Think I should call the Dr tomorrow and tell him? Im just nervous he will think im nuts. That and the receptionist is very rude.

Yes, absolutely do not hold back with your doctor. Consider writing all this stuff down, so you don't forget it when you're in the examination room. If your wife is available, it might be a good idea to take her with you.

That fluid coming out of your ears alarms me, too.

Good luck and keep us posted.

I will try and be nice about this but my dear... you need a new doctor or you need to get firm with the one you have...

If the receptionist is rude... in the nicest way possible explain to her that you are suffering from a TBI and she needs to cut you some slack and listen... If she can't do that then she needs to tell you who to ask for as soon as you call since she has zero compassion for those that are struggling.

As for your doctor... Start by telling him or her that you are just looking for some answers or explanations... Your symptoms are scaring you and those around you and then explain what is has happened. If he brushes you off stay firm on getting all the answers... write them down and check them off as you ask... if you don't get an answer at first, ask again until you get one you understand.

Sorry, unresponsive doctors and rude nurses and office staff upset me A LOT... they do not seem to understand that we need help, that is why we are there... we do not have the answers and need them to help us understand what is going on with us...

Ok I called. Dr is not in today but she took a message. I just hope they dont think im nuts because five months later and all of a sudden this new weird thing is starting. Lets hope its not seizures. She said they are also still waiting for work comp to approve therapy

The weird new thing started because he sent you back to work too early and he pushed you too hard...

Do you have more fluid coming out of your ear than normal? If so, I would almost go to the ER... but that is me and I can get paranoid fast and then anxiety sets in and it goes downhill fast

Oh, Kev, if you're wrapped up with Workers' Comp, you're going to have to fight tooth and nail to get proper care. They're all about protecting employers, controlling costs and rushing you back to work.

I know that's the last thing you want to hear, when the injury is robbing you of energy, confidence and initiative. However, you need to know that you will need to advocate - hard - for yourself. Remember, you're worth it.

If you're scared, don't wait around for this doctor. Go to the ER. If nothing else, they'll document the ear fluid.

I was so clueless when this all happened. No knowledge of brain injuries at all. If you feel comfortable after talking to the neurologist, ask him the same question, or ask the nurse. It's worth a try.

I remember only being able to muster, how long til I'm me again.

That was appointment one.

Same for appt. Two I believe.

My family were able to ask more in depth questions which I was oblivious to.

Have someone with you that can follow the conversation, ask pertinent questions, and remember everything.

Peace and wellness,

Jace

I think most TBI patients go through self-doubt. I know I did.

You ARE NOT crazy. If anyone tries to tell you otherwise, get away from them - fast!!!

AMEN!!! that is what I meant to say... Someone needs to document the fluid coming from your ear!

Yah, the ear thing has sort of been addressed and he knows about it after the last appt.

I just came back from my normal physician for an annual checkup. They asked how my head was doing ect ect. I told them about the current thing, and as suggested, asked if maybe it was a seizure going on. The dr said she couldnt give me any advice on it since it was a workmans comp case and they dont do that and I have not been under their care for it. BUT, she did highly recommend that I tell the neurologist about it (which I already had) and demand some sort of MRI to look into it, but thats all she would say on it.

My wife has been researching it too after reading this discussion, and she seems to think I could maybe having them as well. Im still not convinced, nor will I be until the neurologist tells me otherwise.

Also with the workmans comp, yah its a hassle. Especially since I was sent back to work part time and now im back out completely. The dr wants me to do stuff like go for walks and cut my grass (small yard) ect ect. I just feel as though if I do, someones watching and waiting to report me. Obviously I know whats going on in my head and the pain im dealing with, but to the naked eye you would never known unless you tried to hold a conversation with me. Slight paranoia I guess.

The pressure in my head this morning has been huge and im catching myself zoning out now. I sort of seem to know what to look for. I get insanely angry or moody, then Ill do something weird like silently scream or start singing a random song furiously, then I zone out. Im noticing though, im frozen in my gaze with my mouth wide open, but im able to think. Usually I can snap myself out of in about 10 seconds. Those first 10 seconds though its just my voice in my head telling me to snap out of it, then finally im able to. Not really sure whats going on, or if its just really my mind playing tricks on me. Usually after this happens I go lay down. Also, when I do it I notice my hands and wrists get really really weak, like I cant hold them up. So I like to say Im doing a velociraptor and limp wristing it. Weird I know.