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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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12-13-2013, 12:34 AM | #11 | ||
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Legendary
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Idiopathic does not mean it does not come from any other condition. Idiopathic means they do not know what causes the condition. The simple concept is they are Idiots regarding the Pathology of the condition.
Has you doc tried a beta-blocker like propranolol or atenolol ? It could help with your BP and anxiety levels.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | EsthersDoll (12-13-2013) |
12-13-2013, 01:21 AM | #12 | ||
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Lol mark, that's a good explanation.
But yeah idiopathic intracranial hypertension was the wrong term, just intracranial hypertension is raised intracranial pressure whereas idiopathic intracranial hypertension is a type of intracranial hypertension. It wouldn't make sense to say idiopathic if it was caused by a head injury, so again I was wrong. Im not going to do anymore labeling. However I still believe there is something going on with pressure in my head because of my symptoms Mark, I've read that some say to avoid going on beta blockers as lowering the pulse could be dangerous. I'm weary of any medicines to be honest, had some nasty side effects to an anti seizure med and the diuretic made me feel out of it. |
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"Thanks for this!" says: | EsthersDoll (12-13-2013) |
12-13-2013, 12:47 PM | #13 | ||
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Hi concussedGuy,
Of course I forgive you. But I felt I had to be very clear about what happened to me and to warn you about labeling what specific people are going through. It's perfectly fine to speculate about your own condition, or what may be the cause of some anonymous person's symptoms or make a suggestion or speculate about the general cause of PCS, but I really didn't like it when you made an attempt to speculate about what has been going on with ME. Especially since I have exceptional physicians who have been working with me for over three years to get me back to a place of normalcy. Thank you for your apology. I trust you will be more cautious in the future. And I do agree that an increase of intracranial pressure, even a temporary one, could cause a lot of PCS symptoms and not be properly caught or diagnosed in many peoples' cases. But I am a layman. There is a lot of information about a lot of medical terminology and different conditions and you may find that "the internet" uses terms interchangeably, but actual Physicians and researchers do not. They are actually quite specific. Every term has a very specific meaning - Medicine is considered a science and many Dr.'s have a scientist's brain or thinking pattern. Most of the Dr.'s I have met in the last three years (over 30 of them) do not like to speculate and they also do not like to use or try experimental treatments on their patients. They are very interested in facts and evidence and not very interested in speculation. (In my opinion, the best doctors are the ones who trust their patient's experiences and opinions about their own symptoms.) I've done quite a bit of research about this stuff and I'm glad you are making a very serious effort to learn about it too. I've seen all those links that you posted a couple of years ago - there is a lot more out there for you to find too. It's truly fascinating stuff. |
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12-13-2013, 02:23 PM | #14 | ||
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Just curious...Is the pressure you are referring to feel like someone is pressing on your temples? It almost feels like a vice on both temples, right above my ears. It usually turns into a migraine when the pressure starts. I have told my doctors about the pressure but they seem to just dismiss it as part of the TBI...a typical symptom. Thank you for steering me in the right direction.
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12-13-2013, 04:42 PM | #15 | ||
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It feels almost as if my brain is too big for my head and it is pressing against either all of the front of my skull or all of the back of my skull. It's not really localized to one spot like the temples just more of a big area and it turns into a migraine for me too. I would look up intracranial hypertension and see if you fit any of the other symptoms as I seem too. Your doctor could be right as if it is just a migraine caused by tbi or it could not be. I believe my case has something to do with actual pressure being built up in my head.
Either way my advice is to eat healthy anti inflammatory things/supplements and not to push yourself too hard as long as following marks advice. You can ask your doctor about the intracranial pressure too, I just don't know how much they will be able to do for anyone unless it's severe enough to need a lumbar puncture which I doubt. Thanks for your reply! |
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12-14-2013, 12:55 AM | #16 | ||
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Legendary
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I wonder if you are just suffering from Post Trauma Head aches. I have them that have a pressure feeling. More likely the front of my head feels the pressure. If I get head aches at the back, they are usually just one side. I have had chronic head aches after a head impact that lasted 6 months with highs and lows in intensity.
The OCD/anxiety common to PCS can make head aches feel different.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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12-14-2013, 01:20 AM | #17 | ||
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Mark, I suffered from anxiety and OCD for about a month but for the last two weeks, I really haven't felt anxious or compulsions any more. I'm starting to look at things more objectively. It's not really a headache but a pressure feeling that sometimes flares up into a migraine every once in a while. It's not painful most of the time, rather uncomfortable.
