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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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04-12-2014, 10:37 PM | #1 | ||
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | Hockey (04-26-2014), jinga (04-13-2014), Lara (04-13-2014), MomWriterStudent (04-14-2014), nimrod4u (04-14-2014) |
04-15-2014, 06:23 AM | #2 | ||
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I was a very outgoing person prior to my accident. I find it really tiring to follow conversations and if there is more than 3 people talking I don't usually talk because I can't keep up with the conversation.
I find by the time I am ready to jump into a conversation what I wanted to comment on has already passed. It can be rather awkward because I will say something and (my children particularily) will say we stop talking about that, I think others are more polite. I prefer to go out with one or maybe two people to make it enjoyable for me and a quieter place, if there is a lot going on I get tired really quickly. Thanks for the article Mark, it was interesting.
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MVA March 2012 pcs, post traumatic vision syndrome, convergence insufficiencies, vision mid line shift syndrome, gaze stabilization and vision tracking. Fatigue, headaches and sore eyes are main issues. Current activities: chiro, massage, prism glasses, vision therapy, yoga, meditation, aquafit classes and rest..... |
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04-16-2014, 10:10 AM | #3 | ||
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Mark,
Thanks for the article, I have only one word in response: YUP Jamie
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Brain Fog, Short Term Memory, Depression, Anxiety, Sleep Apnea |
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04-20-2014, 09:05 PM | #4 | ||
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Yup! I was also very outgoing as well, and loved to chat to everyone. Now I hate it. First, I still feel unintelligent because I cannot think as fast as before. Second, the focusing on a conversation is difficult. Third, I just cannot be bothered anymore.
Its weird, I just have zero lack of interest in anything social anymore. My wife is so annoyed with it because I rarely even hold conversations with her anymore. It happened in January, so hopefully one day itll come back to me. |
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04-24-2014, 06:32 PM | #5 | ||
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I was actually talking about this last night. Brainline.org has a video about how the most devastating consequence of brain injury is loneliness from loss of relationships. The video talks about how as an adult, your co workers, etc are in close contact for the first few weeks. But as time goes on, they realize you are off work "doing nothing" in their eyes, and the conversations you had with friends multiple times a day, drop off as co workers basically forget about you.
I think this would be true with kids too, especially in today's tech driven world. I personally can't stand talking on the phone. Most of my interaction is via facebook, texting etc. However, due to vision issues, I have to really limit how much time I spend in front of screens, so that's limiting too. And many kids go from being involved in a lot of activities, sports, band, etc to not be able to be involved at all. My heart breaks for them. I know how isolating this is as an adult. I can't imagine having all the insecurities of growing up AND having a brain injury on top of it.
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What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.) Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles, Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory; Emotional: easily overstimulated, depression, anxiety; Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy |
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04-24-2014, 07:16 PM | #6 | ||
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The issue is not about access to activities and friends. The issue is the personality changes that result in losses of friends and social contacts.
When I had my injury at 10 years old, I returned to school after only 4 days away. I had the same access to my friends and classmates but my personality had changed. I lost most of my friends. I had been a 'get along with everybody' type but that ended. I started getting picked on and bullied. As my mother has said. After my head injury, she lost her sweet little boy. There was no support for my recovery let alone any advice or counseling regarding how to deal with the personality changes.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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