stimulation. Other mental stimulation does. I take nothing for pain even when the headaches are really bad. Pain isn't the issue, everything else is cuz it worries the hell out of me (especially the swelling feeling). Whoever takes the time to read that I REALLY APPRECIATE IT!!! I know, it's way too long. I feel pretty hopeless and don't think I will get back to who I was. I am looking for advice. Vitamin regimen? What do you think about intracranial hypertension? or another condition? "hyperconcussability"? any advice/comments/tips are welcome! Thanks so much whoever reads this." FIRST, Find a doctor who knows about nutrition. Fish oil is good for your brain and body. Your B-12 is not too high. The tests do not indicate how well your body is utilizing B-12. Do you know what the B-12 ratio is ? It should be about 1000 picograms/mLtr. Folic acid should be above 20. D3 should be strong. There is no value to experimenting with vitamins and supplements. It takes weeks to months to start to see improvements. The negative cervical MRI is meaningless. You sound like you may have Central Sleep Apnea. Your brain stops telling your diaphragm to take a breath. This low Oxygen level causes the nightmares. As your brain struggles, it finally wakes you up to start breathing again. I have lived with this for almost 13 years. For me, it is the result of inflammation in the upper neck. I need to practice good neck/head posture when I sleep to prevent it. You will not start to heal until you can get this under control. Take a break from your smart phone. It causes anxiety. Learn to relax and take each day as just a small part of your process in healing. Reduce any sensory stimulation you can. Take up playing solitaire with a deck of cards or any other no-electronic activity. Your sensitivity to head movements does not mean anything in particular except that you are sensitive to head movements. Learn to reduce quick head movements. I can not shake my head No without getting 'the feeling'. I have learned to turn my shoulders to look right or left. It slows the head movement speed. You may benefit from seeing a Physiatrist (Physical Medicine and Rehabilitation). Get on the vitamins and supplements regimen. Stay on it for at least 4 weeks before deciding if it is helping. More later as you have questions. btw. How old were you the first time you got blotto drunk ? My best to you.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | concussedGuy (12-08-2013) |
12-08-2013, 10:23 PM | #6 | ||
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Junior Member
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Thanks for all the advice guys I appreciate it.
I am going to try and limit electronic use and no worries I will not be drinking alcohol until a good 3 months after no symptoms if that ever comes and slowly introduce it and stay away from getting pretty drunk. And mark I had gotten that drunk plenty of times before that with no issues/falls starting at 17, however I know that is stupid. As for the anxiety, if it doesn't improve I'll consider some medication however I would prefer to stay away from stuff like antidepressants because there are so many bad things I've heard about them. My b12 was just out above the standard range at 963pg/ml but if 1000 is fine, Ill begin taking it again. Any suggestions on dosing of the vitamins? some seem way too high above the daily value and others not sufficient enough. As for the fish oil, I believe my doctor wanted me off it because of my liver enzyme being high, as well as Tylenol because that affects the liver too. I've heard that ibuprofen is bad for concussion headaches as it thins the blood. I also think that staying away from pain medicine has helped reduce the severity and amount of headaches I have gotten because of the "rebound effect" which a doctor explained to me about concussion headaches. I suspected that it was central sleep apnea rather than obstructive as it makes sense to develop it after a concussion. My parents believe it's anxiety but I don't think so as I'm not anxious when going to bed and it will still happen. I sleep with my head elevated on two pillows which may cause the inflammation of my neck, but it seems as though if I don't sleep on two pillows I wake with a feeling of all the blood drained into my head or pressure and I wake up confused. I also will have sharp pain throughout my body that feels like I hit my funny bones on some days. Is this nerve pain? I tried coq10 before and it really seemed to help my head/cognition however it would increase the nerve pain 10 fold, maybe I'm allergic to that? A b complex I used to take had a similar effect, but not as severe, allergic to a shared ingredient between the b complex and coq10? Thanks again for your responses and support! |
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12-08-2013, 11:30 PM | #7 | ||
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Junior Member
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Quote:
I'm glad to hear that you're giving up alcohol for the time being! As with any other injury, you need to maximize your health if you're going to heal, and alcohol simply doesn't help that cause. I understand about not wanting to take anything for anxiety... maybe you could start with more natural supplements? St. John's Wart is supposed to be good for depression; I'm sure if you did a Google search, you'd find suggestions for anxiety as well. I don't know enough about vitamins to comment on that stuff in terms of appropriate levels... I'm sure Mark and others can respond to that stuff better than I can. I get what you're saying about pain meds for the headaches, but treating PCS primarily revolves around reducing stress, getting rest, and treating symptoms. I've not heard of the "rebound headaches..." does that mean that the headache comes back worse after the medicine wears off? Personally, I have to take medicine when I have a headache because I can't miss work, but I can't function at work if the headache gets bad enough, so I don't have much of a choice. Even if you just try laying down in a dark, quiet room with a warm, wet washcloth over your head, definitely don't suffer through those headaches without trying to find some way to alleviate the pain. As far as the sleep apnea goes, you need to see a sleep specialist about that if you haven't yet (sorry, don't remember what you said about that originally in your post and can't leave this screen to go look lol). If you do have sleep apnea, you need to be treated for it so that the sleep you get becomes better quality sleep. Doing so will also help with the anxiety among other benefits. For the neck pain due to sleeping with your head elevated, maybe try sleeping on a wedge pillow? They range from about $30-40 on Amazon. I'm not sure what to say about the nerve pain either, but I hope you get some answers on that.
