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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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01-16-2014, 07:33 PM | #1 | ||
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Legendary
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cerebellarmaniac,
Welcome to NeuroTalk. Carrick's protocol is oriented mostly to structural issues related to traumatic brain injuries. Your injury is disease related and likely does not fall within his protocol. Although, some of his neurochiropractic protocols may help with ancillary issues you may be experiencing. Carrick's clinic is expensive. I have heard starting costs of $8,000 to $10,000. He has established clinics in other locations. As I said previously, his protocols may be helpful to some and completely useless to others. It is an expensive experiment. Please tell us about the ongoing symptoms you are experiencing. What therapies and support have you received to help you accommodate them ? I have a fine nystagmus in my left eye. It is almost imperceptible. It takes a trained eye to notice it. I also have memory and attention issues. They are much easier to address with work-arounds and other accommodations. Memory and attention issues should not stop you from pursuing a full life. Maybe I can give you some tips for work-arounds. Tell me about how your memory and attention issues manifest. btw, My memory skills rate in the bottom 5 to 12% of the population so I have had some serious memory challenges to overcome. My best to you.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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01-16-2014, 07:45 PM | #2 | ||
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Luckily for me I am only 11 months post-op and am fairly young (23). However, it would be nice to know if there is any program out there that could help me out. I have reason to suspect that my vestibular issues might be responsible for, or possibly amplify, some of my cognitive issues. Perhaps Carrick's program will help my brain compensate (only one side was affected as far as I know). |
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"Thanks for this!" says: | Hockey (09-07-2014) |
01-16-2014, 11:12 PM | #3 | ||
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i know my brain inury was directly vestibular, if ur problems are caused by ur brain stem misinterpretting info, carrick may help. Anyone who thinks hes a quack is an ignorant fool. its hard for me to say if he could help because of the tumor, i know they can help vestibular injuries from concussion. its 5000 dollars for a week, thats it.
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01-16-2014, 11:14 PM | #4 | ||
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it took me a week to get in, and since going my memory, and attention have improved exponentially along with my actual vision and balance and lessoning of all symptoms. the testing involved balance, reaction times, and a plethera of saccade movement , gaze stabalization and pursuit tests as well as VNG. the results were numerical and extremely accurate, my balance went from 49% normal to 81%. my eye moevements were numerical tracked and measured and improved greatly over the week, essentially giving me life back. their exercises consisted of literally electrocuting my tongue, temple and forehead to stimulate neurons in the fore,hind and mid brain. then doing saccade training very similar to what u would see at a vestibular rehab, except for tailored to what is actually wrong with my specific brain, so basicaly following bars and dots. they would charge up my brain to learn, then recalibrate it essentially. amazing
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09-07-2014, 10:18 PM | #5 | ||
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I'm going to see one of his mentee's next week in Portland, Oregon. Dr. Zeilinski. he doesn't take insurance, and the visit will cost $5-600 but my local chiro hasn't charged me copays all this time so i can save up. he's been very generous and thinks Zeilinski can help more. We'll see. Certainly willing to try.
I'm in pretty decent shape compared to a few months ago, so i'm not sure i'll see a dramatic improvement.
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April 11, 2014 Flipped in class 2 white water while kayaking, hit my forehead (was wearing a helmet). Lots of symptoms to begin with. Those remaining are fatigue, brain freezes/overstimulation, headaches, sensitivity to light and sound. Insomnia is getting better but still an issue, and appetite is ba-ack! Depression and anxiety are largely under control thanks to Lexapro, exercise, and a very distant light at the end of the tunnel. Drugs: Lexapro, occasional 2-5mgs ambien. Off amatryptaline. Taking about 453 supplements. Just started vision therapy, waiting on some blue-tinted prism glasses. "You will encounter many defeats, but you must not be defeated. In fact, it may be necessary to encounter the defeats, so you can know who you are, what you can rise from, how you can still come out of it." Maya Angelou |
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05-22-2015, 05:22 AM | #6 | ||
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I was really curious to know what was so unique about his clinic and it seemed to be his technique. For example using a mirror to trick the persons mind in to thinking there arm is moving. It's still simple rehabilitation that is known to work I guess with better techniques. I'm guessing a lot of it is desensitization rather than using rest and avoidance.
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09-07-2014, 09:26 PM | #7 | |||
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Magnate
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09-07-2014, 09:54 PM | #8 | ||
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Legendary
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Sure, rest will always help the brain. If he hasn't been resting, it should help. If he has been resting, it would appear he needs more. The brain needs rest so it can re-establish control over fluid pressure. Then once his head aches subside, he can slowly reintroduce activity. He wants just enough activity to keep a modest blood flow through the brain.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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09-28-2014, 12:30 AM | #9 | ||
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I'm not sure if I can attribute it all to APT, as a lot of is due to natural compensation and adaptation. However, at the very least it made me a lot more cognizant of the issues I face. I look forward to hearing from you regarding the Carrick Center PCSfog2012. Also, could you please expand on the eye tracking thing please. Do you primarily have trouble making smooth movements (like tracking a moving car or fixating on a sign while moving), or saccades (like reading or counting lines on graph paper), or both? Thanks,
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Large deep left-hemisphere cerebellar lesion removed in early 2013. Age of surgery 22. Last edited by cerebellarmaniac; 09-28-2014 at 01:46 AM. |
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01-31-2014, 05:01 PM | #10 | ||
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Newly Joined
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Thinking of trying gyrostim in colorado...do you know what percentage of people this works for? I've heard from many who said it worked but none who tried and said it didn't. Please let me know!
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