[Liza Joubert]

Hi,

Thanks I shall try. I am still getting thehang of how to post messages and sometimes I cannot even find where I should be. Maybe I have some technological issues...

They have taken Steven of his Baclufen and his anger has gone, Thank heavens. But now his balance issues are back.

we shall see what goes on now.

Thanks Liza

[Chemar]

Hi Lisa...looks like you may be replying to your intro thread so I will link it here for context
http://neurotalk.psychcentral.com/thread191815.html

[ssbob]

Originally Posted by Liza Joubert

Hi,

Thanks I shall try. I am still getting thehang of how to post messages and sometimes I cannot even find where I should be. Maybe I have some technological issues...

They have taken Steven of his Baclufen and his anger has gone, Thank heavens. But now his balance issues are back.

we shall see what goes on now.

Thanks Liza

Hi Liza, i live in Warmbaths South Africa and was also diagnosed with SS in January this year. *edit* I may be able to share some info on this subject with you . Like you i also have trouble using this web. I will be looking out to see if we actually made contact this way. ssbob

[Chemar]

Hi
just a reminder that it is never a good idea to post any personal info like phone #, address, email etc on a forum....rather use our private messaging system to communicate and exchange contact info

[Liza Joubert]

hi. we got busy and didnt visit for some time. The issues are still there. bad vergtivo some days a dialated pupils.
We have more doctors to go and see.
Its realy draining for both of us his irritability is frustrating and one doesmt know when his next outburst or episode will happen. Driving is a big problem I am scared togive him my car. If he has vertigo attack it could cause a major problem.
Maybe someway we can contact each other and exchange info. It seems our dr inSA are new to this problem and nobody seems to have much info.