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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-06-2014, 03:46 PM
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I have been having a REALLY rough time! I had to drop out of school a few month's ago after 3 classes. I had to drop out because I was feeling a decline in my recovery and all together mental/emotional state. I started getting dizzy , brain zaps, really depressed etc. I thought maybe it was my SNRI.
I had went to a behavioral health hospital to try to get help. Well they kept me as inpatient for 2 day's. They could not do anything for me if I was not suicidal, bipolar , or hearing voices. My family had to advocate for me from the outside by phone telling these idiots that I REALLY did have a TBI and a list of other diagnosis and syndromes until they got medical records. Finally!!! The hospital coordinator that was assigned to me had talked with me and I told them how I was being treated, how I was not getting my needs met, (they would not even give me my sunglasses till 24hrs later!!!)I was going totally NUTS!!!! The coordinator told me that they really could not do ANYTHING FOR ME! And he got me released early 57 hours out of mandatory 72 hours. Gave me a few community resources and got me follow up appointments with my psychiatrist that I already had. I have to questions.... Has this ever happened to others? And the hospital psychiatrist started me on Topamax. Any input on this for "mood stabilizing" and "migraines"? Thank you!Any feedback is appreciated greatly!Mia 
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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02-06-2014, 08:12 PM
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Legendary
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MV,
I am confused as to why you were in a psych hospital on a 72 hour hold. Did you self admit or did someone else send you there ? I have struggled with spaghetti brain (thoughts get all jumbled up) due to stress over the past 6 months. My doc put me on Celexa (SSRI) and Xyprexa (atypical anti-psychotic) and I feel much better. Went off the Xyprexa for a few days and symptoms returned. Maybe you need to find a doctor who will spend more time trying to find a good med to help you be settled, both cognitively and emotionally. As the saying goes, I feel your pain. My best to you.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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02-06-2014, 09:10 PM
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Hey Mita,
Sorry to hear of your struggles. It hurts to find that when we take 1 step forward, we end up two steps back. However, this isn't the end. Topamax is good for migraines, well preventing them. There is also self-care. It isn't the end all to end all. I was recently put on Strattera to add an NRI to my SSRI medicine Paxil to deal with my neuralgia and ADHD issues. And also, my psych doesn't want me to go through Paxil horror stories, not yet. With my new medicine, I feel as if I went three steps back because the start up is that horrid. I hate feeling nauseous. Good news is, I feel a bit calmer and clear headed than I used to be. I've added Magnesium Malate and Potassium Citrate to my bedtime routine and so far it has worked well. Magnesium is also a migraine preventive, but for me the Potassium has made all the difference. I went a week without it and I was back to the tension headaches. Not fun. Please feel better soon. I really feel for you. Take care of yourself, remember it is you who comes first. Elisa (Consider) 
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College Student in Information Technology and avid PC Gamer, hit the back of my head against a bunk bed and went unconscious for 3 minutes back in 10-28-2012. Symptoms: Occipital Neuralgia. 2 MRI's and CT normal. Currently going through Paxil withdrawals, and psych has me on L-Theanine, Benadryl for zaps, and Lemon Balm. It has eased it by a bit, so I am continuing the treatment till 1 month from now. Made a 98% recovery on April 8, 2013 with only symptoms of pinched nerves/Occipital Neuralgia in the head and is being treated with injections and physical therapy. Was experiencing: Migraines, Headaches, Nausea and Vomiting, Panic Attacks and Anxiety, Depression, Major Insomnia, Brain Fog, Tinnitus, Lethargy, Loss of appetite, Major Heart Palpitations, Occipital Neuralgia has eased a bit. Vitamins and Medicines: , L-Theanine, Omega 3 Super DHA 900mg, Stress B-Complex Extra Strength, Potassium Gluconate 1000mg, Magnesium Malate 1250mg, Vitamin D3 2000 IU, Methylcobalamin B-12 5000 mcg, Vitamin C 500mg, Lemon Balm. Things that helped me: My Vitamin Regimen, Medication, Earplugs (Love these!), Nature Sounds, Hydrotherapy, Neck Pillow with Heat, Heating Pads, Resting, Being Outside! |
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02-06-2014, 11:59 PM
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Mark,
Thanks for the reply. I went to the emergency room because my psychiatrist is out of the country, it was the weekend, and I wasted away 3 week's doing nothing. I had been telling my mother and it got to the point we called neurologist and he said to go to this hospital. Once I went and brought up the word antidepressant and brain zaps they admitted me. My psychiatrist will be back in a week and I will see him and we will have to figure out new regimen. I have been on my SNRI for a year now and I do not know if it is my tolerance to this SNRI or what is going on. I have chronic pain as well so the SNRI helps me. Hopefully I can get back on stabilization sooner than later.  Quote:
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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02-07-2014, 12:30 AM
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Consider,
