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| Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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05-03-2014, 01:30 PM
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Hi all
So nervous, stress, hoping for some light, some hope in these results Will post tonight about it. Peace, wellness, and friendship, Jace The sky is so pretty today
__________________
. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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05-03-2014, 03:28 PM
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Best of luck-these things are always so tricky. Sometimes more than you want, or less than you need.
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness. Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine. Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs. Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014. |
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| "Thanks for this!" says: | Living_Dazed (05-03-2014) |
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05-03-2014, 07:57 PM
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Magnate
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Yes, listening to my report was hard, but it was the best thing I ever did in connection with my TBI. Knowledge is power.
Oddly, listening to the neuro-psychologist describe the new world my battered brain had forced me into was sort of a relief. At least I stopped thinking I was crazy. |
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| "Thanks for this!" says: | anon062314 (05-03-2014), Living_Dazed (05-03-2014) |
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05-03-2014, 08:54 PM
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Hi All,
Even though it's 18 months I feel emotionally that I'm still pretty new. Maybe it's because realizations keep happening for me. ? I'm not sure. I still have denial, guarded closely to my heart that I share with my mind. I've been wanting someone to tell me it's not so bad. My results were not what I was hoping for. The area in the brain controlling vision is very bad. She said I still have healing time but that it will not likely it will be enough to get my visual part up to where it's sufficient for driving or working. Same with my memory, processing. I'm so flooded with information and emotions I can't remember it all. She said I will not teach in a classroom again. Working a job with the variety of my issues won't happen. That I will need to get things together for SSD. Possibly someday I could tutor at home one on one. So many thoughts. I wanted to hear of a therapy or pill. I knew from the otologist (I have a brilliant doctor in Chicago) that this does not heal-the vision issues I have, but my brain may make work arounds. I did improve but plateaued 10 months ago. I'm so thankful I did improve because I could not hardly walk. I'm done for tonight. Thank you for the support and friendship. All of you are a wonderful part of my new life. Jace
__________________
. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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| "Thanks for this!" says: | berkeleybrain (05-03-2014), music-in-me (05-04-2014) |
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05-03-2014, 09:02 PM
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Quote:
 for you Jace.
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05-03-2014, 09:28 PM
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Magnate
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I have one word for you: Neuroplasticity.
Right now, you're in shock. I know, I've been there. However, try not to give up hope. The healing power and adaptability of the brain is amazing. Research is also showing that improvement continues for a lot longer than we used to think. I'm seven years out and I can do things now, I couldn't manage 18 months ago. Get all the therapy you can. It DOES help. My prognosis was dismal. Am I back to normal, no. However, I'm a heck of a lot further than the neurologist ever thought I'd get.
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| "Thanks for this!" says: | MiaVita2012 (05-04-2014) |
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05-04-2014, 09:53 AM
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Magnate
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How are your spirits, today?
I got out my report and reread it last night. It can still make me cry. But, you know what, it's not describing who I am now. Thanks to Attention Processing Training, etc..., I've made progress. Without the neuro-psych, I wouldn't have even known I needed APT. Plan for the worst, but work for the best. Thinking about you. |
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05-04-2014, 02:06 PM
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I am very sorry. It is tough esp when MDs tell us what we will be able to do with our future. Really they do not know how much we can improve. All they know is scientifically it is proven that we cannot be 100% the person we were before the trauma. Time is the BEST result.
I had 4 impairments in the zero percent. As time went by and I have been relearning life and everything included. I first had to learn my body & mind and keep loving myself and look to a Higher Power to guide me. Learning your body is learning what your body & mind can tolerate. And to teach us to stay away from the triggers. You will start to get clarity after you experience it. Your life will start forming around what you are learning from your body and mind. Remember to always love yourself and know that there is hope of improvement. 
__________________
What Happened: In 2011 I was in a MVA . Symptoms: Physical: I am always cold in any season!!I cannot tolerate anything pressure on my head(sun glasses,hats)longer then a hour,Lock jaw/Displaced TMJ, Dropsey, Hands go numb, Arms go numb, back of head numb (when asleep),Muscle spasms in face & upper body,migraines, concentration headaches, dizziness, nausea, neck and back trauma (from accident), tinnitus, extreme light sensitivity, noise sensitivity, EXTREME fatigue, impaired vestibular system, balance off, Pupils NEVER equal, disrupted sleep cycles,speech problems. Cognitive: Cognitive Behavior, Brain fog, impulsivity, speech problems, word finding problems, slowed processing speeds, impaired visual memory, impaired complex attention Emotional: Unable to handle stress or overstimulation without getting extremely irritable or angry, easily overstimulated, MAJOR depression, major anxiety, Panic attacks Treatment so far: Treatment for PCS,PTSD,Depression & panic,Vestibular therapy, Physical therapy, Vitamin Schedule,Walking,No Dairy, No eggs, No caffeine, No artificial coloring, Sleep with 2 pillows, Very little sugars consumed, Eat healthy,No alcohol, Medications, limit stress and overstimulation. ~*~Learn to treasure yourself and your Divinity. Be willing to accept yourself completely. Be yourself, be graceful, be kind, be wild, be weird ... be true to yourself~*~ |
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| "Thanks for this!" says: | anon062314 (05-04-2014) |
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05-04-2014, 06:13 PM
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Hi All,
Just blue today letting my mind wrap around this. Hugs to u all. I just need a few days to ? I know you all understand. Jace
__________________
. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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| "Thanks for this!" says: | Hockey (05-04-2014) |
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05-04-2014, 06:42 PM
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Be well and kind to yourself.
__________________
The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness. Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine. Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs. Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014. |
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| "Thanks for this!" says: | Hockey (05-04-2014) |
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