Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

Reply
 
Thread Tools Display Modes
Old 12-13-2013, 02:25 PM #1
mouse1's Avatar
mouse1 mouse1 is offline
Member
 
Join Date: Feb 2013
Posts: 448
10 yr Member
mouse1 mouse1 is offline
Member
mouse1's Avatar
 
Join Date: Feb 2013
Posts: 448
10 yr Member
Default Lyrica

Anyone had any experience of this? Does it help pain.

I reported to the doctor that I have increasing pain behind my ear and also the temple above it since I have started going back to the gym. The result is a diagnosis of Neuralgia and prescription for Lyrica.

In many ways I am relieved by this, the other doctor used to diagnose me with a slight ear infection and antibiotics. To think for a year I had this, but it wasn't treated.
__________________
PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
mouse1 is offline   Reply With QuoteReply With Quote
Old 12-13-2013, 03:07 PM #2
mouse1's Avatar
mouse1 mouse1 is offline
Member
 
Join Date: Feb 2013
Posts: 448
10 yr Member
mouse1 mouse1 is offline
Member
mouse1's Avatar
 
Join Date: Feb 2013
Posts: 448
10 yr Member
Default

Although to be fair to my first Doctor he prescribed Cymbalta which has greatly helped. Whatever Neuralgia it is I have it comes for periods of weeks and then goes. Hopefully the combination of Cymbalta and Lyrica will do the job.
__________________
PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
mouse1 is offline   Reply With QuoteReply With Quote
Old 12-13-2013, 03:54 PM #3
Mokey Mokey is offline
Member
 
Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
Mokey Mokey is offline
Member
 
Join Date: Oct 2012
Location: canada
Posts: 553
10 yr Member
Default

I used Lyrica for a frozen shoulder (before my brain injury!) and it was fine for me. I hope the two meds together are alright for you.
I wonder if the pain behind the ear and around the temple are cranial nerve damage related to your brain injury? I have pain from behind my right eye through to my mouth 24 hours a day....sometimes gets really bad but is always there. Brings on headaches if I do too much.
hope you feel better!
__________________


What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺).

Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky!

Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance.
Mokey is offline   Reply With QuoteReply With Quote
Old 12-13-2013, 04:21 PM #4
mouse1's Avatar
mouse1 mouse1 is offline
Member
 
Join Date: Feb 2013
Posts: 448
10 yr Member
mouse1 mouse1 is offline
Member
mouse1's Avatar
 
Join Date: Feb 2013
Posts: 448
10 yr Member
Default

Quote:
Originally Posted by Mokey View Post
I used Lyrica for a frozen shoulder (before my brain injury!) and it was fine for me. I hope the two meds together are alright for you.
I wonder if the pain behind the ear and around the temple are cranial nerve damage related to your brain injury? I have pain from behind my right eye through to my mouth 24 hours a day....sometimes gets really bad but is always there. Brings on headaches if I do too much.
hope you feel better!
Sorry to hear about your 24 hour pain, I hope you get the right pain meds.

He mentioned Occipital Neuralgia, and this seems to make sense because I have experienced a lot of one sided pain, light sensitivity and and migraine like symptoms.

The other strange thing is when I stopped Cymbalta I had 24 hour tingling/numbness in my gums and teeth. When I went back on it, it stopped.

I think now that I am through the worst of PCS, as I try to get back to normal with the gym etc some old symptoms reoccur. Maybe the MRI will show something up.
__________________
PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
mouse1 is offline   Reply With QuoteReply With Quote
Old 12-14-2013, 02:46 AM #5
Consider's Avatar
Consider Consider is offline
Member
 
Join Date: Dec 2012
Location: New York
Posts: 196
10 yr Member
Consider Consider is offline
Member
Consider's Avatar
 
Join Date: Dec 2012
Location: New York
Posts: 196
10 yr Member
Default

Yep, Occipital Neuralgia, I have it and still can't get rid of it. Pain from my neck to the back of my head especially when under stress or sickness. A recent case of sinusitis made it so bad I went to the doctor and after antibiotics with treatment for my recent sinusitis, it started dying down but still with a mild pain back there. I try to not get sick or do too much involving my neck because of this. When I reach my limit, i usually rest and apply heat to the back of my neck. Heat therapy usually works for some relief. Hope you feel better.
__________________
College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
Consider is offline   Reply With QuoteReply With Quote
Old 12-14-2013, 03:11 AM #6
mouse1's Avatar
mouse1 mouse1 is offline
Member
 
Join Date: Feb 2013
Posts: 448
10 yr Member
mouse1 mouse1 is offline
Member
mouse1's Avatar
 
Join Date: Feb 2013
Posts: 448
10 yr Member
Default

Consider,

Your Occipital Neuralgia sounds much worse than mine. I used to get the most dreadful sinus pain as well, thankfully this has completely gone. Have you tried Lyrica? It is one of the best medicines for neuropathic pain around, but it is quite expensive. It hasn't worked yet, but I only started it yesterday lunchtime.
__________________
PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
mouse1 is offline   Reply With QuoteReply With Quote
Old 12-15-2013, 03:45 AM #7
Consider's Avatar
Consider Consider is offline
Member
 
Join Date: Dec 2012
Location: New York
Posts: 196
10 yr Member
Consider Consider is offline
Member
Consider's Avatar
 
Join Date: Dec 2012
Location: New York
Posts: 196
10 yr Member
Default

It happened after the trauma to the head from the impact. It's a bit better but gets awful after sickness or stress. I haven't been stressed lately due to the antidepressants, so I am pretty much content with how it is. It's not terrible yet its not really great, either.

Fixing my posture had helped plus the tricks they taught me at physical therapy. If I am under a Occipital Neuralgia attack, then heat therapy, a pain reliever and rest usually suffice. Otherwise, it hurts till I sleep. It's my body sign of "you are doing too much and you need to stop."

I try to have my stress under control and organize, as well as ask for help if I need it. B-12 and Fish Oil has also helped repair the nerves that were damaged from the impact, as recommended by my neuro as well as Mark's Vitamin Thread.

Ever since then I started the regimen plus an antidepressant, I felt tons of improvement and was cleared for recovery. I went back to school again. I am somewhat me again and I am glad for that. It's just absolutely terrible when I get sick so I try to keep healthy and get in my nutrients.
__________________
College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012.

Symptoms: Occipital Neuralgia.
2 MRI's and CT normal.

Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now.

Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy.

Was experiencing:
Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit.

Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm.

Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside!
Consider is offline   Reply With QuoteReply With Quote
Old 12-15-2013, 09:55 AM #8
mouse1's Avatar
mouse1 mouse1 is offline
Member
 
Join Date: Feb 2013
Posts: 448
10 yr Member
mouse1 mouse1 is offline
Member
mouse1's Avatar
 
Join Date: Feb 2013
Posts: 448
10 yr Member
Default

Perhaps we are some of the lucky one's here, like yourself I only seem to relapse when I push myself too hard. When I am good, I feel 100% better.
__________________
PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance.

Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta.
mouse1 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Lyrica? kasey21 PN Tips, Resources, Supplements & Other Treatments 3 08-12-2011 09:13 AM
Lyrica Hermes Peripheral Neuropathy 1 10-09-2010 10:42 AM
Lyrica coyote Fibromyalgia and Chronic Fatigue 6 08-20-2007 03:18 PM
Lyrica lor Epilepsy 2 06-16-2007 06:05 AM
Lyrica doses plus other meds with Lyrica? Sydney Reflex Sympathetic Dystrophy (RSD and CRPS) 2 05-31-2007 10:37 PM


All times are GMT -5. The time now is 05:56 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.