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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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I'm visiting the doctor in a week or two and wondering if there's a name for what I'm experiencing.
I'll give examples: My son walks in wearing a dirty shirt. I'll notice his shirt is dirty and say, "Can you please go put on another apple?". My daughter will ask what's for dinner. I'll be preparing salmon, but I'll say, "I've got tacos in the crockpot". My kids think this is hilarious and that I'm playing a game, but I'm actually just thinking one thing and saying another. It's very frustrating, actually. I also have problems thinking of words. Like, I'll say, "Kids, get your shoes on and wait by the..." (trying to think of "door", but it just won't come). I'm not sure how to describe this to a doctor. I guess the same way that I just described it here? |
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"Thanks for this!" says: | Mokey (03-05-2014), St George 2013 (03-05-2014) |
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#2 | ||
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So glad to see this post....I do the same exact thing. It's so weird.
I told my daughter to put the broccoli in the attic ! And my kids (both adults) have to finish my sentences for me because the word just won't come to me. It's like I can see it in my head but it won't come out of my mouth. And they all laugh too......I'm guessing it's my meds for small fiber neuropathy. Not really sure. And it's very frustrating to me too. Hope someone can help us out with this ![]() Debi from Georgia |
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#3 | ||
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Just tell your Dr. the symptoms, exactly what you've told us here and s/he will diagnose it. It's probably aphasia... but Dr.'s typically don't like it when you go in and tell them what you have...
Since the auto accident and concussion I sustained I have suffered from aphasia. It's getting better, but it's 3.5+ years since... and I'm taking a lot of hormones that were caused by deficiencies from the concussion... and it still happens! It's frustrating but it's definitely a common symptom of a tbi. |
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"Thanks for this!" says: | St George 2013 (03-05-2014) |
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#4 | ||
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Legendary
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These symptoms are common. As mentioned before, just tell the doctor the symptoms without trying to medically define them. I had the whole spectrum of word finding and expressing difficulties early on. Now, I only experience the word finding difficulty infrequently. You are doing it right by laughing about it. It lowers your stress level. For me, stress made this cluster of dysfunctions worse.
The doc may suggest speech therapy but in time, this should become less of a problem. Speech therapy just causes more stress as you focus on the symptom.
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | Mokey (03-05-2014) |
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#5 | ||
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Mark is right, focusing on it, or stressing out about it just makes it worse.
For the record, I was ordered speech therapy for a SLEW of issues and this was a small one in comparison to what else I was dealing with... |
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#6 | ||
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I have that too...including making grammar mistakes, which is not usual for me as I love grammar! But it is getting better....a mild aphasia and word finding difficulties.
speech language pathologists are very important in brain injury rehab...for cognitive issues including those which you have described. Good for you for laughing!
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What happened: Legs pulled forward by a parent's hockey stick while resting at the side of the rink at a family skate....sent me straight back. I hit the back of my head (with helmet) on the ice, bounced a few times, unconscious for a few minutes. September 11, 2011. Off work since then…I work part-time at home when I can. It has been hell but slowly feeling better (when I am alone☺). Current symptoms: Vision problems (but 20/20 in each eye alone!) – convergence insufficiency – horizontal and vertical (heterophoria), problems with tracking and saccades, peripheral vision problems, eyes see different colour tints; tinnitus 24/7 both ears; hyperacusis (noise filter gone!), labyrinthian (inner ear) concussion, vestibular dysfunction (dizzy, bedspins, need to look down when walking); partial loss of sense of smell; electric shocks through head when doing too much; headaches; emotional lability; memory blanks; difficulty concentrating. I still can’t go into busy, noisy places. Fatigue. Executive functioning was affected – multi-tasking, planning, motivation. Slight aphasia. Shooting pain up neck and limited mobility at neck. Otherwise lucky! Current treatments: Vestibular therapy, Vision therapy, amantadine (100 mg a day), acupuncture and physiotherapy for neck, slow return to exercise, magnesium, resveratrol, omega 3 fish oils, vitamins D, B and multi. Optimism and perserverance. |
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#7 | |||
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I've had wrong word issues too,and it is better. Sometimes it is just darn funny though and the words we say or even make up can be poetic.
I have found, at times, when I really tried to say something and I was too excited, I couldn't get the words out at all. It's kind of like being a little kid sometimes and creating new words. Well, it is or was for me. poetymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013. Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines, Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something. Therapy I had: vestibular 3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling. 9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms. I pray every day and I m praying for your recovery. Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired. |
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#8 | |||
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Quote:
If your doctor is familiar with TBI they will be familiar with this symptom, just describe it to her or him as you have done here. Best to you as you recover.
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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition. Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life. |
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#9 | ||
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Thanks for your feedback, guys. I'm cracking up over the broccoli in the attic story. Sounds like something I'd say!
PoetryMom, I have experienced that a few times, too (when I'm too excited). I also have trouble communicating if I become very upset. My ex was here yesterday, and he was really pushing my buttons. I kept trying to communicate that his comments were upsetting me but ended up just standing there with my mouth open. Which just made me more frustrated lol. I have found that my best days are the days where I am home alone for a few hours. That has only happened a few times over the last 3 months, but each time, I have felt much better. |
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"Thanks for this!" says: | poetrymom (03-06-2014), St George 2013 (03-06-2014) |
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