Thanks for the response. I do holistic self care, eat nothing but clean & holistic medication. I am at the point of accepting that there is going to be no fit for life with this TBI and medications. It seems to be I either get new diagnosis come or have to switch out meds constantly yearly! It is kind of funny you brought up ADHD because, prior I was wasting away 3 weeks until I got in to psych ward. It was a complete spaghetti brain like Mark said. The hyper part was shocking to me! I was like a ping pong ball! lol they had to get me out of there because I was probably triggering the bipolar and very depressed that they catered to. The very depressed would lay all day and I was just wanting to lay down(not like me to be that hyper) Now I am back home to my normal chill out environment lol and wore myself out in that place. I totally reversed when I got out of my comfort zone and being confined in there. To get no answers was the irritating part! They also told me the Topamax was a mood stabilizer.....after how they seen me they felt that was the least they could do is stabilize my moods. lol All I can do is laugh at myself right now because this is kind of comical to me. I look at it that way rather than stressing over something I have no control over. I must say they sure did see me on one of my PCS Finest moments! I had myself ping pong balled out!Take care  Quote:
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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02-12-2014, 12:03 AM
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Well not good news....I am starting from the beginning but this time I can walk , talk, and my vestibular is better because of multi therapies. I am starting a whole new SNRI and I pray that I can get back to where I was 4 month's ago. I am not laughing anymore I am very depressed and worried that I might of got a sample of 9 months with mild symptoms and now I am none functioning and full blown pcs symptoms.
 It took a lot just to type this up. It was a reality check that I am young and this is my life now there is no more improvements and I will depend on medications for the rest of my life  I hope I can move to a island one day to get away from all this stressful society! Sorry not what people want to hear but this is my reality with TBI
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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02-12-2014, 07:39 PM
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MiaVita:
just a note to encourage you. It is very tough dealing with this. But I am sure you will see improvements, and that you will get a good life back at some point. Progress can be very slow and sometimes we can't see it. Take it hour by hour, day by day. It is a success to get through each hour and each day. Go easy on yourself! You will survive. hang in there.
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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| "Thanks for this!" says: | MiaVita2012 (02-17-2014), poetrymom (02-12-2014) |
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02-12-2014, 10:55 PM
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Mia
You are a strong person. Your will to find answers and keep on seeking them is nothing short of amazing. You had to do this before. Please don't give up. You will not give up. You have had your seasons of the right, good life, and I pray it will come back to you again. I believe it will. I am praying for your recovery. Sincerely, poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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| "Thanks for this!" says: | MiaVita2012 (02-17-2014) |
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02-13-2014, 08:48 AM
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MiaVita,
It sounds like you need some form of medication for both mood and pain. As you know Cymbalta has helped me greatly and now my pain is better controlled further with Lyrica on top. I hope you get the right combination to help you.
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PCS following head injury November 2012. Experienced dizzyness, light and noise sensitivity, hypercusis, fatigue, insomnia, migraines, facial pain, problems concentrating, irritability, sensory overload, exercise intolerance. Symptoms mostly resolved, working full time and I am now mostly better. I wake 6am daily since my injury. Was experiencing daily Neuralgia which was controlled with Cymbalta 30mg, Lyrica 200mg daily. Now only on 30mg Cymbalta. |
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| "Thanks for this!" says: | MiaVita2012 (02-17-2014) |
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02-17-2014, 01:32 PM
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Thank's everyone
I am going on four month's of no functioning. I am now confined to my bed cause these drugs have my brain/head so messed up I get dizzy. The SNRI just stopped working for me while I was taking them. I am so lost, I thought this roller coaster was settled down and I am back where I started but added brain zaps.My psych is now got me as a lab rat on some brand new SNRI that has no reviews etc. I lost my insurance cause I am too sick to do ANY paper work or sit up. I would love to go back to how I was 5 month's ago! It was like a tease. I think the poison (medication)is just a set up for failure in my eyes. Have to keep switching it every time one stops working! This is just the worst thing for anyone to experience on a yearly bases! And not even be able to smile anymore. Sorry everyone but I cannot remember the last time I got to leave my bed besides to run into a wall on the way to the bathroom etc! I'm not laughing anymore! SUX
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What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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