Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-27-2014, 03:38 PM #31
Kitt Kitt is offline
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Welcome PCSfog2012.
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Old 09-27-2014, 04:12 PM #32
allday310 allday310 is offline
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Yes please the more information on Carrick institue the better. I have heard it is expensive so every avenue must be studied. Hockeymom best of luck please let us know how it goes. I have been suffering since january and have heard many things but its hard to distinguish from real and scams.
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Old 09-27-2014, 05:44 PM #33
Mark in Idaho Mark in Idaho is offline
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There are treatments that work for some people but not for others. It is the nature of concussion injuries. Just because it works for one person does not mean it will work for the next person so any testimonials of how well it works must be considered with that in light.
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Old 09-27-2014, 07:34 PM #34
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I cant even make it over the bridge to Mount Sinai or NYU.. So travelling that far is out for me but I am very interested to see someone who has some posts to their name, come back and give us the full scoop.
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Old 09-27-2014, 10:09 PM #35
hockeymom1998 hockeymom1998 is offline
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we leave oct 12 start treatment 13th for a week. i am hoping for the best. i dont want to get too excited about it because i know every concussion is different.
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Old 09-28-2014, 12:30 AM #36
cerebellarmaniac cerebellarmaniac is offline
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Quote:
Originally Posted by Hockey View Post
I did APT and found it very helpful. I hope you have similar results. However, don't be surprised, or alarmed, if you find it absolutely exhausting at first. Good Luck.
I found APT benefited me a lot. As a matter of fact, my most recent neuro-psych showed marked improvement in my attention and memory (some areas are still sub-par though). I also feel like I have more energy day-to-day and recovery a lot more quickly.

I'm not sure if I can attribute it all to APT, as a lot of is due to natural compensation and adaptation. However, at the very least it made me a lot more cognizant of the issues I face.

Quote:
Originally Posted by PCSfog2012 View Post
one of my primary issues is vestibular injury with difficulty tracking with my eyes. It's been hypothesized that my neck injury has left my body compensating which created these pinched nerves and pain.
I look forward to hearing from you regarding the Carrick Center PCSfog2012. Also, could you please expand on the eye tracking thing please. Do you primarily have trouble making smooth movements (like tracking a moving car or fixating on a sign while moving), or saccades (like reading or counting lines on graph paper), or both? Thanks,
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Last edited by cerebellarmaniac; 09-28-2014 at 01:46 AM.
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Old 09-28-2014, 10:44 AM #37
PCSfog2012 PCSfog2012 is offline
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Thank you for the warm welcome and well wishes.
Mark - thanks for clarifying what I tried to say in my post about us all being unique in our injuries, recoveries, biology, etc. 1 person's experience (pro or con) by no means should be extrapolated to the population at large hence clinical trials vs. anecdotal experience. That said, I don't see a whole lot of trials 'for us.' Hell my first 6 docs didn't even diagnose PCS and they were from prestigious academic institutions.

Regarding visual tracking issues: I have both with horizontal nystagmus. I also continue to have intermittent challenges with convergence; however it was much, much worse prior to doing therapy.

Marknell1212 - I feel your pain in a big way. I'm booked to fly to Atlanta tonight and I've had insomnia for a few weeks. I can barely make it to the bathroom today; and I have no idea how on God's green earth I will make it down to Atlanta. My amazing fiancé is coming with me otherwise I would cancel b/c I can't imagine making it down the block, let alone through an airport, 2 hour flight (flights destroy me with worsening symptoms), and all of the stimuli associated with the trip. I'm working very hard at staying in the moment and taking this one step and hour at a time. Otherwise, I just want to give up.

i'm very cautiously optimistic since so many have promised 'curing', 'fixing', improving, dramatically affecting my condition and life. that said, this is my last unexplored avenue despite the lack of any data (which I'm doubtful we will ever see given the complexity of our brains and involved physiology --- at least not for several years).

I hope you're all having a better day. Thank you again for your well wishes.

Marknell1212 - FWIW - I know exactly what you are saying and that awful feeling where you just can't move. Depression? fog? Fear? dizziness? exhaustion? all of the above here. Hang in there, brother.
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Old 09-28-2014, 10:59 AM #38
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Quote:
Originally Posted by markneil1212 View Post
I cant even make it over the bridge to Mount Sinai or NYU.. So travelling that far is out for me but I am very interested to see someone who has some posts to their name, come back and give us the full scoop.
i'm curious if they will make me sign some non-disclosure forms regarding feedback given the 'proprietary' protocol they use.

If my post-treatment reply is limited in nature, I will do my best to honor any potential agreements (and I'm purely speculating) with them while being true to myself and the rest of those suffering. Worst case, I have no gains, in which case I would never blame them for trying to help, but I would post that I'm still in the same boat but just have a sizable credit card bill to pay.
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Old 09-28-2014, 04:04 PM #39
allday310 allday310 is offline
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Yeah i hear all of you. I would have to travel thousands of miles and pay a hefty price. Everyone is different but sometimes what works for one can also work for you. With that being said getting to attached with hope will lead to a big fall if things dont go right. Im just curious because so little is said of that place
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Old 09-28-2014, 10:23 PM #40
dawneve dawneve is offline
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Do you know if anyone on here has tried the Fisher Wallace stimulator??
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