__________________
Head injury on 10/26/13 due to a fall. Had extreme headaches, fatigue, and nausea over the next several days, but no insurance so I couldn't afford to get checked out. First official migraine occurred on 11/19/2013; no migraines before the injury occurred. |
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"Thanks for this!" says: | concussedGuy (12-09-2013) |
12-09-2013, 02:06 AM | #8 | ||
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Legendary
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A few important bits of info.
Tylenol is not good for the brain. Ibuprophen is better. The blood thinning should not be a problem unless there is a bleed. But then you will have other symptoms. Rebound head aches are head aches that rebound after the body becomes accustomed to the pain meds. Sort of like an addict needing a bigger fix because his body has developed an accommodation for the current dose. Don't worry about rebound head aches. Just try to learn to relax out of head aches and treat those you can not relax out of with some ibuprophen. Learning to relax and lower your Blood Pressure is a fabulous lifelong skill to have. Courtney is right about a wedge pillow. Flexing the neck like you are doing is the cause of my central apnea. The apnea will happen when I am awake if I am looking down for too long. All of a sudden, I will be out of breath and gasping. A sleep specialist will be a waste of time for Central Sleep Apnea. I have been that route. Just a lot of tests and expense with no solutions. Postural caused CSA needs to be resolved with good sleep posture and sleep hygiene. Put some blocks of wood under the head of your bed frame. About 4 inches to start then slowly reduce the angle until you can sleep with no lift. I sleep with a pillow that only supports the side of my head so it does not roll too far to the right. I can not let my head roll to the left at all or I will have trouble. I also often sleep in a recliner. I do not go to bed until I am ready to fall right to sleep. Tossing in bed is a good way to sleep with bad posture. I am in total disagreement about returning to alcohol. You did not answer my question about when you started drinking to get blasted. How old were you when you got blotto drunk the first time ? How often since then ? I went through high school and partied stone sober. Having a good time sober is just a mind game. It is easy to let go when you know you still have your good judgement to count on. People would ask me if I was drunk as I enjoyed myself. Never. It was fun just getting silly and letting loose. Had a miserable hangover from a single glass of beer and never consumed more than a single glass of Drambuie in an evening. I'd rather remember the fun I had than worry about the damage and trouble I may cause to myself and others. The Vitamins and Supplements sticky at the top has basic dosages. My best to you until you take a drink, then you will have my wrath.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | concussedGuy (12-09-2013), courtney.w (12-09-2013) |
12-09-2013, 02:45 AM | #9 | ||
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Junior Member
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Thanks again for the replies guys. If the headache is unbearable, I will take an ibuprofen.
Thanks for the wedge pillow suggestion Courtney! I ordered one off Amazon and I believe that should work. Mark, thanks for the advice too about the sleep apnea and vitamins, I'm gonna start on that. Concerning the alcohol, I started drinking over winter break this year, and the first time I tried it was one of the times I was the drunkest I have been, to the point of blotto. It took me a couple times to find my limit over break where I wouldn't get sick. I had gotten blotto drunk about 10 times till my accident and there were plenty of times where I was just drunk and not full blown blotto, so I knew what I could handle or at least I thought until I somehow hit my head which even my friends don't know how. However, I had been that drunk plenty of times before without incident. Besides winter break, I never got sick excluding the two times I hit my head which is most likely because I lost blood and got concussions. Once I recovered from the first concussion I went back to drinking a decent amount, not blotto, but drunk and I didn't have any bad hangovers and no lingering symptoms. Believe me, I am going to be cautious in returning if I can. At least 3 months of absolutely 0 symptoms and if it turns out I get a hangover from a single beer, then I will give up alcohol for the rest of my life. I do not plan on getting blotto'd or close to it again just because of the risk even if it turns out the alcohol doesn't relapse symptoms at all. One last question for mark or anyone who thinks they know(it seems mark knows the most about vitamins/supplements), is it possible that those vitamins could cause the severe sharp pains through my limbs? It certainly seems to strongly correlate to when I do take the coq10 and sort of the b complex. Ways around that? Thanks again for the replies guys. |
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"Thanks for this!" says: | courtney.w (12-09-2013) |
07-14-2019, 05:27 PM | #10 | ||
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Newly Joined
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I know it's been a while, but curious how this turned out. I have the same "hyperconcussability" feeling post-concussion (been 4 months since my relatively minor concussion), where minor vibrations / bumps are painful (or rather, I am extremely sensitive to them) and seem to set me back.
I mentioned this symptom to my neurosurgeon (a leading specialist in concussions) and he didn't seem to understand what could be causing such a feeling. I also noticed that no other responders to this thread seem to acknowledge this symptom, nor have I seen anything else about this in my (somewhat obsessive) internet research and definitely nothing in the more mainstream literature. Thanks |
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