[dannysmom]

Hi all, my name is Katy and I've recently discovered this site and have read many of your stories. Thank you all for sharing! I can't believe how many people are suffering for years with post concussion issues! My 13 year old son, Danny, (youngest of 4 children) had a concussion last April after falling in the cafeteria and hitting the back of his head. He has had everyday headaches since. He is not attending school right now and his headaches are in the severe range (8, 9 and 10 on the scale). We have a homebound tutor who has been able to come about 5 times before Christmas, but Danny would always feel worse when trying to concentrate on school work. In addition to taking Vitamin D, Magnesium, Vitamin B2 and B complex, and fish oil, we have tried cranial sacral therapy, acupuncture, atlas orthogonal chiropractor therapy, a gluten free diet, biofeedback, relaxation therapy and meditation, and a range of medications from the neurologist such as amitriptyline, relpax, migrainal, zomig, mobic and vistriol. He is currently taking 100 mg of Topomax and we just started a 3 week course of prednisone. The doctor wanted him to do Botox, and we had gotten approval for it, but Danny refuses to try it. He had a spinal tap on Monday and his CSF pressure was normal and we are waiting on the rest of the results. We have recently been seeing a therapist, but I'm not sure if the therapist is for me or for Danny! He has been very helpful for us as a family, but I don't think he is going to help stop the headaches. The doctor said that after this the next step would be to get into the Michigan Headache Neurological Institute, a multidisciplinary hospital in Ann Arbor that offers a comprehensive workup as an inpatient for up to 2 weeks. The chiropractor wants him to go to Albany for an upright MRI (we had a recumbent MRI which was normal according to the neurologist - but the chiropractor disagrees).

I have been reading about neurofeedback and wonder if anyone has tried it, and/or know anything about the Brain Wellness Biofeedback and Wellness Center of Washington DC?

Please post if you have any information that might help us decide our next course of action. I apologize for all of the information at once. I'm sure I've left some things out. I am overwhelmed and scared! Danny is sick of taking medications and vitamins and seeing doctors! Thanks all! Katy