Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-14-2014, 06:54 AM #1
mrsmith mrsmith is offline
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Default My year and a half long battle with PCS

Alas, my battle seems to be coming to a close.

One year ago I was not able to walk normally without getting severe headaches, I was not able to hold up a conversation, or attend classes.

Now I am able to exercise moderately (still working towards my ultimate goal of being able to run freely again), participate in fairly normal daily activities, and participate in social events almost free of symptoms.

I am very grateful to be able to do these things, and from now on will most definitely cherish a semi-healthy brain.

I do still have occasional symptoms from time to time, which are becoming ever less frequent.

If I have any advice to give, first of all I would say to be patient, things DO get better. Secondly I would tell you to not believe what doctors tell you 100%, think for yourselves.

I plan to get back to my normal life, excluding heading soccer balls and probably skii'ing and snowboarding.

This journey has taken approximately 10% of my life.
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LauraM (03-14-2014), poetrymom (03-16-2014)

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Old 03-16-2014, 09:52 AM #2
brokenbrilliant brokenbrilliant is offline
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Glad to hear you're on the mend. Sounds like you've come a long way. Thanks for sharing your good news with us.
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What happened: Sustained mild TBI #9(+) in 2004 when I fell down a flight of stairs and smacked the back of my head on the steps. Knocked out briefly, then bounced back and resumed everyday life, as usual. Then things fell apart -- lost my job, friends disappeared, spouse became terrified of me, money flew out the window, and I had no idea it was all happening, or why. Finally put things together in 2007, when I was researching brain injury for a family member. Have been actively working with a neuropsych and recovering since late 2007, with amazing results I never thought possible.

I blog about this at
.
.

Symptoms: fatigue, tinitis, sensitivity to light and noise and touch, insomnia, general pain, headache, attention issues, emotional lability, panic/anxiety, anger/rage spikes, confusion, difficulty hearing and understanding, slowed processing speed, limited short-term working memory, balance & vertigo issues, difficulty reading and learning new things, nystagmus and tremors when over-tired.
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Old 03-16-2014, 09:17 PM #3
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Default good news!

Hey this is great to hear.

How about coping and pasting it up in the hope stickie above? Everyone who comes here needs to read something hopeful about all of this.

Keep on healing.

Sincerley

poetrymom
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[SIZE="1"]What happened. I was in a car accident 2-23-2013, and got a mild concussion from it. I had some time off for brain rest, got somewhat better, but slipped into PCS in March 2013.

Symptoms I had: dizziness, light and sound sensitivity, fatigue, tinitis, occasional headaches and migraines,

Symptoms as of 5--2013: poor sleep, tinitis, some confusion /short term memory blanks, balance. The other symptoms are mostly gone, but flare up if I OVERdo something.

Therapy I had: vestibular

3 months in: I could drive more and for longer distances. I felt like a younger, happier version of myself and I feel so blessed to have this feeling.

9 months in and I am working full time. I do get tired, and some sound and light sensitivity from time to time, but mostly I am over most of my symptoms.
I pray every day and I m praying for your recovery.

Over a year in: I can multi task (limited) and have humor in my life. But when I am tired, I am very tired.
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Old 03-23-2014, 01:26 AM #4
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MRSMITH,

I'm so very happy for you. May you be completely free of symptoms and remain healthy!

Peace and wellness,

Jace
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.


*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
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