Yes, one of them specialized in NUCCA. I went for a couple of months but never noticed anything and it was quite expensive. I have never had any gentle traction or massage done on the C-1/C-2 though. Would that typically be done by a chiropractor who specializes in that part of the spine?

Of all the things I've tried in general though, I have to say chiropractic probably helped the most, but again, became cost-prohibitive. Think I had been going for roughly 9 months or so and had plateaued and didn't really notice any change in the last 2-3 months I was doing it so tapered off.

What are your thoughts on neck exercises to strengthen the stabilizing muscles, tendons, etc.? If beneficial, are there any that you would recommend specifically?

I will start with the B vitamins again as you recommend and see what happens. Think up above you had mentioned it took a few months before you noticed a difference so will at least give it 8 to 12 weeks.

Thanks again for all of your help!

Yes, curious what kind of cranial-sacral therapy you've had done and if there are any particular forms that tend to work better than another in either of your experience. I've had it done a few times, but not with any regularity.

I'm sorry you have had a tough time. I am also in month 18 of pcs! It's mind boggling to consider how long the brain can take to heal.

I also had vertigo symptoms along with migraines and convergence insufficiency. I had so much inner ear pain and imbalance issues although MRI / CT scans revealed nothing structural.

A turning point was a visit to the neurology & ENT departments of UCSF. They suspected that because the inner ear was fine the brain was unhappy. They began to treat for migraines with noritryptiline. I am not in month 3 and have gone up to 50 mg (and yes have gained weight), but the vertigo spells, multiple migraines per week have gone down.

I'm not sure what the constellation of your symptoms are, but it might be helpful to see. Sometimes vestibular issues, like mine, have little to do with the inner ear and more to do with the brain sending incorrect signals.

best of luck!

Sorry to hear about what you've been going through as well. Definitely takes the brain a long time to heal, and in my case, thought it was healed after my first bout with PCS, but has regressed over the last many years. Our symptoms sound very similar aside from the migraines though.

Did you have any tests done on your ears out of curiosity? E-Cog or ENG or anything? I do think it's an issue with my brain sending mixed signals, just not sure where they're originating from, if it's the ears, eyes, or the brain itself. Or maybe some combination of all three.

Hope things continue to improve for you!