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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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04-22-2014, 09:23 AM
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Many of you may not know me, as I have been inactive on the boards for the past year since returning part time to my graduate study program. Although I still struggle with my mTBI, after 2 years of various rehab, I have been able to return to my Graduate program, one class at a time.
Tomorrow evening, I am presenting in my class called "Family Resources". I will be providing some basic brain injury information, relevant websites, local agencies that help TBI patients. Since this message board was such a wonderful wealth of information, I am including it as a resource. But I thought it would be more meaningful, if all of you out there who are also living with TBI could provide examples of things you would want a Parent of a child with TBI to know and also what you would want a Teacher with a student with TBI to know about what it's like living with TBI. Post away! I will be sharing your comments about 30 hours from this posting 
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What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.) Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles, Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory; Emotional: easily overstimulated, depression, anxiety; Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy |
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04-22-2014, 10:19 AM
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Legendary
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In my experience, the one issue that stands out about living with PCS or mTBI is over-stimulation. Outsiders have a very difficult time understanding how visual and especially auditory stimulation can overwhelm the person. This sensitivity to over-stimulation effects where I can be and what I can do. It can trigger an outburst or a cognitive shut down.
Voices, especially people talking together and over each other can be a trigger. This can cause the person to need to remove themselves from a social or work environment. Not everybody has this same struggle but for those who do, it is life changing.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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04-22-2014, 01:52 PM
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TBI is an injury. Just because I look better DOES NOT mean that I am better.
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Brain Fog, Short Term Memory, Depression, Anxiety, Sleep Apnea |
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04-22-2014, 01:55 PM
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I would like people to know that all brain injuries are different and that "toughing it out" just isn't possible. I've had people make comments to me like, "How are you not better? I was competing in a karate tournament the day after my concussion" or "You just need to try harder and you'll be just fine".
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It is what it is. . |
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04-22-2014, 02:32 PM
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Just because I did it yesterday and I was ok, does not mean that today I will be ok... every day is different and some days are better than others.
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The Start: MVA, t-boned, on 1-12-14 (my sons 5th birthday) and did not think anything of it.. my back hurt on site but everything else seemed ok. Lost about 10-12 hours from about 3 hours after the accident to the next day...Experienced terrible brain fog for over a month, plus intense headaches, nausea, dizziness, cognitive difficulties, disorientation, no short term memory, depression and just an overall hangover feeling daily. Current Situation: I'm about 7 months in and my local neurologist has waived her white flag and therefore I am headed to Dallas to be seen (I have family there). The headaches are still daily. I have nausea, dizziness as well. Drugs I have been on- Vicodin (off), Naproxen (off), proanolol (off), topamax (off), cataflam (off), Midrin (off), Flexeril (off) and now Namenda XR (off), Nortrptylin (off), Verapamil (off) Therapy- Osteopath, Vestibular and balance therapy, fuzion/soft tissue massage, acupuncture Drs- ER (no help), GP, Chiropractor, Neurologist and Osteopath |
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What would you want Parents & Educators to know about TBI? Please Reply!
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