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-   -   PCS or no? (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/201160-pcs.html)

poetrymom 02-18-2014 08:02 PM

recovery
 
Mark really nailed some important points. We all have to learn how to live in a state of recovery from a brain injury. Each person will have a different answer to this.

I have recovered quite a lot from where I was, but I do tire more easily and my tiredness is no longer easy to put off. Meaning, I have to rest.

I need quiet in my life. I can't tolerate a lot of noise the confusion of many voices talking all at once. As I am more tired at the end of the day, this is harder for me and can give me a light headed feeling.

That said, I will take that 97 or 98. something and go with it. I never want to have to go back to the dark cave days of being in minimal light for 18 hours and waking brain tired.

Heal on friends. Heal on.

mrsmith 02-18-2014 11:20 PM

Yes. Another thing that is very troubling for me is that every single neurologist or physician I go to have VERY different opinions.

My sports physician seemed much more conserved than my neurologist, whom specializes in MTBI. My physician had the opinion that I should follow my symptoms, and try to find work arounds. Whereas my neurologist told me to just get back into the swing of things, and ignore my symptoms.

My neurologist was of the opinion that exercise is essential to recovery, and running and things like that were completely fine.

This really confuses me, as I honestly have no idea what to do, and what not to do.

mrsmith 02-19-2014 12:33 AM

I do feel like I've made significant progress which makes me happy. A week ago I was forced to drive on a dirty road which was EXTREMELY bumpy, this normally would have caused me a week setback. Now I had a bit of a headache for they day, and that was that. It doesn't seem like much but to me it is improvement.

poetrymom 02-19-2014 07:28 AM

Oh the confusion!
 
Hi there

It's very hard when you don't know which doc to listen to. But you seem good at listening to your own body and it will tell you what works and what doesn't work.

I do think exercise is important too for getting oxygen into the brain, but I know for myself, I probably can't tolerate the really hard running or hard heart pounding of an extreme exercise. I choose to walk long distances and use an elpitical machine, but never to exhaustion.

Ultimately only you will know what works and doesn't work for you by some trial and error. I am a believer in learning your triggers and working around them. But that's me. In time, maybe some triggers no longer are problems. I really don't know.

I don't think we come through PCS without some issues, scars if you will.

I take the good days I get, the healing I know, and just try to roll forward.

Take care,

pm


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