The pressure feeling also hasn't been as bad as I have been off the vitamin A supplement and eaten anti inflammatory food and taken anti inflammatory supplements. I don't think I have intracranial hypertension but the intracranial pressure seems to spike every once in a while because when this pressure feeling worsens, visual symptoms and tinnitus kicks in. I also hear swooshing in my ears as if there is fluid. I can tell you that these symptoms are in no way associated with anxiety or from looking up things on the internet and believing I have this. I am way too smart and reasonable to do that and would recognize if I was doing that. I'm going to try to get to a doctor who can asses my neck because I have neck pain and I've seen that things in here that said when people visited the buffalo clinic that is renowned for its post concussion syndrome treatment that it turns out 90% of the patients also have a neck injury that creates pcs like symptoms. I am hopeful that my symptoms will eventually resolve. |
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12-14-2013, 03:39 AM | #18 | |||
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I used to get the most dreadful head pressure when I tried to exercise, it was like a crushing sensation. Just one length of the swimming pool would do this. My neurospychologist said it was muscular but now I am not so sure.
A combination of Cymbalta 30mg and Imigran for postconcussion headaches really helped, but I had near constant sinus and ear pain with fatigue and light sensitivity to contend with. I needed 5 months off work and a lot of rest. The crushing sensation went after 4 months. A year on I have gradually built up my exercise tolerance and have been back to the gym, I now work full time. However recently the ear pain came back with the headache in my temple area. Just over a year since my injury a doctor has suggested Occipital Neuralgia and prescribed Lyrica. I am still taking Cymbalta, as the last time I stopped that I had tingling in my teeth gums 24/7. So PCS has left me with intermitent Neuropathic pain, a changed sleep pattern and being fatigued more easily. However they say that it takes 2 years to recover from a brain injury, so perhaps I will be better in a years time.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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12-14-2013, 07:08 AM | #19 | ||
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Thanks for the response, mouse1.
My old neurologist who was a real ***hole didn't listen to any of my symptoms called it a headache and prescribed me an anti seizure drug that gave me terrible side effects and never even responded to when I called the office to tell him about the side effects. I told him pain wasn't the main issue just the awful uncomfortable feeling if pressure but he said the anti seizure drug would help with the pain, BUT AGAIN PAIN WASNT THE ISSUE. It makes no sense to me how it could be muscular tension. First of all for me at least, I wouldn't really even classify it as a headache! It's more of a really uncomfortable feeling that at its worst turns into a migraine occasionally. The feeling doesn't radiate from any muscles on my head/face/neck. It feels as if pressure is being pushed not my skull from the inside out, like my brain is too big for my skull. Crushing, as you said, was the right adjective. All my other symptoms worsen as you said, when this feeling gets worse, like tinnitus, but also visual problems, and brain fog and plenty more. Muscular just doesn't make sense and it feels like actual pressure, which is why I believe it is intracranial pressure, plus a multitude of other reasons. Now I don't know how believing that intracranial pressure is the cause will help my pcs, because there seems not to be any knowledge in the medical field about this crushing feeling, nor do I think a neurologist would take me seriously. I think you're right that time will improve it and am sorry to hear you relapsed. Just don't push yourself too hard is my advice and eat healthy. Also I was wondering if you or anyone else has a sensitivity issue as well. Those are two of my biggest issues, the pressure feeling/head sensitivity. The littlest bumps to my head seem like mini concussions, as they disorient me and worsen my symptoms for a couple of days. Maybe this is related to the pressure issue? I don't know but I'm curious if there's a correlation. |
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12-14-2013, 03:16 PM | #20 | |||
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ConcussedGuy,
At my very worst point I experienced hypersensitivity. This entailed post concussive headaches, extreme light sensitivity, and the ability to hear conversations clearly in the downstairs of the house (like they were in the same room), painful tinitus and hypercusis, as well as chronic fatigue and sensory overload. I would also get the crushing sensation if I over exerted myself. I believe this was down to either swelling, changes in cerebral blood flow, dilated blood vessels, neuralgia - or all of these. Whatever the crushing was it has left me with Neuralgia and numbness in my teeth and gums, and a degree of light sensitivity. Thankfully Cymbalta has helped my Neuropathic pain and hopefully Lyrica will help it further. For PCS headache Imigran (Sumatripan) really helped. Some anticonvulsants can indeed help neuralgia - Lyrica is one of these. The fact is the medical world do not understand Concussion or PCS fully. I hope you recover!
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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